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painterman
New Member


Date Joined Feb 2012
Total Posts : 12
   Posted 2/15/2012 3:56 AM (GMT -6)   
Hi everyone, can anyone give me info on similar symtoms to me. Neurologist as diagnosed migraine for me , but not a classic one?
 I have many symtoms as  are  the usual ie blurred vision, stiff neck but i dont feel that sickly and i seem to have a constant pressure in my ears causing a uneasy slightly light headed feeling.This seems to occur most days at the moment although i can be quite well for a few weeks at a time. Does anyone else have this pressure or do you think docs have got it slightly wrong?
I have had a brain and neck mri everything seemed normal. many thanks for any info and great website.

Susan578
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 2/15/2012 8:14 AM (GMT -6)   
Hi,

I, too, suffer from vertigo as one of my migraine symptoms, but I don't actually get a headache. My neurologist said it is most likely a migraine because it slowly progresses where if it was due to a seizure it would be sudden. MRIs on my neck and brain showed everything normal.

My vertigo can start from change in pressure of the room such as the act of turning on the air conditioner, certain room heaters, or change in weather. I've only had two spells that lasted for weeks, but when they did I could hear my heartbeat in my ear. Sometimes I would hear ringing. I've never felt the "fullness."

There is also meniere's disease. Google it and see if it might fit you, but it would not explain the blurred vision or stiff neck.

I get confused, high energy, bumbling speech, right side slight numbness and muscle ache, blurred vision, vision disturbances (bright floaties, stripped wallpaper on the wall waving like water), Novocaine like numbness in my fingertips, digestive problems, and stiff neck.

Edit to add: I take meclizine as a rescue for the vertigo. It works most of the time. My new neurologist put me on nortripyline as a preventative. I did take amitriptyline and topamax as a preventative, but they did not work.

Post Edited (Susan578) : 2/15/2012 6:19:56 AM (GMT-7)


painterman
New Member


Date Joined Feb 2012
Total Posts : 12
   Posted 2/15/2012 12:35 PM (GMT -6)   
hi thanks for your reply it seems to me there must be hundreds of different symptoms to different migraines at the minute i am just trying to put a name to my particular migraine

33Hope4Healing
New Member


Date Joined Feb 2012
Total Posts : 8
   Posted 2/16/2012 10:22 AM (GMT -6)   
Try Chiropractic care...I have seen great results with my chiropractor for migraine. Also, MRI, X-ray and/or cat scans do not show nerve damage. I only mention that in case you have had an injury that might be the culprit.

painterman
New Member


Date Joined Feb 2012
Total Posts : 12
   Posted 2/16/2012 12:28 PM (GMT -6)   
thanks for the info, I was in a car crash 2 years ago so sustained whiplash but I thought as Id healed pretty quickly and suffered no more pain for rest of first year migaine was not probably linked. havent said that I do recall doctor putting on mri  appointment post traumatic migraine? as first guess. Thanks again for thoughts I think I may be in Migraine Denial. :-)

33Hope4Healing
New Member


Date Joined Feb 2012
Total Posts : 8
   Posted 2/17/2012 12:06 PM (GMT -6)   
I am sorry to hear that. Although, now that whiplash is suspected. I want to strongly urge you to visit a chiropractor. It takes time and multiple visits but you can find relief.....drug-free. Which reminds me. Be so wary of any pain or preventative migraine or headache medication. They will cause the headache to rebound and that becomes its own nightmare. I speak from experience. I also now understand that when you are experiencing head pain from a neck or brain trauma that it is different from a classic migraine and won't respond to treatment that you find in the neurologists office...in other words drugs. My methods of drug-free pain relief are: Chiropractic/Cranio-Sacral Massage Therapy 2 to 3 times a week - All natural/organic chinese herbs and nutritional supplements as recommended by a health professional - Eating all natural/ organic foods and staying away from known headache triggers - meditating - Yoga on a semi regular schedule ;) - and therapy as needed to help with decreasing life's stresses. I have been using these methods for three years now after tapering off of all the prescriptions/ over the counters and caffeine I was using. All of these will cause rebound and refractory headache. It was scary to make that leap but I am so glad I did. I hope any of this helps!! I am speaking from 9 years of personal pain and experience... I am healing now the natural way and just wanted to share in hopes of helping someone else. Good luck with everything I truly hope you feel better soon

painterman
New Member


Date Joined Feb 2012
Total Posts : 12
   Posted 2/17/2012 2:48 PM (GMT -6)   
so grateful for your advice, its a lot to take in not being used to migraine pain and its various implications .You obviously speak from experience and I would definately like to take a natural, drug free route to pain relief as an option if possible. again many thanks for your thoughts and I wiil be looking into these options. I am glad you have found relief yourself and wish you continued good health in the future. 

33Hope4Healing
New Member


Date Joined Feb 2012
Total Posts : 8
   Posted 2/17/2012 9:32 PM (GMT -6)   
Good luck, and if you have any questions in the future feel free to ask.

Susan578
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 2/20/2012 11:59 AM (GMT -6)   
Talk to your neurologist before you see a chiropactor. A neurologist told me that manipulation of the neck can cause nerve damage. He recomended seeing a physical therapist instead for neck pain.

Be wary of organic teas. One brand uses stevia as a sweetener and did not label their package. This is how I found out that the new artificial sweetener (organic as they called it) triggers my migraines.

Caffiene is known to be a trigger for some people, but for others like me it helps prevent it. I know I will get a headache from too much or too little sleep so consuming a caffienated drink will prevent one. Everyone is different.

I would recomend going on a migraine diet to figure out your food triggers. You can find the specifics by google it.

painterman
New Member


Date Joined Feb 2012
Total Posts : 12
   Posted 2/20/2012 12:08 PM (GMT -6)   
thanks for your info susan 578, I drink a lot of tea,  always have so i dont think it would be my trigger and to tell the truth I,m not sure it is migraine, if so ive had one for 2 weeks constant but not enough to stop me working, everyone else seems to suffer far more than me!
 does anyone else feel they have been misdiagnosed or am i just avoiding the migraine diagnosis? confused

Susan578
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 2/20/2012 2:53 PM (GMT -6)   
You have every right to question your diagnosis. Every doctor I saw said it was due to migraines except for my new (third) neurologist said it may be a chance it is due to seizures. Though highly unlikely becuase the symptoms would come on suddenly where mine start gradually.

Keep in mind that everyone suffers differently. A lot of people can function and may not realize that it is a migraine. For example, I just found out my dad had visual disturbances similiar to mine for a short time in high school and he never had a migraine headache in his life.

painterman
New Member


Date Joined Feb 2012
Total Posts : 12
   Posted 2/21/2012 3:51 AM (GMT -6)   
hi susan 578 you are right , it is your body and you want to make sure its getting the best help but Ive been going back to docs  all last year and now referred to neuro , feels like i,m questioning them all the time  , they might feel that I wont be helped. I have to pick up prescription for amatriptiline? 1 a day for the forseable future but I really dont want to take medication for life( and the side efects they might bring!) I wiil tell doc this and see if I can try a diifrent approach, possilbly feverfew? thanks for your thoughts on the subject, think its going to be a long process!

Susan578
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 2/21/2012 10:14 AM (GMT -6)   
I was on amitriptyline for about 5-6 years starting at age 15 and I never had an issue with it. I got off when my headaches were under control for a few years. I got back on it when my right side went numb two years ago, but it made me feel hungry all the time so I stopped after a month. Now I'm trying nortriptyline which as my neuro put it, "a cousin of amitriptyline with less side effects." Been on it for a week and no side effects yet.

You might be on it for a few years or for life. If you later feel it is under control, then by all means talk with your doctor about weaning off or try stop taking it all together.

There is a supplement called migrelief that is made up of feverfew, magnesium, and vitamin B-2. My neuro told me to save my money and only take the magnesium and vitamin B-2.

painterman
New Member


Date Joined Feb 2012
Total Posts : 12
   Posted 2/21/2012 12:42 PM (GMT -6)   
Thanks again for your experiences, That nortriptline sounds interesting, heard me, sound like a fully trained neuro! What I mean is Im looking for a treatment that as as little side effects as possible so any info in that direction is appreciated.Good luck with your treatment and good health for the future, no doubt I,ll be on this on this forum again soon looking for answers!
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