Sorry its so long had a lot to say :-D
also i want to apologize if i repeat anything or is kind of scrambled up, my seizures make it hard to have stuff make sense and im not feeling well enough to read back through and edit at the moment so you just get it raw!
I wanted to comment because it seems we have been through some of the same stuff. I have been sick with one thing or another most of my life and it always seems that "tests" come back normal and the dr says there is nothing wrong with me and its all in my head, when i know that im sick and im not faking it and im not crazy.... so eventually a couple dr's later i seem to always come to some conclusion. Recently I have been having problems with chronic headaches and seizures as well a tachycardia(high heart rate), I had to move back home with my parents and had a total change in life style and went from being very active to on pretty much complete bed rest from my chronic headaches. I couldnt hardly stand up because of feeling light headed and the room like it was spinning, i had to keep everything very dark. First my dr figured out that I was having seizures and from an MRI found a cyst on my pituitary gland. My heart rate jumps up when i am up and moving around but is not as bad when im laying or sitting, im on a beta blocker for that and it helps a lot. I finally found a surgeon that agreed to remove my cyst. As soon as I woke up from surgery It was like my headaches were gone and the pain from the surgery was nothing compared to the headaches i had before, for the surgery they go through your nose. Now its been about
7 months since my surgery and the strong sharp headaches are gone but i still have a lot of pressure in my head and constant strong headaches, dr thinks they are from my seizures. My seizures are Partial Complex in the frontal lobe on the left side, so i just zone out and stare off into space. Like you said I have a terrible time focusing on anything and remembering things, i had to drop out of college because of it. my dr suggested starting with small amounts like read something for one minute once a day for a week then go to 5 minutes, 10 min etc... to help build up slowly focusing on something and trying to remember. It helped a little bit, I can now do some stuff online so it keeps me from being totally bored. After I had my surgery the dizziness wasnt as bad but i still have some problems. my dr said that when im sitting down before i stand up to flex my calf mussels and then my quads and stand up slowly, something about
getting the blood moving, and it really seems to help with that along with increasing the amount of salt i eat. I also have found that some medicines that ive been on have made the light headed and spinning worse and then when i went off it would get better, so if your on medicine for the headaches try a different one, ive been through all the classes of headache medicine now with no luck for one reason or another and now my dr is having me try botox in two weeks. I also have lost a lot of weight since i first got sick about
two years ago and i had to get a handicap seat for in my shower so i could sit down to shower, helped with the dizziness and not getting as tired. I also get really tired from showers, i can usually only shower once or twice a week and then take a nap for like an hour when i get out of the shower, once i got the seat though it helped a ton! and one last thing my general care dr did suggest that i see a therapist, not because he thought i was crazy but because he could see the toll being sick and the major life style change was taking on me. I got depression really bad and was on the highest dose of medicine i could have. so i agreed to go and ive been going for about
5 months. Its been a big life savor for me! I thought it would be stupid for something like that but just having some ideas on how to think about
things and help with finding stuff that you can do and realizing that it will be a slow process really helps not make things as frustrating. I know its helped me a lot and i always feel a lot better after sessions and kind of renewed in my faith of getting better some day and just happy not to be more sick
also doing research online to try to find what i might have i came across something called POTS Syndrome, I have a day long appointment next week and lots of tests with a specialist doing a research study on it at the local university. Where it seems like we have some similar stuff you might want to look it up.