13 1/2 year old daughter suffering ..please read.

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New Member

Date Joined Feb 2012
Total Posts : 1
   Posted 2/28/2012 12:27 PM (GMT -6)   
The background about 6 weeks ago,, my healthy, athletic, daughter had these sharp bilateral pains in her temples lasting from 20 secs to maybe 2 or 3 min. These occurred several times a day, she didn't tell me about them until January 30th when she said they were coming all the time. They would shoot a stabbing knife like pain, then stop and there would be residual pain would occur every 5 to 8 minutes thoughout the day. She was able to sleep, in fact that was her only time without pain.

I took her to her PCP on the Tuesday 31st, she recommended motrin. Dr did test for mono, lyme**, cbc etc..all normal..by Weds pain still unbearable, took to local e.r. gave her neurological workup all negative(no mri given) and given fioricet which provided NO relief. Next morning off to see neurologist..he diagnosed atypical migraine..prescribed nortiptolyne and prednisone..after taking prednisone..her pain went to constant never ended.I took her to childrens hospital Boston on Friday..they gave her toradol..brought pain to 8 from 10..mri given..negative..lumbar puncture..negative..admitted her for 24 hours..sent her home with prescription for nortriptolyne and take motrin. Since February 4th, she has had constant bilateral pain from temple to temple including forehead with occasional stabbing.

Nothing is working, she has gone to an optholomologist, chiropractor (who said her neck was out of alignment, he did a correction and her pain shot back up to a 10..a dentist,(she does have impacted molars but doesn't think that could cause the pain
since they have a way to go) She had dessiminated lyme in 2006..
She had an episode of syncope where she blacked out in the bathroom and occasional bouts of dizzyness when getting up from a sitting position. I have contacted a cardiologist and an ENT and awaiting appointments. She has seen a therapist and they don't think this is psychological...

Any ideas..suggestions..thank you all in advance

New Member

Date Joined Feb 2012
Total Posts : 16
   Posted 3/1/2012 12:39 AM (GMT -6)   
I didnt see an EEG in your list of tests. Really sounds like the seizures i have, they are called partial complex and sometimes i get stabbing pains and almost always a constant headache with them. they can make you faint also. I think the cardiologist is a good idea also. I recently went to the faint and fall clinic at my local university and they are doing tons of tests, they have neurologists and cardiologists that work together to evaluate all kinds of things like that, the one here gets people in to see the dr within 24 hours so its quick too. might be something else to look into. Good luck!

New Member

Date Joined Jul 2011
Total Posts : 15
   Posted 3/1/2012 9:56 PM (GMT -6)   
Has your neurologist mentioned trigeminal neuralgia? I recommend finding a headache specialist in your area (not just a neuro) I am including a link at the bottom of this post.

(I was having trouble opening up this link earlier but it seems to work now..so let me know if it doesn't work and I will copy and paste for you). It looks like there are a few headache specialists in the Boston Area. Hopefully they can help you or point you in the right direction. I'm 36 years old and started having head/facial pain out of the blue 2 years ago.. I had no idea where to turn.. I was going to Opthalmologists, rheumatologists, neuro-opthalmologists..etc.. I have tried all the alternative therapies as well.


Best Wishes
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