DOES ANYBODY WHO SUFFER WITH CHRONIC MIGRAINES HAVE ANY OF THESE PROBLEMS AS WELL??????? HELP PLEASE

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My Lovely
Regular Member


Date Joined Feb 2012
Total Posts : 54
   Posted 3/6/2012 4:56 AM (GMT -6)   
I suffer with chronic DAILY migraines with visually disturbance and have done for a year now, read my other posts if you are interested as I have recently posted detailed info, it may be helpful all round.


DOES ANYBODY GET ANY OF THE FOLLOWING ALONGSIDE THERE DAILY CHRONIC MIGRIANES??? IM TRYING TO WORK OUT IF THIS IS ANOTHER PROBLEM I HAVE AND IS NOT REALTED TO THE MIGRAINES, PLEASE HELP:


Ok well this is another problem I have and it’s been playing on mind since i wrote the very beginning post that I maybe need to tell you, the other thing I feel. I have no idea if it’s linked to my chronic daily migraines, or it’s something totally different, but it’s really affecting my life, weekly now. I just need advice from other migraine sufferers to see if this is normal to relate to migraines??? Or I have a totally different issue :-(


WELL.... ever since I can remember, since I guess the age of 14-15 approx I’ve always needed lots of sleep to make sure I can feel motivated/alive the next morning. At this age if I didn’t get enough sleep if I got up too early or went to bed too late id feel sluggish, very tired etc. All my life I’ve never ever been a morning person. I know your probably thinking that’s like anyone who doesn’t get sleep, but I honestly know this isn’t right, I kind of thought at the time what’s up with me but at this age you just get on with life and you don’t realise what’s happening, I thought everybody was feeling like I was, but they apparently weren’t. Don’t get me wrong it wasn’t bothering me at this point in my life, or making me too poorly or anything at all, it’s just what I’ve now noticed now growing up/looking back. Well as the years have gone on its gradually got worse and worse. I’d say around the time I was out partying/drinking/nights out on the town well I was the one after the event I would suffer for a day after, at this stage I’m 18, my friends could go out for a night out and drink alcohol and then the next day would be full of energy and maybe go out shopping into town, id feel like I was dying and have to stay at home recouping my energy! From having alcoholic drinks I get the worst hangovers ever!!!!!! I’m known in my group of friends for this, it’s insane how ill I am after I’ve been out partying in my town with a few girly friends. So that’s age 18.


Well as the years have gone on age 22 a night out, I’m starting to notice now if I have even 3 alcoholic drinks I get a full blown hangover the next day! I feel like I’ve drank a bottle of vodka the nect day not just 3 drinks!


Age 24: Evan if i have a late night e.g. stay out with friends until 12am and go to bed late and have no alcohol, the next morning I feel like I’ve been out and on town drinking alcohol and have a hangover! Also starting to notice if I get up too early this also makes me feel unwell/ i get this hangover feeling the next day.


26, NOW: well this is what’s really really worrying me, I am getting this 'hangover' feeling more or less all the time, at least weekly, every time I do something really, if I do manage to go out which isn’t often at all, I am basically house bound at present due to my chronic daily migraines, e.g. I managed to see a friend on Friday for an 2 hours, I purposely made sure I was home early so I was in bed to get a good night’s sleep as I know how ill it makes me, I was in bed at 9.30pm, and I’ve now had this 'hangover' feeling for 3 days in a row (Monday today) this is normal, I have noticed that it tends to last between 1-3 days. I get it if I haven’t had enough sleep, but I seem to be now getting it if I do something, just something little!!!! I just don’t know why??? Or what it is, I talked to the doctor years ago, but they brushed me off! And made me feel silly, so I didn’t go back, I felt silly enough talking about it anyway. But now I’ve got Chronic Daily migraine, I’m very worried that it’s making it worse, I just don’t know what to think or if its related. I haven’t gone back to the doctors about this yet as I need my migraines to get sorted 1st, as that’s the main priority, but I seem to be falling apart.


The word Hangover, is the only and best way to describe this, as it does feel like an actual drinking related hangover. The other thing is, My mum is also very very poorly, she has many health problems, such as Degenerative Disc Disease, Myofascial Pain Syndrome, Fibromyalgia, Non Restorative sleep, chronic back pain in the whole of her body basically, arthritis, etc etc the list could go on I’m afraid, but she also gets this, we both describe almost the exact same thing! The times I tend not to get this ‘hangover feeling’ is if I get a good night’s sleep, an early night and not get up too early in the morning and now if I haven’t don’t too much activity wise. I don’t want to tell the doctor my mum has Fibromyalgia as I don’t want it to be an easy target to say it’s this. I’ve read all about fibro, as my mum has every booklet going, and I don’t think it sounds too much like me, as i don’t suffer from pain throughout my body, Obviously apart from head pain - my daily chronic migraines.


This is what I feel like when I say 'hangover' feeling, I get these symptoms ever single time:

Eyes feel sore
Can hardly keep eyes open
Hot skin
Dry mouth
Dry throat
Stuffy/dry dose
Feel very dehydrated
Need to sleep
Feel sick
The taste of water makes me feel sick/worse
Not even sleeping or anything i do can get rid of this feeling


Any info/advise/guidance greatly appreciate, not only for myself but also for my mum as we both have this and have no idea what it is, or even if you think I should post this in another forum? Thanks
:-)

Violet Rose
Regular Member


Date Joined May 2011
Total Posts : 48
   Posted 3/6/2012 1:36 PM (GMT -6)   
gonna make this a quick reply, as I'm at the end of a nasty migraine, will hopefully be able to reply at more length once its passed :)
 
just wanted to say I know how you feel, I was the same when I was younger, I envied my friends being able to go out and drink all night and get up the next day like nothing had happened!! I was usually ill for a couple of days, I couldn't move of the sofa without being sick and with such a bad headache I used to tie a belt round my head LOL
 
anyway, as the years have passed (I'm now almost 40) I have learned that I simply cannot tolerate alcohol in any form, not even a sip.  I am violently sensitive to it as I am also sensitive to many of lifes pleasures it seems.
 
One thing I've learned in my research into migraine and why we get them is this.  Our brains are oversensitive to changes that most people don't even know are happening.....thats why we have so many triggers....I have this terrible migraine now simply because I went to my partners parents for dinner on Sunday....because there was a lot of talking, eating, laughing ect.....
 
I can limit my migraines if I keep my life as calm and peaceful as possible, and this is because my brain simply can't tolerate any kind of overstimulation.  Unfortunatley this has changed me from being an outgoing sociable person to a virtual recluse, thank god for my supportive partner and these forums!
 
about the sleeping, just thought I'd point out that too much sleep is a migraine trigger for some people, including myself.....I ALWAYS wake up with a headache if I sleep more than 7 hours.  I go to bed at around midnight and I get up at 7-7.30...no exceptions, not even at weekends.  If I get really tired in the day and give in and have a nap I often pay for it the next day with a headache.  The only time I can sleep more is when I am in a full blown migraine attack, then I have no choice but to sleep all day/night until its passed.
 
ooh and one more thing, do you take over the counter pain meds? asparin or paracetemol ect? only I have to be careful with those as they cause me rebound headaches, I get into a cycle of taking them for a headache then the headache comes back the next day so I take more until I end up taking painkillers every day to carry on.  When this happens I have to just go to bed for 3/4 days and let the migraine take hold withouth the painkillers and let it pass naturally, its horrible but I do find that once I did that I can be headache free for a few weeks at least.  I read somewhere that any painkiller containing caffeine or codiene is terrible for rebound headaches and for years I have been using anadin extra which has tons of caffiene in it.
 
Keep smiling, will try to add more when I feel better :)
 
 

Jtoz54
Regular Member


Date Joined Mar 2012
Total Posts : 30
   Posted 3/6/2012 5:39 PM (GMT -6)   
Hi My lovely you have just described my life except since I am older than you, things continued to get worse as time went on.   My whole life I suffered from headaches with the pain always starting in my eyes. Eventually I would get dizzy and vomit. I always needed a lot of sleep and would literally shut down at night when I reached my bewitching hour.  I always felt a little foggy headed and as time went on I developed arthritis all over and Asthma. At one point I was misdiagnosed with fibromyalgia.
 
I finally hit bottom when my shortness of breath, Asthma,  wasnt being helped by the prednisone, my migraines were several times a week  and I had bursitis in my hip along with other aches and pains. My Drs. were no help, and I felt like I was gonna die.
 
I was lucky enough to know that I was allergic to aspirin. Aspirin is a Salicylate, it comes from the bark of the Willow tree. All plants produce salicylates as natural insecticides.
 
So I looked up "Foods containing Salicylates". I couldnt believe that it was in all fruits except bananas, peeled pears, and papaya. Its in most vegetables except string beans, peas, lettuce, cabbage, brussel sprouts and celery. Salicylates are real HIGH in Tomatos sauce, broccoli, cucumbers, coffee, tea, Olive oil, oregano, pepprika, hot sauce, vinegar, and many other things that come from plants.
 
I immediately gave up foods in the Moderate to Very High Column and 2 days later I was all better. My migraines were gone, my Arthritis is gone and my breathing improved 100%. 
Most people with migraines are Salicylate Intolerant.   More information about this food intolerance, the symptoms ,the Foods to eat and avoid and some recipes can be found in a book called,
"Salicylate Intolerance and The Healthier I Ate the Sicker I Got.
 
You are not a hypchondriac, you are not crazy, and you are not alone.   There are so many people with Salicylate Intolerance with the exact same symptoms as you.  The chronic fatigue symptom is very typical, most kids with ADHD have it and 80% of Autistic kids have it too.  Well I could go on and on but I hope this helps and you can get more info if you google, sick from salicylates. Take care, Joan

Moky
Regular Member


Date Joined Mar 2012
Total Posts : 22
   Posted 3/6/2012 7:35 PM (GMT -6)   
My migraines can be at the base of my skull, back of my head, top of my head, move from left to right temple, left to right eye affecting vision, into nasal passage, jawline-make teeth hurt.
 
They affect people differently. I take Topamax for prevention.
 
I also, maybe once a year, have" ice pick "migraines. It is 1 or 2 VERY SHARP pains in your temple, disabling pains.
 
Ocular migraines cause eye pain.
Migraines with aura affects the vision.
 
Hope this gave some info on migraines, I don't know about the other symptoms. But preventative meds couldn't hurt!
 
Moky yeah

Artsinthepark
Regular Member


Date Joined Mar 2012
Total Posts : 27
   Posted 3/7/2012 7:46 AM (GMT -6)   
Have had chronic migraines for several years, took Topamax which helped for a while but then stopped working- the need for sleep has been an issue since the onset of menses. I agree that a regular sleep pattern seems helpful- 10 to 6:30 seems to be my scedule. Once the migraine gets ahold Ive gone for Optical nerve block- a few shots in the skull- and that helps but not long term! Triptans help but again the migraines usually knock me out for a couple of days. Being fatigued is a major frustration and I am learning to keep my mind engaged actively in whatever I am doing because if I let myself stare off I need a nap which makes the cycle worse!!! I hav fibro so fatigue is part of life- get a hobby, drink water with lemon or herbal tea ( I hav that weird taste of water sensativity too)-get socially active and pray!

Artsinthepark
Regular Member


Date Joined Mar 2012
Total Posts : 27
   Posted 3/7/2012 8:03 AM (GMT -6)   
Oh yea- stay away from sugar substitutes! The chemicals contribute to all kinds of health problems- try eating as clean as possible, the web and books are full of great recipes. Also a magazine out there!

My Lovely
Regular Member


Date Joined Feb 2012
Total Posts : 54
   Posted 3/7/2012 9:25 AM (GMT -6)   
Violet Rose: HI, thanks for posting againg, your words are so wise :-) and so helpfull, it sounds like we are simular!

Yes i was told by the consultant that over sleeping can make the migraines worse, but this is where i come unstuck, as this is when if i dont get enough sleep i get the 'hangover feeling' i really dont think its realted to the chronic daily migraines, as evan when i have 'good' days, well i say good, but you probabilly know what i mean, good for me, i still have the horrible hangover feeling draining over me, it makes me feel so ill! its so hard to desrribe. I think its so odd that me and my mum descibe the exact same thing too.

But the past 2 weeks i have been sticking to routine of sleep as sugested by consultant and reading on the forums. Going to bed at 10pm and up at 7am, and ive noticed it has helped my head very slightly, but this is me in the house all day everyday, as im too poorly to go out (with head pain/migraines and vertigo). But i manged to go out once last week, to my friends and i was so carefull, she knows how bad i am too, so i limited my talking eye contact, and only stayed 2 hours so i was home to go to bed early. But beacuse it seems ive broken my routine of doing nothing, im paying for it the next day, with this hangover feeling. I hope im making sence lol, im not the best at explaining at all lol. and the computter is soooooo bad for my head and eyes im just typing away.

Also for example last night my sleep was disturbed i was so dehyrated and needed water, i couldnt get back to sleep for an hour or so, and this morning i feel just awful, i have this hangover feeling again, all day long, it wont go till i go to bed. Its like i wake up some mornings and feel like havent slept, i cant sleep it off either.

re bound headackes, yep my consultant filled me in on this, on what not to take, just as you said to stay away from co codamol, apaerently thats a really bad one for us. THANKYOU :- :-) :-) take care


Jtoz54, Hi there, thanks for your post, sorry to hear about your tough times and all your illness' :-(. ive noted down the book and ill be ordering that, many thanks :-) My chronic daily migraines all started so we think due to my hormones, i had 3 types of contraceptive pills/methods in too short of a space of time. Ive already cut out the norm foods cafine etc. Thanks :-) very much appreciated

Moky: thanks for your post, im on topamaz at present, and had the most awful time on this drug. i suffered almost every side effect on the leaflet, so at min im weaning myself off it, my next step is botox injections. I also have a abortive meds at min a take sumatriptan-which seems to help for 30/hour ish. Thanks


Artsinthepark: Hiya, thanks so much for the post :-)
opitcle nerve block, this will be my next step if the botox doesnt work, so strange you say drink water with lemon....thats the only was i can drink water when i feel like this!!!! thats all i do water and lemon, its the only thing that makes me feel teeny tiny but better and not feel so sick when drinking.
My lovely - Chronic Daily Migraine with Visual Disturbance

Jtoz54
Regular Member


Date Joined Mar 2012
Total Posts : 30
   Posted 3/7/2012 5:42 PM (GMT -6)   
Hi, its me again. I know exactly how you feel. I used to get migraines for 50 years. Since avoiding foods high in sals now I just dont get them anymore. I also have to avoid artificial colors (made from petroleum), artificial sweeteners (poison), artificial flavors like Vanillin (made from waste products of paper mills) MSG, sodium nitrate and fluoride( rat poison). I drink only water or seltzer with lemon or lime.

I used to think my headaches were either stress headaches or sinus headaches and sometimes hormonal.

My eyes were always dry and gritty. I tried Restasis and tear duct plugs, nothing worked. Now they are fine. My vertigo is gone too.

My lovely if you could just try the Low Sal diet for 1 week you might not have to try Botox or other meds. Thats all it took me to feel better than I ever felt in my life.

As a kid we had spaghetti sauce (high in sals) and meatballs every Sunday as well as salad with Olive Oil and wine vinegar. Then I would get a bad headache. My Mom would tell me to take an aspirin and thats when I would get a pinchy throat, stuffed nose, clogged ears , dizzy and nauseous. There are so many people suffering out there and unfortunately doctors dont really know about Salicylate Intolerance. They are just learning about Gluten Intolerance. Also theres no test for Salicylate Intolerance. You just have to avoid the foods in the moderate to high column and see if you feel better. God bless you, Joan

Moky
Regular Member


Date Joined Mar 2012
Total Posts : 22
   Posted 3/7/2012 7:50 PM (GMT -6)   
  • Depakote ER is another migraine med I used successfully. 1000 mgs.
  • I stopped it because my neurologist thought it may make Essential Tremors worse.

Moky yeah


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 3/11/2012 8:17 PM (GMT -6)   
Drinking and lack of sleep sounds like triggers to your migraines.
Lack of sleep causes me migraines.
However, with them being daily you must, and I have to stress must, get in with a Neurologist and get a full body MRI as well.

You can email me at
amerewildhost@gmail.com

Desiree
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

stephanyjml
New Member


Date Joined Mar 2012
Total Posts : 2
   Posted 3/13/2012 7:03 PM (GMT -6)   
Violet Rose, my life sounds very similar to your life. I am 44 and was once a very, very outgoing and socialble person. And, like you, I am now a virtual recluse. Sure, I know how to behave normally when I do go out, but I prefer to control my surroundings due to my migraines. I agree about the overstimulation you described, but I am have to include smells. Certain strong smells can give me a migraine very quickly. My lifestyle can be particularly difficult. My husband's family does not communicate in English so when we visit, or when they visit here, they communicate solely in a foreign language that I do not understand, which can often cause a migraine. If this wasn't difficult enough, they also listen to extremely loud music in the same foreign language. I've recently bowed out of family functions.

I started Topamax in October and so far I'm happy with the results.
 
I don't drink alcohol at all anymore.  It's not worth it to me.  I'd likely get a headache/migraine if I drank, and I don't want to take the chance, so I just don't drink. 

Post Edited (stephanyjml) : 3/13/2012 7:08:30 PM (GMT-6)


MY3PETS
New Member


Date Joined Feb 2012
Total Posts : 3
   Posted 3/13/2012 9:18 PM (GMT -6)   

Please ask your dr. if you can take FROVA (a pill). after 30 years of headaches, I now have a life! tongue i went to UCLA in ca. i was told i HAD four types of headaches. for years i took shots of DHE-45  AND REGLIN  i was getting shots approx. 3xs a wk a total of six shots. I thank God my husband was able to give them to me. FROVA gave me no rebound. the longer you go without a headache, you will notice they come less frequently. I am now in control and only suffer from sinus headache which is nothing ! please e mail me if you any Q.    sweetmanx@aol.com  i am a female, married with four grown children and 5 grand. PS MY FIRST X HERE, I HOPE YOU GET THIS. AND GOOD LUCK TO YOU AND ALL WHO SUFFER WITH MIGRAINS scool

Post Edited (MY3PETS) : 3/13/2012 11:20:44 PM (GMT-6)


MY3PETS
New Member


Date Joined Feb 2012
Total Posts : 3
   Posted 3/13/2012 9:36 PM (GMT -6)   
LOVELY you said your mum has myofacial pain. WOW that is a type of headache, so you may have more then one type. just think about if you hurt and have pain when u have a migraine.

Violet Rose
Regular Member


Date Joined May 2011
Total Posts : 48
   Posted 3/14/2012 9:39 AM (GMT -6)   
Stephanyjml:
 
thats such a coincidence that one of your triggers is the foreign language! I am english, from the UK but currently living in Italy with my Italian partner.  He speaks fluent english, my italian is non existant and his family speak no english at all..  Needless to say family events are stressful for me, I usually leave with a migraine starting and have often wondered if its the constant trying to translate what they are all saying.  Now you confirmed that I was probably right about that.  I find that the more people all speaking at once the worse I get....I am pretty sure its the brain being 'overstimulated', its the same if I enter a crowded room full of lots of people talking at once, my partner and I joke that my poor brain just can't cope with it lol...
 
This is my first pain free days for 10 days.....my last migraine was horrendous and I'm not even really sure what triggered it it could have been half a chocolate biscuit I ate, or the one small cup of WEAK coffee or it could have been the visit to his parents, I just don't know but I do find my life closing in more and more as I try to shut out all these possible triggers!!
 
One a more positive note, I've decided to taper off my preventatives as they do nothing for my migraines and try something more natural instead, my partners has been googling and came across a product called  Biocephal, made here in Italy.  It contains all natural ingrediants based on chinese herbal medicine. It was recommended on a website for migraine and many people reported success with it , it supposedly helps to get everything more balanced in the brain.  Its worth a go as drugs just don't seem to help and I hate all the side effects. I've also started taking magnesium supplements along with iron.
 
Aside from this nasty migraine I just had I have been having a little success following a strict diet and removing all known food triggers.  Now if I can only sort out my constant stiff neck...!
 
pain free days all!
 
 

My Lovely
Regular Member


Date Joined Feb 2012
Total Posts : 54
   Posted 3/21/2012 4:01 AM (GMT -6)   
THANKYOU EVERYBODY, ALL COMMENTS AND ADVICE IS TAKEN ON BOARD, AND VERY MUCH APPRECIATED, SORRY I HAVENT BEEN REPLYING, HAD A VERY BAD WEEK WITH HEAD PAIN AND THE COMPUTTER IS THE LAST THING I CAN LOOK AT :-(.

Well ive had a chat with my doctor, she thinks i may have another issue alongside my chronic daily migraines :-( she thinks either chronic fatigue or fibromilagia :-( more problems-arghhhhhh! :-(

Violet Rose: HI. Yes i too have tried herbal remedies as i went to a chinese dr in the beggining of this. I may have another go at this. As the chinese medicine looks at the actual deep rooted problem why it came about. Our western medicine just treats the problem as it is, and doesnt evan look at why its happend. western drs dont care why your like this/what caused it! they just give us tabs after tabs, no trying to find out why!
So i actually thought the chinese way was very good. Good luck with it :-)

MY3PETS: Helllo, thanks for the post :-) i will do some research into this drug. Thats amazing news for you :-) cant imaging how great it is to have pain free days :-)

stephanyjml: i too am the same, i dont leave my house :-( i am stuck here all the time, my migraines are very disabiliabting. Ive just spent 7 days in absolute agony, so ill, drained, weak, exhaused, my vision is terrible all due to my neighborough playing her music from 10pm-11pm last week, and its resorted me to be stuck in bed till today, if only my neighborough new it did this to me. I have been so incredibily upset this week. The fact my life has stopped! and ive been a recluse for a year, I cant handle it :-( im so depressed too. And for the dr to now say i have more problems its so sad. Im 26 i should be out with my freinds having fun. I have to turn down every social event, its so hard to deal with. going from a independent person, i lovedto be out socialising, to what i am now. I cant see how this is ever going to get better. I also dont drink alcohol, when i stated in my 1st post i am refering to how i feel as a 'hangover feeling, not that ive actually drank alcohol. I very much wish i could drink lol. Take care


SmurfyShadow: ive had a mri, but not full body. Why do you say have a full body MRI? Thanks :-)

noddysshodybody: wow Paul, thanks for your post :-), very lovely of you indeedy. Sorry its taken me a while to read it, i realy stuggle on the comp esp reading lots my vision is all of the place and its very difficult, with a banging head ontop lol and to take info in. So bare with me please. Thats some very usefull and interesting info, thankyou. So do you suffer with Chronic migraines? Are you researhing this then? Thanks

THANKS EVERYBODY :-)
My lovely - Chronic Daily Migraine with Visual Disturbance/Vertigo

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 3/22/2012 8:17 PM (GMT -6)   
hi my lovely.as i am new to this forum,i have not read your story about yourself.i am a chronic migraine,headache suffer and have had these for about 24 years now.i find if you don't get enough sleep,you feel like s....t the next morning.in your case i would be going to the doctor and getting a blood test to see if your body is lacking in something.just a thought.good luck.

centaurus
New Member


Date Joined Mar 2012
Total Posts : 1
   Posted 3/23/2012 12:57 PM (GMT -6)   
Looking at some of the postings the symptoms have a lot in common with Vestibular disorders. My wife has been quite severely affected by this. I'm not trying to create false hope or provide misleading information but it is quite common and might be worth consideration. An outline of the symptoms can be found here.http://vestibular.org/images/pdf/Vestibular%20Disorders%20Overview_VEDApubM2.pdf. Good luck to all cool
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