PLEASE HELP!! Dizziness and Photophobia that has been lasting over 5 weeks w/ No headache.

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outdoorzgirl
New Member


Date Joined Mar 2012
Total Posts : 2
   Posted 3/17/2012 11:38 AM (GMT -6)   
I am crying as I am typing..that is how desperate I am. I was diagnosed with migraines at 16. It started with numbness. I would not be able to feel my body, dizziness, photophobia, confusion,etc. Sometimes I would get so confused I could not get my words out right. These episodes would last for a couple months, not just a day. What I find odd is that I rarely had a headache with these attacks. How can I have migraines without a headache. As I got older my attacks would be less frequent and would not last near as long. 5 weeks ago I got that feeling again. I guess you call it an aura. Got numb, confused, dizzy. This happened out of the blue. Since then I have had non-stop dizziness. Not sure if that is even how to describe it. It is almost as if everything around me seems larger, especially if I look out in the distance. If I focus on something upclose it is not that bad. It is very scary. I get disorientated when I go in any stores. Thank god I work at home or I would have already lost my job. My hands stay ice cold most of the time, but my arms will be warm. My ears have been ringing nonstop. I have periods of tingling and numbness in my toes, ankles, head and face. Could this be a migraine attack? Please someone help me. I have no insurance and don't know what to do. I can't take it much longer. I am at my wits end.

jewishmother
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 3/17/2012 11:04 PM (GMT -6)   
I am so sorry that you are having such trouble. I understand how frightening aura symptoms like dizziness and visual distortions can be. To answer your question - yes migraines can occur without pain - pain is just one symptom of a migraine and not everyone experiences pain with a migraine. Certainly what you are experiencing now could be a migraine but usually when someone experiences a change in symptoms then it is time to check in with a doc and make sure that there is not something else going on. I know without insurance this can be a difficult step to take. Do you have a family doc that you can go see and talk this out with him or her?

Also, you said that you get disoriented in stores.......a lot of migraine sufferers have the same issue due to the harsh fluorescent lighting. Sometimes it helps to wear sunglasses to cut down on the impact of the lights.

Finding out what our triggers are can help cut down on the frequency and intensity of the migraines. Have you had any recent changes in your eating/sleeping habits or your daily routine? Migraines can be very frustrating and debilitating and a good support system is essential. Message boards like this one are very valuable as are friends and relatives who understand what we are going through. Please stay in touch and let us know how you are doing. Leslie

outdoorzgirl
New Member


Date Joined Mar 2012
Total Posts : 2
   Posted 3/18/2012 5:50 PM (GMT -6)   
Thank you so much for your kind and considerate reply. I definitely feel trapped without insurance and as we all know neurologists are terribly expensive. I know my family physician would just refer me to a neurologist. I am going to look into getting some sort of insurance this week. Something to at least get me in the door. I have not had a bout of migraines this extreme for years, so hopefully I can be treated for migraines whenever my insurance kicks in. If I can find one that I can afford :(

I actually bought a pair of dark sunglasses today and that did help me some outside. Walking or moving makes the dizziness worse. If I can find suitable lighting and just sit still and focus on something, it is not as bad. This is torture for me because I am usually a very outgoing, outdoorsy type person hence my nickname.

The only thing that I can think of that has been different for me was that I suffered a miscarriage and shortly after I started experiencing this hell which has consumed my life. I am wondering if my hormones did not trigger this episode. I have been experiencing patches of numbness on my scalp and it almost feels like fingers tickling from under the skin. I guess tingling would be a good word. Rubber band feeling around one ankle. A sick feeling in my head..not really migraine caliber pain..just a sickly feeling. Hard to describe. Thanks for listening. I just hope and pray each day that I wake up that I will feel normal again.

My Lovely
Regular Member


Date Joined Feb 2012
Total Posts : 54
   Posted 3/19/2012 2:07 PM (GMT -6)   
outdoorzgirl: I know what you mean, i really do, i also have the aura/vertigo/visual disturbance, many names for it, Ive had everyday it for a year now and its just awful isnt it :-(.

I suffer from chronic daily migraine with visual disturbance, i get the visual thing everyday and migrianes constantly, and i also cant go in shops because of the lighting, i cant work or drive due to my head pain and vision. Its so disortintating isnt it? I dont know if your the same but i cant go for a walk or anything on my own as i feel so dizzy. The computter is sooooooooooo bad for my eyes, but silly me sits here on this site. I struggle reading etc. I too wear sun glasses as much as possible when im out. I also struggle to travel in a car as it makes me feel so disorintated.

I dont know what meds you have tried, but the only tablets that helped ease my vision was verapamil, it didnt get rid of it, but it helped.

Good luck to you. :-)
My lovely - Chronic Daily Migraine with Visual Disturbance/Vertigo
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