Hi everyone and thank you for taking the time to read and, hopefully, respond to this post.
I am a 26 year-old female who has had the great misfortune of experiencing a hemiplegic migraine.
I suffer from silent migraines daily, and have seen a neurologist about it but those I can deal with. What frightens me are the stroke-like symptoms with the HM.
With a normal migraine I will first experience the blind spot-where if you look at someone in the face, their nose and mouth disappears? Then I get the zig-zag lines and after those fade away, the pain strikes. Then it's usually nap time and after I wake up, I feel a little sore but for the most part, I'm back to normal.
The first time I had a HM was when I was 18. I noticed my hand felt hot and numb and I couldn't feel my ring or pinky fingers. about 15 minutes later I had difficulty with speech. This was terrifying, I had no idea what was wrong. The people I was with chalked it up to low blood sugar, but I felt so sick I couldn't eat and for days after that I couldn't calm down. I was thoroughly shaken. Finally I was seen by a doctor and then to a neurologist who told me what they where.
8 years pass and I hadn't had one since until a couple weeks ago. The migraine started out like any other, blind spot- zigzag- pain hit but the zig-zag came back and I remember telling my husband this was like a double migraine. After that my hand and nose and teeth started feeling numb and then I lost all feeling in my arm and hand. I couldn't feel texture with my hand, I couldn't feel the pinch and I panicked. The worst part of it was when I suddenly couldn't speak. It was as if my tongue locked up and, knowing the warning signs of a stroke, I stuck my tongue out for my husband and he immediately said, "Alright, let's go to the hospital." I couldn't get it to go straight. My tongue kept veering off to the side. It lasted for only a couple of minutes before it went back to normal but I don't know if that's because of the surge of adrenaline I had or if it was from the migraine, or if it really was a mini stroke. :s
I guess my first question is, has anyone else ever had that problem with an HM before? Having their tongue lock up and ever have it shoot off to the side? Everyone tells me that if it were a stroke then the symptoms would have lasted a lot longer than a couple of minutes, but I can't stop worrying. The ER doctors asked me if I knew where I was and I couldn't find the words to respond. I wasn't able to tell them what day it was or when my own birthday was. It has left me terrified that at any moment it's going to come back.
In the end they told me it was just a panic attack and they discharged me, giving me some ativan, since i do have a history of severe anxiety and I will say it does help. Maybe not with the migraines but it's keeping me sane long enough to try and reach out.
If someone could tell me if they have had the same symptoms, especially with the tongue, maybe it would give me some comfort.
Also, does anyone else feel weak at a certain time of the day? Since the migraine I wake up feeling good but half way through my day I suddenly feel weak, extremely tired, sick to my stomach and it feels like it takes more effort to breathe in. I was wondering if this could be because of hypoglycemia and/or low iron in the blood?
I've scheduled an appointment to see a doctor, but without insurance I wont be seen until May 16th, so I am trying to be proactive and find help in the meantime.
Anything would help- also! Before I forget, I was put on topamax when I was first diagnosed, but it caused my feet to hurt really bad. They would be sitting there, comfortable as can be, and I would get a sudden painful pins and needles sensation in them, when they had perfectly adequate blood-flow. Has anyone else ever experienced something like that while on this medication? And is there any other kind of meds or preventative measures they could recommend for anxiety and HM?
Sorry for the book, I've had a lot on my mind. I await eagerly for your response, thank you all again very much!
Please take care and best health to you all!