headache question

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

nana68
Regular Member


Date Joined Mar 2011
Total Posts : 474
   Posted 3/21/2012 7:06 PM (GMT -7)   
what causes headaches when laying down and then disappearing when sitting up. I had this problem last night and some times in the past. I have had the aura before without the actual headache but it seems the headaches are coming more. Had mri done and they found a single lesion on the frontal lobe.I just had a lumbar puncture done and don't know the results yet.

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 3/29/2012 12:53 AM (GMT -7)   
Prob certain pressure on a nerve. Lesions , um I'd be tested for MS then... and migraines are norm for people with MS, I have a friend with MS

Ask doc for a rheumy refferal so you can be tested for auto immune diseases such as MS, Wegeners, Wagners, Lupus, Arthritis, Diabetes, Chrons.

Oh sorry mods, I got a friend with MS, I have Wegeners, Diabetes, been tested for everything on the moon.
This is based on my personal experience, not medical trainign
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

nana68
Regular Member


Date Joined Mar 2011
Total Posts : 474
   Posted 3/29/2012 5:15 AM (GMT -7)   
I have been tested for lupus,wegener's,sarcoidosis and everything under the sun for autoimmune disease and it all comes up negative except one thing a high total complement but the other ones are negative,negative rna and dna and immuno assays,negative anti ro,ana,anca,p anca etc...
treacheal stenosis,fibromyalgia,panic disorder,ptsd and who knows what else

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 4/4/2012 10:59 PM (GMT -7)   
Nana, sometimes there is false negetives, and false positives. its how our bodies read. My blood work showed no wegener's BUT the doctor swears up and down I have it, and my symptoms match. Why don't you do some good ole research on auto immune diseases? If you want, I'd be glad to help.

You can email me at whatdidusay at g ma i l DOT com
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

nana68
Regular Member


Date Joined Mar 2011
Total Posts : 474
   Posted 4/5/2012 5:24 AM (GMT -7)   
The problem is in my case its difficult because all my symptoms could be left over from accute respiratory distress syndrome,in 2010 I had respiratory failure and was paralyzed from system shut down and paralytic drugs for medical coma. I did get some news of my lumbar puncture they saw 2 o bands,maybe ms maybe not...just indicates central nervous system inflamation.Follow up mri's in six months to check for new lesions.
treacheal stenosis,fibromyalgia,panic disorder,ptsd and who knows what else

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 4/6/2012 6:51 PM (GMT -7)   
the number of white cells in cerebrospinal fluid of people with multiple sclerosis is usually up to seven times higher than normal. find out what your number was and what normal range is.
Most common auto immune diseases with o bands are Thyroid disease, Lupus, Rheumatoid Arthritis, Psoriasis, MS, and many many others. I personally would get a new rheumy. Teaching hospitals are great in my opinion as they have the lastest art and technology and training. My rheumy, endo, oncologist and ocular surgeons are all at a teaching hospital. Anyhow my surgeon is really cute hehe. I've had acute respiratory distress when I was put under. I was better within about 6 months. Being two years, I sure would check that out hon. by law you can have second medical opions as often as you wish.
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

nana68
Regular Member


Date Joined Mar 2011
Total Posts : 474
   Posted 4/6/2012 7:53 PM (GMT -7)   
I know others that had ards and were better too.were you completely paralzed. I think that they goofed I've done alot of research I was intubated and they used midlozam and it increases cranial pressure in intubated patients. Plus I was given other benzopienes and that increases the sedations and can cause aggressiveness when weaning from ventilator which is what was happening so I was kept being put out.I had normal white cells in csf fluid.
treacheal stenosis,fibromyalgia,panic disorder,ptsd and who knows what else

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 4/9/2012 8:35 AM (GMT -7)   
I was under anesthesia when I had it happen. I remember asking the doc that put me under, why, well I mouthed it. He knew what I was asking. I always get the same doc to put me under. I know he won't incubate me if it isnt needed and tries concious sedation first. They did all the stuff to me when I was still out cold. I fully woke in ICU. I was so so weak, I couldn't even get to the bathroom for the first few days. They were going to discharge me like that, where my resting pulse was 175. I told the nurse "over my dead body. I want a second medical opinion. If I don't get it, I will march right back to the er and get re addmitted. take your pick" the nurse said she would do the same, got me a new doctor. That afternoon I was on heart pills and blood pressure pills. Over night I did a 180 degree for better and actually had the strength to sit up and walk to the bathroom and they even managed to get me in those chairs. I put up a fight when they wanted to discharge me the second time, they wouldn't tell me my BPM (heart rate) and I wanted to make sure it was safe for me to go home. They actually said they were going to get police to remove me. And I simply looked at the head nurse and say "you would get the police to discharge me when all i want to do is make sure i am medically safe to go home?" she goes "what do you mean medically safe" I told her "all I want to know is what my vitals are before I go home. I want know what my bpm is" she said "did you tell the nurses this?" I said "yes, and I pushed and pushed to know. then you came in and started threatening police when I just want to know if it really is safe for me" she apologized and looked up my heart rate. My heart rate with my new meds was down to 80, which is a great number to have. I told her "now I know I medically safe with a great bpm I more than happy to leave." I heard the nurse getting chewed out and told "next time use your ears and listen" when I left. I was so tired and weak for about 6 months. And if I didn't take my heart pills, my heart would race. I still haven't got off the heart pills, but I'm to an as needed point now.
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, February 19, 2018 1:10 AM (GMT -7)
There are a total of 2,930,772 posts in 321,563 threads.
View Active Threads


Who's Online
This forum has 160301 registered members. Please welcome our newest member, Bizzarbra.
258 Guest(s), 5 Registered Member(s) are currently online.  Details
lymebattle_, Gemlin, bikerdude66, garyi, testuser1234