Posted 3/28/2012 8:02 PM (GMT -7)
Hi - I am relatively new to migraines. I've had what I used to call "normal" migraines - a little nausea, light sensitivity, pain above my eyes - take an IB profin - go to bed - wake up perfectly normal. And this would only happen about twice a year. It was so mild, I never considered myself to be a migraine sufferer.
But 10 weeks ago, my life came to a complete hault. I had some vertigo in the grocery store. Didn't think too much of it. Then two days later the vertigo came back and hasn't left since. Then a few days later a pain began over my left eye. Several days later light sensitivity and it felt like my left eye was being pushed out. Within the next few weeks the symptoms became more bizarre and downright scary. Blinding pain, burning in my head, tingling and numbness down my face and eyelids. Severe nausea - I've now lost 17lbs. Severe vertigo that landed me in bed for weeks on end. My doctor was at a loss.
After several ER visits, two teams of neurologists and over 130 tests done, including a CT scan and a CT angiogram the diagnosis is status migrainosus - a migraine that lasts more than 72hours. Once we finally had a diagnosis (3 weeks ago) I stayed overnight in the hospital while the neurologists tried to to break the migraine. I had two doses of DHE, IV magnesium, and an oral steroid, and I was sent home. The strong meds broke most of the pain, which now just seems to creep in from time to time. The tingling still comes and goes, the burning comes and goes and now I am dealing with muscle spasms to boot. (I am feeling pretty sure there's a magnesium or potasium deficiency now that there's muscle spasms too, and I have started a calcium/magnesium citrate supplement and eating foods with potasium). The nausea is mostly gone now so I am eating again. The vertigo is not as bad, although still there. So I am improving, but it's slow. I take amitriptyline at night for it now and am currently at 30mg/night, go up 10mg/week until the symptoms leave or reach 100mg/night - whichever comes first.
I think I'm slowly recovering but it is much slower than I would like or expect. I'm no longer completely bedridden. But everday life is hard. I can't drive because of the vertigo. I have lost wages. These symptoms suck and sometimes they scare me. Tonight was particularly bad - leading me to find this forum. My head felt so full - and then the pain started. I was home alone with my kids and was completely immobilized.
Has anyone ever had anything like this? Has anyone ever had status migrainosus? What helped? I'm new to this. I hate it. And I'm desperate for help. My life is on hold until I am functioning again.
Post Edited (HopeForHealing) : 3/28/2012 10:57:24 PM (GMT-6)