Topirimate/ Topomax

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Kaeleron4
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/2/2012 9:54 AM (GMT -6)   
I was wondering if anyone with recent experience taking Topamax for migraines would be willing to share? I have new Dr. who wants me to take this. I took it once before and was very moody but it did help with my migraines. Not sure with the recent death of my Mom I want to risk the depression I have been reading about. Any ideas?
Thanks for everyone's time and help!

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 4/3/2012 11:14 AM (GMT -6)   
Kaeleron4,
Hi, i was put on imitrex for migraines (this was last yr), then my Family Dr. said i was needing it 2 frequent which meant it wasn't a strong enough medication. So he then put me on Topamax. This medication did nothing for me at all. Migraines continued. Then in January my Psych Dr. put me back on Topamax. It did absoutely nothing for me even the 2nd time around using it. So, unfortunately i don't have any good news 2 say about it. However, i don't have anything bad either (i didn't have any side-effects at all), so perhaps it will work for U. Because i have heard that it does work well for some people.
 
Good Luck & keep us posted...
Ur Healingwell Friend,
Serenitee

pc12pvf
New Member


Date Joined Apr 2012
Total Posts : 5
   Posted 4/4/2012 12:34 AM (GMT -6)   
To ALL,

I'm a migraine sufferer too, I've been the lab rat, I've bought the drugs, they didn't help, I've had my sanity questioned, I've been subjected to the frustrating diagnosis of, "I have no idea whats wrong with you, therefore you must either be at fault or crazy, maybe both." Sound familiar?

I got frustrated, when I get frustrated I take the problem apart, piece by piece. I develop non drug cures for human pain caused by the interface of a piece of hardware in aero space and military applications. I've been doing this for 35 years, I hold 23 patents, 42 more pending, I've designed 700+ devices. I'm not a doctor. I'm an "old guy", 62. I have a new device that has helped everyone who has used it, so far, 30 people. The following is a typical response. Julia is one of my staff accountants.

Hi Mike,

I had a migraine headache last Thursday and took home a "PVF" helmet that Dan let me try.

My migraines give me speckled vision, pinching head pains and make me nauseous. I don't get them often, mostly when I'm under a lot of stress, but when I do get them its hard to function. So I had to leave work early and I went straight home put the helmet on and went to bed. An hour later woke up with no headache, vision was clear and no more nausea. Amazing! Thank you!

Julia

Is anyone interested in experimenting on themselves with a device that has no known side affects, (the technology has been used in military flight helmets in excess of 20 million flight hours) it either helps or it doesn't, no risk either way. I spent my time and money (lots of both) on this to fix my own problem, now I'd like to help.

Mike

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 4/4/2012 11:54 PM (GMT -6)   
Mods please look at the above post.

Kae,

I was in a double blind trial study when topamax first came out. I went from 18 to 22 migraines a month to 3 or 4 a month. No side effects either. I've stayed on it. Now I know a lot of my triggers, and tend to only get them every few months. Its worth the idea to try it.
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 4/9/2012 9:35 PM (GMT -6)   
i'm sorry 2 my fellow migraine sufferers. For me Topomax absolutely does nothing for me, but i'm really happy for those of u that it works for. As of last week i finally saw a Neurologist. i have had appointments every month & in a couple of those months 2-appt.'s in a one month. Nevertheless, i canceled each one since last October...i know shame on me...Lol
So after i finally saw him he gave me a couple different samples 2 try (Maxalt, Relpax, & Cambia), Maxalt worked somewhat ok, then i had a massive migraine the following nite after trying the Maxalt, & i tried the Relpax. It took away the excruciating pain (nausea, couldn't handle the lights on, loud kids, etc), so i called the next day for a full prescription & they called it in immediately. But when i went into pick it up they only come in a 6-pack & even after insurance they were $43...that sucked...Lol   i didn't try the Cambria cuz the side affects were all intestinal stomach issues & with having my ileostomy i didn't want 2 even try it.
He then ordered regular x-rays on my neck cuz i absolutely cannot move it @ all & i mean @ all. i got the results 2-day & i have intensive arthritis. But he believes there is something else wrong along with that, so their scheduling me for a brain & neck MRI. i'm a little worried cuz i had a very large tumor removed years ago, & it has grown back a large size. So my prayers R hoping that portion is really ok.
 i've been on Flexeril for almost 2-yrs which does nothing for the pain. So, he gave me Baclofen 2 try. Its working barely for about 2-hrs out of the day :(
OMG, i had thought i had posted a New Post...i am so genuinely sorry.
Serenity

Tienkerbelle
New Member


Date Joined Mar 2012
Total Posts : 6
   Posted 4/9/2012 11:15 PM (GMT -6)   
Hi Kaeleron4

I revently took tried Topamax......did not work with me at all. I have at least 12 - 20 migraines a month, and I have tried almost everything!! I am currently on Arcocxia and it seems to work.

I realy felt like a zombie with low bloodpressure on Topamax!! But try it, not everyone has the same response on the meds! I have heard from various people theat it realy works!!!!

Good luck!

Karin

Soft9713
New Member


Date Joined Mar 2012
Total Posts : 2
   Posted 4/10/2012 11:20 AM (GMT -6)   
Hi,

I'm new to this site. But I've was just diagnosed with migraines in Feb 2012. My neuro swears by topomax but after trying 50 mg in the morning and 100 mg at night, I began having very bad thoughts. I became very depressed, confused, memory loss and thoughts of giving up.

I made an emergency appt. and told him topamax is not for me.
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