Posted 6/12/2012 10:50 AM (GMT -6)
I'm new to this site and it hurts me that so many people are in pain daily like me:( I had a benign tumor removed from my skull six years ago. What a six years it has been.. The dr put in a titanium mesh and four screws, and until two years ago I would feel something like pulling lose when I washed my hair or dried it with a towel. When I felt that it would hurt and I would get a headache. I also had a headache everyday that would trigger migraines two to three times a week. I couldnt get a Dr to believe me! So I went to dr after dr, when I did one would put me on meds the other would take me off saying I was suffering rebound pain... I had a surgeon at Vandy put in a neurostimulator, surgery one was putting in a temporary one to see if it would work. The temp worked well, then he put in a permanent one and it did not. It wouldn't stay in place, and it hurt, it was bigger than the temp. Anyway we had to remove it, so I have a big scar on my chest where the battery pack went and a big scar on the back of my neck where the rod went.. After that about a year later I went to a accupuncturist, just another idea someone had, and he was feeling around on my head and he pulled back and said what is that clicking in your head. I told him its been doing it since 2006 and for some reason no one else can feel it.. He said that needs to come out! I told him I'd had X-rays, MRI's, etc. and it doesn't show anything, he said well its there..
So I went back to the surgeon at Vandy, he said I don't see anything wrong with the plate. He said I can go in and take the plate out and put bone cemement in. So I had surgery again and when the surgeon woke me up he was so excited.. He said"you were right the mesh was curled up on the edge and was poking the occipital nerve!" he said" I'm sorry.. I will never not listen to a patient again" I wish I could say that fixed everything but the damage was done... I have headaches everyday, my eyesight changes, my pupil stays dilated on the right side. I feel like I have a icecream brain freeze one the right side behind my eye. I have migraines four to five times a week. I have no life at all. I take pain meds alot and every six months I have the nerve burnt on my C3 burnt. Once a month I get an injection in my head, which would all be ok if I got some relief, or one day free of pain! I do still work, but have to miss quite a bit. And I do spend days at a time in bed, matter of fact today is my third day this week! Ok.. Has anyone had the nerve decompression? And did it work for you?