hormonial migraines

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autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 4/29/2012 11:14 PM (GMT -6)   
hi guys.i would like to get some ideas on behalf of my twin sister who is extremely sick with chronic migraines.she is trying to look after a very active 2 year old boy and she has a 16 year old daughter to run around.when she gets her period,her migraines blow up so badly she is in tears 24/7.she gets these severe migraines one week before her period,during her period and one week after.she has seen 2 neurologists in the past and tried so many drugs.

my sister is bed bound all the time which makes it hard for her to look after her family.no pain killers help her and the injections do nothing.she is 43 years old.she is under a lot of stress due to her hypo toddler and i believe she suffers bad tension headaches everday as well as migraines.i went through all of this myself for years before i had a hystorectomy which stopped the hormonial migraines in their tracts.

no specialist will even consider this option for her and she is on a long waiting list to see a gynocologist at the public hospital which is free.she is stopping her periods by taking the pill so she only has it every 4 months but it is not helping.i can't stand seeing her suffer so much because i know exactly what she is going through.

i still suffer chronic headaches everyday but i don't get migraines as much as i once did.i need some advice desperately.please help if you have any ideas.thanks. mad

Flyakite
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/2/2012 10:29 AM (GMT -6)   
She sounds like me. I got terrible flat-on-my-back migraines out of the blue when I entered pre-menapause in 2006. I never suffered from headaches before.
 
Get the book http://www.amazon.com/Menstrual-Migraine-Oxford-American-Library/dp/0195368053 because it will give you insight to how hormone fluctuations really affect certain people. It pointed me in the right direction.
 
I'm also taking Topamax. The first time was a terrible experience, but I was taking too high a dose too fast. This time is slower and no side effects.
 
Good luck. And a big hug to you and to your sister. Hang in there.
-Andrea

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 5/2/2012 6:53 PM (GMT -6)   
thanks flyakite.what gets me is that there must be a lot of women out there in this position so i don't understand why gynocologists are not prepared to to hystorectomys.i will check out that book you mentioned.i think she is too young to be going through pre-menopause.i looked into this recently because i thought i might be going through it but i am not and my sister and i are the same age.
thanks again for your input.have a nice day. tongue

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/3/2012 12:38 AM (GMT -6)   
Have her right down everything and I mean everything she eats or drinks anything she puts in her mouth, what time, when the migraine started and what it is like. It could be a daily factor, not only hormonal. She should see a neurologist too
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 5/3/2012 10:30 PM (GMT -6)   
hi smurfyshadow.thanks for your advice.my sister has already been writing down her foods and drink intakes in the past but she did not find anything to set her off with her migraines.my sister has seen 2 neurologists and none can help her.that is like me seeing 4 neurologists and none can help me with my chronic migraines and headaches.

her migraines never stop so there is never a starting point.i strongly believe her stress levels are too high looking after her very naughty toddler son.this on top of her hormonial problems is causing these nasty migraines.wish i could help her.thanks again and take care. rolleyes

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16447
   Posted 5/9/2012 10:29 PM (GMT -6)   
This may not be helpful but I too deal with hormonal migraines. I thought I had it all figured out when I started pristiq antidepressant for migraines. After months on pristiq, I hadn't had a migraine. now, as I type this, I have one and I am still taking pristiq. When I started pristiq, it was around the same time I changed to a progestin only birth control pill called cerazette. Now I am wondering which helped more? The pill I was on or the antidepressant. I have switched back to normal pills due to acne but I am still on the antidepressant and since changing birth control, this is my third migraine, maybe forth. I just used a zomig, maybe this is an option for her. One thing that always seems to help me is postel but unfortunately I can't take NSAIDs often due to my uc. It isworth trying if she can take NSAIDs. I ope you find a solution. I'd say first try the NSAID like posted, them zomig or frova, otherwise, perhaps something like cerazette would help or an antidepressant. It takes a lot of trial and error to get these migraines under control.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (2800mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 5/9/2012 11:16 PM (GMT -6)   
hi notsosicklygirl.thanks for your advice about the hormonial migraines.i am sorry to hear that you had to go through having these awful migraines each month.in my sisters case and in my case years ago,the migraines never stopped.it is everyday and night,week in and week out,year in and year out.it does reduce the quality of life a lot.i am so glad you found something that helped you.funny enough,my sister has just been put on pristiq but she has only taken it for 3 weeks so far and of course no one can expect a drug to work wonders that quickly.i will mention what you said to her.as far as i am concerned,for people like myself and my sister who suffer chornic hormonial migraines,a hystorectomy is the only way they will stop.i am so grateful my hormonial migraines stopped when i had my hystorectomy 9 years ago.take care and good luck.
chronic migraine and headache sufferer for 25 years.
chronic bladder pain for 3 years.
diagnosed recently with intercystitis cystitis -ic
ibs
sinus face pain
upper stomach pain through to back

pool girl
New Member


Date Joined May 2012
Total Posts : 2
   Posted 5/10/2012 2:11 PM (GMT -6)   
cool  Autumn
i know the drill.
used to be curled up in a ball in a dark space for days trying to escape the pain.
no doctor every believed me and my gyn doc said it's just part of being a woman and that i just have to suffer!  can you belive that!
i have had my fair share of a battery of drugs that have some not so nice side effects.
until i got a reccomendation to FROVA.  this is $$$ but it works.
good luck!

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 5/10/2012 7:50 PM (GMT -6)   
hi poor girl.sorry to hear you have suffered so badly with the hormonial migraines.i would put the pain on the same level as having a baby.it is really bad.i am glad that you have found something to help you along.i will mention this drug you are taking to my sister and see how it goes.take care and look after yourself. turn

pool girl
New Member


Date Joined May 2012
Total Posts : 2
   Posted 5/11/2012 10:56 AM (GMT -6)   
yeah  hi Autumn
let me know how it all works out.  i know not every drug is as effective for all.
i honestly know that this drug has made me gain back my life. again, it's really $$$$ so be prepared.  good luck!

Silver1516
New Member


Date Joined May 2012
Total Posts : 5
   Posted 5/11/2012 7:54 PM (GMT -6)   
Hi, I to used to suffer from hormonal migraines but it would only last 3 days. When I got a sever pain in the side of my head I knew it was going to be for the next 3 days. I also took topamax and it worked ok for several years except on those migraines. The only thing I can take that helps is tramadol I think I spelt that right. I am just to tired to get up and go see! Now I take inderal for my migraines 20mg twice a day and that has helped better than anything I have ever been on (except for those bad ones). Also Imetrex does not help those. I have gone through menopause but still get them on occasion.
I am so sorry your sister has to deal with this while trying to raise children. It is hard enough with just a dog that needs to go out. Our children are grown but were 10 and 15 when mine started so that helped allot.

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 5/12/2012 6:31 AM (GMT -6)   
thanks everyone.i will let you know poor girl how my sister goes in the future.hi silver1516.i have not heard of many people who have actually suffered these terrible hormonial migraines.it makes me wonder if people who are prone to headaches,seem to get these sort of ones.be careful of tremadol.

i took it for years and years and it took me a full year to get off the stuff and i went through hell.the last three months were terrible daily migraines,skin crawling sensation,no sleep,restless body,basically it was awful.i took tremadol to try and get off my codeine addiction.at least you found something that helped you a little bit and now you don't get those nasty hormonial migraines with your period.

i was hoping when i went through menopause,that my chronic headaches and migraines would ease a fraction.who knows.take care poor girl and silver1516.thanks for everything. turn

Silver1516
New Member


Date Joined May 2012
Total Posts : 5
   Posted 5/12/2012 10:49 AM (GMT -6)   
Thanks for the heads up on the tramadol. I don't take it on a regular basis just occasionally so maybe I won't have any problem! Good luck to both you and your sister. :)

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 5/12/2012 8:09 PM (GMT -6)   
thanks silver1516.hope things go well with you too.take care.chat soon. turn
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