Posted 5/14/2012 5:17 PM (GMT -6)
I have suffered with these for about 12 years. The 1st thing is that with Hemi migraines you should NOT be using any Triptans, they are vascular constrictors and can kill you. Before they figured out what type of migraines I had they gave me Imitrex and it almost killed me. With Hemi migraines the blood vessels constrict on there own (normal migraine the vessels open to far) and the Triptans make it worse......
I have been to many doctors, Cleveland Clinic, U of M and ALL of them made me promise to never take a Triptan again!
Hemi Migraine are one of the rarest forms of migraines, I spent years taking all kinds of preventative medication, around 35 different ones with no relief, had the nerves in my neck desensitized, had nerve blocks every 6 weeks, every type of pain pill with no help. I went back to my family doctor who I trust and was very open with him and told him I was ready to kill myself. He gave me the Fentanyl patch 10 years ago and it saved my life!!!!!!!!!!!!
The fentanyl patch helps me on most days and when it does not I take a Lortab or two, when my tongue starts to go numb and I start loosing feeling in my face and left arm I head to the doctor right away and they give me a 150cc shot of demerol and 75 of vistrail and I go home and sleep for about 4-6hrs, normally this will take the pain away but I am left to deal with the side effects of the Hemi, Slow or no speech, left side of my body is very weak and I feel like I am dragging it around, feel like the world is moving 110mph and I can not stop it, this normally last for 2-3 days before it gets better.
I hope this is good information for you and your boyfriend. These types of migraines are so debilitating and are far worse than a typical migraine because not many doctors have studied them or understand them.
This is classic Hemi
"He gets dizzy, unable to speak, his legs get weak, tingling mainly in his left leg, arm and hand; he also trouble using his hands, he has nausea, vomiting, light headedness, blurry vision, and he feels disconnected with reality when he gets the migraines."
I feel for you also just like my wife, you feel lost and unable to help him! I don't know how my wife has done it over the years but believe me he NEEDS you more than he will admit! PLEASE hang in there and just try to make him as comfortable as possible and re-assure him that it is not in his "head" as some doctors will try and tell him because they don't understand this type of migraine.