My boyfriend has Hemiplegic Migraine (FHM). He started getting them when he was 14 and he is now 36. The doctors never could find out what was wrong with him. They kept saying it was from stress or anxiety and sent him to all kinds of therapists and when all his tests and results from therapy came back clean the doctors told him that it was all in his head. He finally found a doctor that diagnoised him with Hemiplegic Migraines. He has been seeing Dr. M for almost a year now BUT he is still having a lot of trouble with his migraines.
He has been Verapamil, Amitriptyline, Zonisamide, and Topamax. He is currently taking Verapamil, Topamax, and Zonisamide. Dr. M has tried imitrex and all the triptans there is for pain but they don't help him at all. Dr. M does not have him on any pain medicine because he said that there is not any medicine he can give him that are for the symptoms he has because he has so many. He only has Aleve or Advil for pain but those don't even help him.
He gets dizzy, unable to speak, his legs get weak, tingling mainly in his left leg, arm and hand; he also trouble using his hands, he has nausea, vomiting, light headedness, blurry vision, and he feels disconnected with reality when he gets the migraines.
I hate seeing him in so much pain all the time. I've never been with anyone with these headaches and I don't know what to do to help him properly. I try to help him monitor his food that he eats because the information I found online said that food is a big trigger for these types of migraines. But, we still don't know which foods cause the headaches. We keep a food journal (anything he eats, when he exercises, stress level of the day, and weather is written down). We also have a headache journal that we write in when he gets headaches and what his symptoms are before, during, and after. Chocolate, caffeine, and sweeteners like NutraSweet are the only things we have decided is for sure giving him headaches.
Does anyone have any advice for us? I read that the triptans have worse side effects in the long run. If this is true, what are they? What foods should we avoid? Are there any medicines that will help him with the pain?
Thanks for any suggestions!
Post Edited (N&C) : 5/10/2012 5:32:41 PM (GMT-6)