I have not seen many posts for people like me. I have silent migraines. They are episodic attacks which occur if I get poor sleep (due to joint pain from some joint issues), weather, virus, or out of the blue.
The episodes cause a blend of various symptoms: cold sweats, nystagmus (eye movement), dizziness, drop in body temperature, muscle rigidity, tremors, aphasia (garbled speech), confusion, memory loss, muscle weakness, racing heartbeat, heavy breathing, numbness, painful shocking sensations in extremities, odd smells, and bad tastes. The episodes are followed by an overwhelming need to sleep. If I try to get active too quickly afterward, it will instigate another episode beginning the cycle again.
Sometimes migraine headaches occur afterward, but they are fewer and less intense since beginning Topomax. I did need medical attention for one headache but it was during a virus induced episode.
Before beginning a preventative I was having up to three of these episodes per day. This caused me to go on short term disability from my job as a special ed teacher. I am now having them about every two weeks. Unfortunately I still miss so much school, I am considering substitute teaching next year even though I continue to love what I do.
I get the impression there aren't as many of us silent migraine sufferers out there, but I know you are there. And I'm quite tired of feeling alone and crazy, even though I have the best friend ever and a supportive husband.
I wonder how many of you have slid along a hallway trying to get somewhere for help before you loose functioning. How many of you have had people who respect you see you drool as your body shakes uncontrollably? Or have heard you speak nonsense? How many of you have had your life completely changed by the effects of your brain?
This isn't where I planned to be at 36. At first I just thought this was an anomaly that would resolve. Now I'm realizing this might just be as resolved as it gets. I want to be positive but realistic.
Give me some stories. Maybe we can find some solutions together.