Silent migraines

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Hrtnsol
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/10/2012 7:40 PM (GMT -6)   
I have not seen many posts for people like me. I have silent migraines. They are episodic attacks which occur if I get poor sleep (due to joint pain from some joint issues), weather, virus, or out of the blue.

The episodes cause a blend of various symptoms: cold sweats, nystagmus (eye movement), dizziness, drop in body temperature, muscle rigidity, tremors, aphasia (garbled speech), confusion, memory loss, muscle weakness, racing heartbeat, heavy breathing, numbness, painful shocking sensations in extremities, odd smells, and bad tastes. The episodes are followed by an overwhelming need to sleep. If I try to get active too quickly afterward, it will instigate another episode beginning the cycle again.

Sometimes migraine headaches occur afterward, but they are fewer and less intense since beginning Topomax. I did need medical attention for one headache but it was during a virus induced episode.

Before beginning a preventative I was having up to three of these episodes per day. This caused me to go on short term disability from my job as a special ed teacher. I am now having them about every two weeks. Unfortunately I still miss so much school, I am considering substitute teaching next year even though I continue to love what I do.

I get the impression there aren't as many of us silent migraine sufferers out there, but I know you are there. And I'm quite tired of feeling alone and crazy, even though I have the best friend ever and a supportive husband.

I wonder how many of you have slid along a hallway trying to get somewhere for help before you loose functioning. How many of you have had people who respect you see you drool as your body shakes uncontrollably? Or have heard you speak nonsense? How many of you have had your life completely changed by the effects of your brain?

This isn't where I planned to be at 36. At first I just thought this was an anomaly that would resolve. Now I'm realizing this might just be as resolved as it gets. I want to be positive but realistic.

Give me some stories. Maybe we can find some solutions together.

jewishmother
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 5/10/2012 11:22 PM (GMT -6)   
It is late and been a very long day but wanted to just let you know that I have what are called basilar migraines........I have confusion, slowed speech, numbness, and a slow fade out to unconsciousness. I also do shake sometimes - feels like electrical shocks coursing through my body...............I can write more tomorrow but just wanted to let you know that you are not alone.........Leslie

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 5/12/2012 7:13 PM (GMT -6)   
i have never heard of that migraine that you explained on your post.it sounds really awful.at least you are doing the right thing and using preventives.it is great you have a very supportive partner.that always helps.i hope you get better with time.you are too young to be dealing with all of this.take care and good luck. turn

David Daley
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/14/2012 12:52 PM (GMT -6)   
i also get silent migraines . it started with ringing in ear last july . thats all it was for 3 months then one time my ears popped and i got dizzy then it started doing it a lot every other day i was getty dizzy and would have to lay down for anywhere from two hours to two days. after going to jeff they that that i had menieres diease .after running tests they said i did not have it but it was a migraine .they put me on a drug called zonisamide witch helped a lot. but this is really tied into food there our a boat 20 kinds of food that will start my ear ringing.pizza and bread our 2 of my worst.you have to watch every thing you eat write it down it is the only way to help your self

deanna1982
New Member


Date Joined Jun 2012
Total Posts : 5
   Posted 6/11/2012 10:05 AM (GMT -6)   
I also suffer from silent migraines. Although each one is a bit different I often suffer from numbness, loss of balance and difficulty walking. about 50% of the time I have difficulty speaking, the words are in my head, but I stutter as I try to get them out. My migraines come in waves of intensity and the most intense are quite freighting. I used to get about 2 a month, but since having my second child with little sleep I find I'm getting 2-3 daily every day. I'm considering stopping breastfeeding and taking medication, does anyone have any advice on this? Did meds work for you?

jampee
New Member


Date Joined Nov 2012
Total Posts : 1
   Posted 11/30/2012 4:55 PM (GMT -6)   
I think I am having silent migraines. Least I hope that is what I get diagnosed with when I see the neuro, because if it's not that, then I must be dying right?
I suffer classic migraines and what I am told as stomach migraines (I vomit every 10-15mins for 4-8 hours). I was told long time ago when I saw my opthamologist for ppossibly my 1st known episode, that the crazy vision problem I had, was in fact a silent migraine. Years later, I think it's happening again, however I rarely have any time in between where I feel normal or even just ok-ish. I must mention I also have an autoimmune disease, a rare type of vasculitis.
I'm having a pretty bad episode now, so I'm not going to go too much into detail at this moment, but was trying to find some research or understanding. I feel so dizzy and confused right now, let alone my mood swings and complete exhaustion. So confused, I hate it. I want to grab my brain and tell it to get it's crap together. It's making my life so difficult right now.
Speaking of grabbing your brain.....does it ever feel like that for you? Like someone or something has a grip on your brain, not your head, and is slowly putting pressure on it, not super painful, just pressure. I also get the feeling of my brain feeling like electric currents running through it, or bugs crawling inside....or that my brain feels stuffed with cotton candy. Yup. I totally sound like a crazy person. Haha. I totally feel like one too, specially with mood problems.
I have lots of physical and neuro problems along with it, but it's more the way brain seems half dead and half crazy that really get to me. I can suffer with pains and weird neuro stuff, I have for a long time, I don't like not having any control over how I think or feel r react. I can barely do my job most days now. My brain can't think.
HOpe you are all doing well. Will right more coherently when I feel better.

Nikcin3
Regular Member


Date Joined Jun 2012
Total Posts : 144
   Posted 12/1/2012 1:58 PM (GMT -6)   

I too have been told I am having atypical migraines. I get a confused feeling in my head and feel all of sudden sick to my stomach. I never actually get sick to my stomach. I get pressure on the right side of my head and my ear will feel like it is burning. I sometimes feel a headache, I feel tightness in my neck and right shoulder blade. I feel like Im going crazy when they are really bad or that I might pass out. I also feel numbness in the right side of my face at times and a off balance light headed feeling.

 


Ko2_Hunter
New Member


Date Joined Jan 2013
Total Posts : 1
   Posted 1/5/2013 4:50 AM (GMT -6)   
Well I am glad I have found this post. I thought I was slowly going crazy alone in the world.
I was beginning to blame the topiramate (400mg daily) as it has similar side effects (such as tingling and word loss).

Migraines have been plagueing my life for 8 years (it's scary when you tally up the years :(), since I was 18. I have been on 5 different long term medications and seen 4 different neurologists, all of whom have an alternative (often conflicting) opinion.

I have a combination of migraine pains as you have mentioned, Hrtnsol. I have pain almost daily, for which only a combination of 2000mg paracetomal and 1000mg iburbofen will relieve it. I am also on 5-10mg of Triptans if the situation is really bad.This is due to the doctors beleiving that the codiene I used to take caused rebound headaches. So I have had to stop the codiene to prove that it isn't the cause of the migraines so that they can rule it out as a cause and stop immediately blaming it as the root.

The problems I seem to have are a mild aphasia(mostly word loss, almost like stuttering), tremors, numbness in my feet, tingliness in my hands, confusion, memory loss, racing heartbeat, heavy breathing, odd smells, bad tastes, and the overwhelming need to sleep. The only problem is I am also coupled with insomnia, and so if the cause of the silent migraine is lack of sleep, I am stuck between a rock and a hard place.

lab01343
New Member


Date Joined Aug 2012
Total Posts : 18
   Posted 1/5/2013 10:53 AM (GMT -6)   
I also find that lack of sleep will trigger all types of migraines. There for a while in the summer I was completely unable to sleep. I would go 3-4 days straight out getting a minute of sleep, then crash for 12 hours to start the cycle over again. I took a paradoxical reaction to the medication that I was on for my migraines; they were suppose to have the side affect of making you drowsy, but it would be like I took 5 5 hour energy at one time - crazy wired. It took 3 attempts to find a sleep medication that I didn't take this type of reaction to, and moving my migraine meds to the morning. I still can't sleep on my own, and docs have told me the sleep is more important then any other concern (with the sleeping pills).

Since I have been getting better sleep cycles I have seen more control of the migraines. Sleeping pills helps me, just a thought, see if your docs will look into this as an aid for you. You will have to determine how comfortable you are with the addiction aspect, and how badly you need the sleep to determine if this is right for you.

cindyr38
New Member


Date Joined Mar 2013
Total Posts : 3
   Posted 5/2/2013 5:46 AM (GMT -6)   
I am not sure if this thought will help anyone. I have severe reactions to food. My body has sort of crashed in some way that with the help of an immunologist we are trying to figure out what is going on with me. Besides food I have progressed to having to wear a allergy mask when I am out in the world, grocery stores, peoples kitchens. I can not inhale the food dust or a reaction will occur. Starts with what I notice is a quick fall of energy. Sometimes subtle where I just think Boy!! I am tired or I think maybe I haven't had enough water today but then the first yawn will hit and then I know Crap! what have I been exposed to. From there I will just progress to such crushing fatique, my eyes will swell and like the first post. Her symptoms copied and pasted.
The episodes cause a blend of various symptoms: cold sweats, nystagmus (eye movement), dizziness, drop in body temperature, muscle rigidity, tremors, aphasia (garbled speech), confusion, memory loss, muscle weakness, racing heartbeat, heavy breathing, numbness, painful shocking sensations in extremities, odd smells, and bad tastes. The episodes are followed by an overwhelming need to sleep. If I try to get active too quickly afterward, it will instigate another episode beginning the cycle again.
I suffer all of these symptoms. My doctor was sure I had this unusual condition called food induced dienphalic seizures caused by a loss of calcium. I suffered from a parathyroid tumor that went undiagonised for a long time. I had that removed 3 years ago but all of this other weird stuff is going on. I had a 24 hour EEG done 2 weeks ago and I ate food I haven't had for two years to induced the worst reaction I could have. So through that test it is not seizures so we are going to investigate if it could be silent or painless migraines. So I guess what I am suggesting as simple as it may sound is maybe look at something you ate. An apple can put me down in a half hour. Iceburg lettuce and I do not get along at all. My food problems are so on the severe side. I am down to about 12 to 14 food and food groups maybe that I know I can tolerate. Maybe this is too simple and I am not sure if this advice can help, I control my possible migraines with avoiding my food triggers. Good luck Cindy
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