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Veteran Member

Date Joined Aug 2005
Total Posts : 617
   Posted 5/30/2012 9:27 AM (GMT -6)   
Hey Gang,
Haven't been around for a while since my migraines have pretty much been manageble or "status-quo" (2/3 a week or about 50% of the time) for the past couple of years, with no changes in medication.  I've been taking 400mg. of Zonegran and 10mg of Atenelol daily as a preventative(ha-ha), and using 300mg. of Seroquel  and 50mg of Hydroxizine as an abortive(basically just to sleep off the headache).  I've been having to get pain injection from my primary care physician/immediate care place, (with my specialist's knowledge), about once every week or two.  That injection is usually 15mg of Nubain and 50mg of Phenergan, which usually knocks out the migraine.  If I get one of the jerk DRs at the walk-in place that only goes with 10mg of Nubain, I sometimes have to get a second shot from my DR the next day.  
Granted, this may not sound exactly very controlled, but compared to the years when I had a headache every day of my life, and the several years I spent going to the ER practically on a weekly basis, this has been a fairly decent improvement.
Tomorrow, I'm scheduled to get the BOTOX INJECTIONS in my head from my neurology specialist at DUKE, and I'm wondering if anybody has had any experience with this treatment?  I've been told that it is supposed to be pretty successful in patients that are affected by migraines 50% or more of the time.  I've had to keep a daily journal for the past several months, and unfortunately, I qualify under that specification.  I'm actually more relieved about getting this treatment that I thought I would be, since I have encountered problems with the onset of the "GREAT NUBAIN SHORTAGE OF 2012".  It amazes me that in the 21st century, a basic mild narcotic pain medication (that is widely used for all sorts of conditions) can't be kept in stock in your standard doctor's office or walk-in clinic.  I'm so tired of having to call around to see who has Nubain in stock when I need an injection, I'm head over heals about the proposition of getting a neuro-toxin jabbed into points of my skull.  OK...that sounded a little testy, but to be perfectly honest, I'm cooking on a migraine I've had since last night, and since none of the walk-in clinics have any Nubain, I have to wait another six hours for my PCP to work me in for a shot at his office.  So yes, I'm a little cranky, and the thought of having poison injected into my skull tomorrow isn't thrilling with joy when I haven't really heard a whole lot of first hand success stories.  ANYBODY care to comment?
cool Leigh Ann 
•On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems
•Divorced, 46, spawn-free


Regular Member

Date Joined Jan 2011
Total Posts : 28
   Posted 5/31/2012 12:20 AM (GMT -6)   
I have no personal experience with this however I did have a run in with a nurse who shared with me her experience which I will share with you. I was having surgery for an unrelated condition. The nurse noted on my chart that I experience migraine and saw the medications that I was on. I had opted for a spinal block so I was quite bored in recovery so this nurse was chatting with me about my migraines and began to tell me about how she suffered from terrible migraines also. That was until she discovered botox. She told me she has to get injections every few months because they wear off, but the relief she gets is unbelievable. She said it is like she never experiences migraines after the botox injections. They really work for her. It is amazing she said!

I did ask my doctor if I could get the same treatments but a different treatment option was suggested to me. Good luck with the injections. My doctor told me that the botox injections were not as successful as one might hope they would be and not to bother with them. That is why she suggested the other treatment for me, which she believed to be more effective.

poet in pain
New Member

Date Joined May 2012
Total Posts : 1
   Posted 5/31/2012 10:15 AM (GMT -6)   
Hello, I am new to this forum, I have had chronic migraine with vertigo for a few years now, and am on disability.  My PC sent me to a wonderful doctor that specializes in pain, I have been having botox injections every three months now for about a year, and I can say that it does take away at least 25% of my headaches, which doesn't sound like a lot, but when you have at least half a month of nonstop migraine pain it is a lot. It also seems to decrease the pain level when you do experience a migraine.  I cannot tolerate triptans anymore due to heart arrythmias, and so I take Percocet and Xanaflex and a promethazine tab or suppository and go to bed, but when the meds kick in I can usually get out of bed and somewhat function.  The shots are not fun, I get 32 shots around my head, and usually the next day I suffer from a monster migraine that lasts a couple of days, but it all settles down and I have a few good days a month without migraine.  But I also have L-5 herniation, spinal arthritis, spinal bone spurs, all cervial vertebrae are herniated, chronic sciatica, fibromyalgia, endometriosis, retroperitoneal fibrosis, adhesions, hypothyroidism, also have nerve damage in right leg and right arm, so if it isn't a migraine, it is usually something else, like today full blown fibro flare.  But go with the botox and give it a try, it won't harm you, and you will look ten years younger!!

My Lovely
Regular Member

Date Joined Feb 2012
Total Posts : 54
   Posted 6/5/2012 9:44 AM (GMT -6)   
Hi there, i am also in same position as above, i sufer with chronic daily migaine with vertigo, have both all the time, everyday.

I have just had botox treatment, a month ago and i would say the same as above, they have eased my migraines slightly, only very slightly, but this to me is an immence amount to me. As suffering 2-3 migraines a day was my life. now the botox feels like it surpressed the migraine when im having one, instead of the full blown pain, it feels not as intence, more beareble. It still effects my daily life, but its made things a tad more easier to live with. Which is super to me.
My lovely - Chronic Daily Migraine with Visual Disturbance/Vertigo
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