My Story so far

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Date Joined Dec 2011
Total Posts : 3
   Posted 6/3/2012 2:30 PM (GMT -6)   
I am a 29 yr old female who has had migraine on and off since childhood and wanted to share my story. It started as menstrual migraine and i would come home from work take my painkillers and go to bed.

Then later on the sinus problems came, chronic sinus infections and every trip to my gp resulted in a new course of antibitotics, at one point a packet a month until i finally got referred to ear, nose and throat. By the time i got to this stage i was having chronic dizziness, sickness, needing the loo lots, numbness, swollen cheeck, ear and jaw pain, neck and shoulder pain, vision problems and the list goes on. My symptoms were so severe my gp rushed me for an urgent mri, i ended up having 3 done as well as ct scans and they all come back fine except for my sinus being inflamed.

I was given nasonex and used it daily and this helped my sinuses and i've only need one antibitoic course in the last 7 months, so simple after all the misery. Sadly all my other severe symptoms that i was told were my sinuses didn't disappear so i then got disgnosed with neuragia/aytypical face pain, i had developed depression by this stage due to the misery of daily symptoms stopping me doing almost everything, i mean even walking to the next street i would have to stop and wait and then make it to the nearest house i could stop and call for a cab to get me home! I then saw a private doc via my workplace who agreed with the nerve pain diagnosis, he was adamant.....i felt so slow thinking this was going to be my life from now onwards...

I then started amitriptyline and intially i hated it and then i started to feel a bit better but still not well enough to do daily tasks, maybe the odd week if i was very lucky! I started at 10mg and woked up 60mg, taking some in the morning just to make it thorugh the day. i would get up take amitriptyline, nurofen and paracetamol and then struggle through the day, i now know this was not the best i could achieve but the amitriptyline sedated me to a certain extent and i couldn't think i would look at everyone living there lives and ask why can i not.

I then saw a neurologist who said look you have severe chronic migraine, he said i know different specialists have given you all different diagnosis and they are wrong, all your symptoms are migraine. i couldn't believe that migraine could cause this amount of symptoms to the point i couldn't even tell it was migraine, the symptoms were constant 24/7. I then added propanolol to my amitrptyline with some hope but my head pain got worse, i stopped this and symptoms were just the same.

Then Friday, i mean this friday just gone i see a great gp she said how about botox but then realised that i had not tried pizotifen and asked if i wanted to try, of course i am a desperate miserable 29yr old! I will try anything..............and two days later i feel amazing, i dropped the amitriptyline to 10mg overnight anxiously of course and wow............i took a risk and am so glad as i have been so wary of new medications usually.

I have decided to stop all pain medications at the same time to ensure my headaches aren't rebound and was panicking thinking how i would cope, but i must say fine! I haven't even took my meds yet tonight but yet i'm typing all this out on my pc....a miracle.

I will add that codeine is the worst painkiller i've tried, seemed great when i got a migraine but made headaches a lot more frequent but i have not used this for a year gladly and have got by on nurofen and paracetamol, drinkings lots of water and eating regularly and healthily. I also take magnesium, omega 3 and a multivitamin everyday but even with all this it's still the pizotifen that has changed things overnight, i just woke up someone new yesterday!

I know it's early days and i have a reveiw in 3 weeks with my gp, so much easier sticking to the same gp too but i hope i give someone hope on these forums. Give searching, do all you can yourself, watch out for rebounds and keep going back to your doctor until you find the right medication for you and fingers crossed you will wake up one day and have the luck i have.


Post Edited (purple19m) : 6/3/2012 1:36:17 PM (GMT-6)

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