Does NDPH ever go away?

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unbelievablecurse
New Member


Date Joined Jun 2012
Total Posts : 3
   Posted 6/13/2012 10:34 PM (GMT -6)   
Like the title says... I've had NDPH/CDH for about 3 yrs and 3 months now. I don't think it's very important whehter it's CDH or NDPH. What's important is that it's always there. 24/7, 365 days a year. Nonstop.

Can these headaches disappear? Is there still hope for me to lead a headache-free life? I am so upset. I'm very young (early 20's) and should not be wasting away my life like this.

Pls help

korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 6/14/2012 3:51 PM (GMT -6)   
It's considered very hard to treat but it's not a life sentence. I'm at the nine and a half year mark right now and the best advice I can give is to focus on improving your life as someone with severe headaches and trying not to devote all of your energy towards hoping for sudden, major relief. Otherwise you end up frustrated and you' may not be devoting the necessary time to slow, step-by-step improvement.

In short, hope for the best but don't give up if things don't work out that way.

Best of luck,

Ben
DX: NDPH (2003-present), CRPS (1998-?) possible Abdominal Migraine (2010-present)
RX: Lamictal, Indomethacin, Propranolol, Provigil, Viibyrd, Oxycontin, Clonazepam, Zyprexa, Melatonin, Magnesium, Boswellia Serrata extract (Boswellic acid)

CPAP for mild sleep apnea
PRN: Ketamine nasal spray, Oxycodone

Post Edited (korbnep) : 6/14/2012 4:40:33 PM (GMT-6)


unbelievablecurse
New Member


Date Joined Jun 2012
Total Posts : 3
   Posted 6/17/2012 10:18 PM (GMT -6)   
bump.

plz reply
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