Hi all - I'm wondering if anyone else has ever been diagnosed with this.....
Here's my story -
In April of 2010 I woke up one morning - lost my balance - ended up doing a faceplant into my door jam - crawled to the washroom, tried to throw up- tried to stand up and couldn't.
Went back to bed and suffered bedspins,nausea,ringing in the right ear and horrific fatigue.
The next day- symptoms were worse. Went to the Dr. and they said text book case of Vertigo - gave me some meds and said it would be gone in 10days. NOT
During that 10 days, things got progressively worse - headaches were unreal, 'white noise' in my ear was unbearable, dizziness was relentless and to boot, I had no sense of balance. On top of this - I would suffer from blackouts - with no warning that when I came out of them I almost felt like a stroke victim.
Numerous visits to family Dr, Specialists, Neurologists coupled with a battery of tests - and 18months later diagnosed Severe Vestibular Migraines. I was put on Topiromate (seizure medication) to alleviate the headaches and symptoms. It worked for about 6 months and here I am again suffering a relapse. Now I'm on predinsone for 14days. It sucks!!!
I am in my mid-40's and have NEVER had a headache in my life - not even a hangover headache and then whammo - one day I wake up with one and have had one every day since - some days worse than others.
So... has anyone else ever suffered this? Do you have any remedies? I have lost valuable work time and credibility at my work as a result.
As you all know - if the 'disease' can't be seen than it can't be understood. My colleages don't 'get it'. It would be different if it was a broken leg, or a tumor..something 'they' can relate too.
I'm looking for any advice anyone can give me.