Sorry Everyone, I am new. I have been dealing with migraines for 33yrs. Once I was on birth control it got massively worse. I have been on every drug known to man. I have found a few that I am allergic to also I have tried botox and had a bad reaction to it.
I understand how everyone is feeling, I have been on every diet known on top of it I have several medical issues, PCOS, Depression, Fibromyalgia and others. I had a hystorectomy back in 2001 due to Uterine Cancer, I have been dealing with a Migraine for 2 yrs straight. I actually went to a new Neuro Dr today who right off the bat said I cant help you. I gave him the list of everything I have tried what I am allergic to. I have not done Spinal blocks and I will not do them I refuse.
Back in 07 I was sent in for a Spinal Tap and it was the most traumadic experience in my life. It took 3 Doctors 6 times to try and get fluid. I was stuck in a room by myself and I walked out with a massive migraine and all they told me was to go home and lay down. 2 days later I was back in the ER and the only thing they said they can do is a blood clot on the leak in my spine. I went crazy, I was like NO NO NO I couldnt handle it at all. I went for 14 days with a massive migraine.
about 2 years ago I applied for Disability. My lawyer was amazing he went all the way back to 1992 to prove my migraine issues, finally after 2 yrs of denials n things I finally went to court after the appeal, the judge was mad because it took so long for me to get disability and asked why I was going through all that to be approved because I should have been approved right off the bat.
My last trial of medications was the new injection of DHEA, it lasted for a day and the headache was back. The amount of money I have put into medications has been close to 250,000$ since they started. I was on birth control that made them 100x's worse. I have been placed in the hospital and gone through a detox of all medications.
I have done Topamax which in my eyes is the worst medication on the market. when it 1st came out my Dr was like lets try this, I was like great I cant wait maybe this will work I was so happy to try something that had high expediencies to work. I took it for 3 months, I lost 45 lbs, I could not eat , drink or get out of my bed. My mood swings were awful my kids and x thought I was worse than that chic linda blair with her head spinning.
On top of it when I finally got off it I have now have seizures, which I NEVER had before I took the medications.
I do know a few of my triggers, which is of course perfumes, Cig Smoke, Sage, the weather changing more than 9 degrees in a day.
I have done the taken a diary of my intake of food and things I have done daily.
I have NO relief. At one point I was on a pain patch everyday and taken Vicoprofen every 4 hours.
I have NOTHING right now. I just deal. I can have a headache daily and it just changes daily the insistently. I can wake up at a 9 and be a 30 by the end of day.
I am waiting now to get into a new specialist, I have been to the point that the neuro transmitter is my only chance now but paying for it is another story.
I have suffered from Migraines Since I was 6 yrs old.