Newbie to migraine (unfortunately) Heres my story....any help...appreciated big time

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New Member

Date Joined Jul 2012
Total Posts : 2
   Posted 7/24/2012 2:46 PM (GMT -6)   
Hi All,

Im gonna make it brief, 2 years ago after a night out drinking I had vision issues which never went away.....Disorientated, spaced out, sensitive to light, sensitive to sound, double vision, confusion, derelastion, flashing vision. You name it - but it all stems from my vision. I do get headache as well, but nothing to complete ground me like what I thought a migraine has to be like.

Before this whenever I would go out drinking I would take 2 - 3 days to recover, with this exact feeling, but I thought I just got hungover easily and badly.

I have been to 2 neurologists, I have an appointment for an MRI scan, I have taken numerous medication and the general diagnosis is I have migraine aura, or some visual complex which doesnt go away and is persistant. They are confident though if I find the right medication I have a good chance of it going away.

The neurologists have described it as 'the gain, in my brain (no rhyme intended) has been turnt up and needs to be settled down. I have tried Sodium Valproate, Lamotorogine and im now going on to Topamax.

My main question is, is this really what a migraine can do?

Does anyone else suffer from this? and / or know how to control it?

Can Topamax cure this?

Any advice / ideas / anything would be highly appreciated.


Post Edited (timer2431) : 7/24/2012 2:12:06 PM (GMT-6)

Regular Member

Date Joined Feb 2011
Total Posts : 92
   Posted 7/27/2012 1:54 AM (GMT -6)   
The symptoms you list can be migraine..............pain is not always a symptom just one of a cacophony that can occur when a migraine hits. Are your vision issues constant? Alcohol is a common migraine trigger - do you get migraines only after you drink? Migraines cannot be cured but the disease can be managed. Knowing what your triggers are and trying to avoid them is a good first step. Having an MRI is a good idea - migraines are usually a rule-out diagnosis and you need to make sure that nothing else is going on. Please keep us posted. L

New Member

Date Joined Jul 2012
Total Posts : 2
   Posted 7/29/2012 2:57 PM (GMT -6)   
Hi and thanks for the reply,

Yes, the vision issues are constant, no variations or breaks from when it is like this. The headaches are intermittent though. I don't only get the headache part when drinking, also the vision is the same if I have been drinking or not.

Could it be a migraine if the vision issues are constant?

My Lovely
Regular Member

Date Joined Feb 2012
Total Posts : 54
   Posted 2/4/2013 6:51 AM (GMT -6)   
Hi there

please read my previous posts, i have daily constant visual disturbance, i suffer with chronic daily migraine and my vision is a rare form of migraine

Is your vision everyday and constant??
My lovely - Chronic Daily Migraine with Visual Disturbance/Vertigo

New Member

Date Joined Aug 2014
Total Posts : 3
   Posted 8/6/2014 5:27 PM (GMT -6)   
You should try muscle blocks , or if that does t help then buy a device called cefaly from ******** and I got mine next day it was like a miracle since the 1st time I used it , good luck , stay strong

Post Edited By Moderator (BnotAfraid) : 8/7/2014 9:37:45 AM (GMT-6)

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Date Joined Apr 2012
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   Posted 8/7/2014 10:37 AM (GMT -6)   

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Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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