Hi there. I'd trust the doctors that you've seen that your life is probably not in immediate jeopardy. When you see the headache specialist you're likely to have an MRI ordered anyhow.
I guess the most important thing to say here is that none of your symptoms are particularly unusual. I don't say that to diminish how upsetting or difficult they are to live with, only to encourage you to try your best to stay calm and not further stress yourself out by worrying and speculating. You're doing the right thing in seeing a headache specialist and you should have a better idea of what you're looking at once you get set up there. Depending on their evaluation of your symptoms you might want to discuss whether you ought to see any other specialists like an ophthalmologist (rather than an optician) or an ENT.
Again, many of the symptoms that you're listing are typical of aura that can accompany migraine or accessory symptoms that can be exacerbated by frequent headaches (for example, my jaw frequently gets quite sore when I'm having a bad headache and my mental acuity and focus often drops off before and during a bad episode).
So, hang in there until you see the headache doc. Try to keep your stress down and be as healthy as possible. Also, if you can, it always helps to document your headaches (even if they are constant you can still note when they are worse and when other symptoms occur).
DX: NDPH (2003-present), CRPS (1998-?) Abdominal Migraine (2010-present)
RX: Lamictal, Indomethacin, Propranolol, Provigil, Viibyrd, Oxycontin, Clonazepam, Zyprexa, Melatonin, Magnesium, Boswellia Serrata extract (Boswellic acid)
CPAP for mild sleep apnea