persistent & worst headache ever

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wils
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/12/2012 2:40 AM (GMT -6)   
hi to everyone here. i'm new here. i've been trying to join this kind of forum as i've been suffering from severe headache for 5 months now.

i do hope someone could help me as i'm close to giving up life....

here's my story:

i'm a 37 y/o healthy male. in 2011, i've been suffering from on & off colds that the pulmonologist could not cure. it came to a point when one night i experienced terrible pain in my ears that i could not hear that i rushed myself to the er. eventually i went to an ENT dr. and he diagnosed it as allergic rhinitis. he prescribed some meds and i get well. however, the allergy attack became a cycle which happened every other month that i was always visiting the doc. he prescribed several meds including nasal sprays, medrol etc. the ent on february 2012 then decided to perform FESS with septoplasty with turbinate reduction after seeing the results of my CT scan which showed i had concha bolusa and deviated septum. of course, i was afraid since it was a major surgery although as the ent said, it will be endoscopic procedure. i was afraid after doing some research online about the supposed surgery. however, the doc. said that it was completely safe and that there will be no complications.

after my bday in march 2012, he scheduled me for the surgery. i prayed hard for a sign if i should go with the procedure or not which. i havent had any bad sign whatsoever so i decided to go.

after i wake up after the surgery, i had a very bad headache that my bp shoot up and i was at the recovery room for 5 hours to manage my high bp.

after 7days, the packing was removed, again i experienced excruciating pain in my eyes. the ent said it will go away. after a week, i went back to work still with the pain. i rushed 5 times to an opthalmologist but he said that there's nothing wrong with my eyes and assured me that it may go away in time.

however, the pain now progressed to a severe headache which was the worst i ever experienced in my whole life. the bad thing was that it was continuous, it starts at the back then goes to my temples. i went back to the ent and he said that the surgery is definitely not the cause of it. he ordered a brain mri, and the result was "normal".

this was the time that i went to a neuro. the diagnosis was "tension headache" and "anxiety disorder". he prescribed baclufen and lioresal and i was on these meds for about a month and nothing was improving and the pain was constantly there. so i went to 4 more nueros and different medications but nothing happened.

i was eventually referred to a pain management center of a major hospital. the neuro could not diagnose any prob as he says all my tests were negative esp. the mri/mra results.

i was prescribed OXYCONTIN (10 mg) 3x daily and VIMOVO twice a day and LYRICA (75 mg in the morning & 150 mg at night) for 2 weeks, the pain was only eased a little. so after my ff up the oxycontin was increased to 20 mg with the other meds continued, the pain is managed a bit but is still there esp after the effect of the med. To tell you, the pain starts when i wake up and stays till i go to sleep at night, thank god i can still sleep with the help of the med but its getting harder. the dr. ruled out "trigeminal nueralgia" as he said that im too young to be afflicted with such.

worse, the right area of my inner nose where the ent performed turbinate reduction and fess is also causing me terrible pain and numbness which affects my forehead and nose. i suspect that the nerves in there must have been really affected by the surgery. this pain now is complicating and complementing my other headache.

the meds are costlier and have drained my resources. but most of all the worst pain is not getting better and not going away. It is so excruciating that its ruining my life and work and that as i said earlier I'M CLOSE TO GIVING UP LIFE!! but im afraid cause im a catholic.

ive been praying so hard for healing, even my mother is constantly praying the novena 9x every day for a month now.

it will be exactly 5 months this aug. 16th since my operation and start of my headache. i wish to blame the ent for rushing me to surgery since the other ent that i went to and i regret never consulting him as i was only able to know him after some referral, said that allergic rhinitis is only managed and that surgery should be the last option if everything else fails. and that septoplasty is also not advisable as 75% of people in the world have in one way or the other, deviated septum.

guys, please maybe you could help me, ive lost weight already, i can't think well and perform my office tasks, i am not what i used to be now, cheerful, happy person, and my friends have begun noticing it. And everyday im thinking of really ENDING MY LIFE.....

please, can any one out there help me, please?....

kjtawz
New Member


Date Joined Aug 2012
Total Posts : 5
   Posted 8/12/2012 8:58 PM (GMT -6)   
I am so sorry for your pain. My husband woke up from his 4th back surgery with a horrible constant burning headache and we have been searching for help for 20 months now and no help in sight. But don't give up it will cause so much heart ache and terrible grief to all who love you. I know because I lost a teenage daughter a few years ago and it has broken my heart. My faith and family are what keep me going and now my husband is very ill. You can't give up, God will hear your prayers and ours and somehow you and my husband will be free of this pain. We are trying to go to Mayo and see if they can help. Keep going. I will pray for you. Look at the blessing you still have. They are there and try to stay focused on them.

Bizstar
New Member


Date Joined Aug 2012
Total Posts : 4
   Posted 8/15/2012 6:08 AM (GMT -6)   
Hi, after reading your story there is no doubt that you gone through a lot, a lot more than anyone else could endure.

This is a very complicated problem. You have and are, I suppose, suffered the worst of it and after reaching this point the other worst thing you could do is give-up but DON'T. I know you could say it is easy for me to say. I have had some third-party experiences myself. My young nephew had brain surgery at the
age of 10 - which went wrong, I'm afraid and he was left paralysed for the rest of his life. Prior to the surgery he was normal and studying well at school, the only problem he had was a small facial disfigurement relating to his eyes where the bridge of the nose was slightly wider then normal and the surgery was meant to correct this. But it was not to be.

Alas, events happen in life but we must be strong and confront
them and live through them. Life is a one-time experience and we must not give it up.

I wish you the best. If you would like some further advice
have look at my website and you could download my free ebook there - you never know, you may find some inspiration to draw upon.

Dharam Pal

http://www.mymigrainepainrelief.com

wils
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/30/2012 6:57 AM (GMT -6)   
hi to kjtawz and bizstar,

thank so much for replying to my post. i really appreciate it, much more your prayers, support and encouragement. i feel some assurance that somehow you are there and it eases my burden somehow.

been back to the pain clinic for ff up check up. finally, my neuro said that some nerves might indeed been affected by the surgery and this cannot be seen through an mri/mra test. so i dont really know for how long the pain will last. to tell you, i took a week off from work to see if some rest will help, but it did not. during then, i went to 3 faith healers for help to no avail.

guess i will have to beg the Lord more for His compassion and mercy. I will also pray for your husband kjtawz as well as all those in pain and suffering as i always do when i pray.

will visit the site referred by bizstar.

please, if you may have good news relating to my problem, please update me....again, thank you so much....

by the way, my neuro indicated in his prescription slip "CHRONIC INTRACTABLE HEADACHE" as diagnosis for my problem.....

right now my pain scale is at the range of 7 - 8 on a 1 - 10 scale...

MtnGrlNC
Regular Member


Date Joined Jul 2012
Total Posts : 66
   Posted 9/10/2012 10:49 PM (GMT -6)   
I too suffer from chronic pain post sinus surgery. Between 2/92 and 8/98 I had 6 sinus surgeries main on the right side although I also ending up having my frontal sinuses obliterated (they cut into your forehead and pack them with fat). I have been diagnosed with Empty Nose Syndrome. My present ENT describes it this way...there are places in the inside of my skull that are opened to the air which should not be. Turbinates warm and filter the air you breathe and if too much is removed can cause a host of problems. I encourage you to google empty nose syndrome many of the sites list things that can help i.e.flushing your sinuses. You are not alone out there.

Jtoz54
Regular Member


Date Joined Mar 2012
Total Posts : 30
   Posted 9/11/2012 7:14 AM (GMT -6)   
Hi I suffered from headaches and dizziness all my life. 5 years ago I discovered that I was Salicylate Intolerant, allergic to aspirin and all foods containing salicylates. Aspirin is a salicylate that comes form the bark of the willow tree. All plants produce salicylates as a natural insecticide. It is in things likes fruit,most vegetables, tomato sauce, olive oil and many more. Theres a good list of foods in the book,"Salicylate Intolerance and The Healthier I Ate the Sicker I Got."

Right before I hit bottom I had such a pain in my right eye that I went for a CAT scan to rule out a tumor. Once I went on a low sal diet I got rid of my headaches,sizziness, nausea, neck pain, arthritis, asthma, dry eyes, nosebleeds and a foggy headed feeling. Salicylates can definitely cause Menieres and Tinnitis, and ear infections. I used to get clogged and painful ears when I ate too many salicylates. They also effect the muscles of our eyes which is why my headaches always started in my eyes.
Check out sickfromsalicylates.com
No one should just accept a diagnosis of Cluster Headaches when they can prevent them by finding out whats causing them. Its usually a food intolerance. Unfortunately there is no test for Salicylate Intolerance because it isnt an allergy. You have to go off the foods that are high and very high in sals and see how you feel. Good luck, Joan

TST
New Member


Date Joined Sep 2012
Total Posts : 1
   Posted 9/19/2012 8:12 PM (GMT -6)   
wils,

you had a bug infection and probably side effect from surgery. Sorry for that...
I would like to offer the simplest suggestions..for bug infection you may use oregano oil, and for surgery sideeffect, pls use homeoapthy :

link :
http://www.homeopathyworld.com/blog/homeopathy-and-surgery/

http://www.healingnaturallybybee.com/articles/anti6.php

Wish you success

Jtoz54
Regular Member


Date Joined Mar 2012
Total Posts : 30
   Posted 9/22/2012 2:54 PM (GMT -6)   
Dear Wil, My heart aches for you. I believe in praying and somehow God will give you the strenghth to get through this. On a previous thread I talked about Salicylate Intolerance. Right before I discovered that it was my problem I prayed very hard. At the time I knew I was allergic to aspirin but had no idea that it was responsible for my headaches and asthma. You seem to have many of the other symptoms. Salicylates effect the eyes, muscles of the eyes, creating eye pain and weakness. It can be responsible for crossed eyes and drifting eyes.

Sals also effect the ears, causing ear infections, clogging, pain, ringing, tinnitis and menieres.

It is also very responsible for Sinusitis and nasal polyps. If you are salicylate intolerant that would make you very sensitive to many medications and artificial colors which are in many meds. Most meds make me very sick, dizzy and nauseous.

Go on the site salicylatesensitivity.com and hear the stories of
so many people who have suffered a lifetime before discovering about this food intolerance.. It only took me a week of avoiding sals to suddenly feel better. Its hard to believe but in one week my migraines were gone along with asthma, arthritis, nosebleeds, dizziness, bloodshot eyes and a type of ADHD.
Wil please look into this. Dont expect much help with this from your Dr. Most Drs dont know about this food intolerance and dont want to. Please check out sickfromsalicylates.com and I pray for you to get better soon, Joan

Oh Wil, if theres a chance you are salicylate intolerant, please dont use oregano oil as it is very high in salicylates and could make you very sick.

Post Edited (Jtoz54) : 9/22/2012 2:57:03 PM (GMT-6)


denisA
New Member


Date Joined Sep 2012
Total Posts : 3
   Posted 9/23/2012 5:47 AM (GMT -6)   
My name is Denissa,I have had a consistent headache for the last seven years.It has never gone away,I have it twenty-four seven.I have been to so many doctors including( excuse my spelling):nueroligists,I have done allergy shots,acupucture,herbal remedies,horomone therapy,checked my vision,been to the dentist.I have taken dozens of meds,and nothing helps,nothing ever helps.Nothing triggers them,it just will get worse all of a sudden,or it will progress to get worse.A bad headache can last a few hours up to a few weeks.The doctors cannot diagnose them to be migraines or stress.I do know that I have a angiovenous malformation in my left temporal lobe,but they think that it is something my father may have.And has nothing to do with my headaches.If anybody can offer any info I would appreciate it Vardanafil treatment

Post Edited (denisA) : 10/12/2012 2:12:01 PM (GMT-6)


Jtoz54
Regular Member


Date Joined Mar 2012
Total Posts : 30
   Posted 9/27/2012 8:18 AM (GMT -6)   
Hi Denissa, with Salicylate Intolerance which I mentioned above, we never seem to be able to get a connection between our symptoms and what triggers them because unlike an allergy, the reaction of a food intolerance can be several hours later. Its the bucket theory. You might be able to eat a few salicylates with no problem but when the bucket is full you can have a full blown attack (migraine, eye pain, asthma, joint pain, ringing in ears etc)

I suffered from migraines my whole life until I started avoiding foods high in salicylates. Check out sickfromsalicylates. Good luck, Joan

heartlander
New Member


Date Joined Dec 2012
Total Posts : 1
   Posted 12/6/2012 7:23 AM (GMT -6)   
Hi wils,
 
Stephen Turoff is very good, maybe he can help you, he is based in Chelmsford England.
 
 
He is very good, and I would highly recomend him. He charges £25.00 plus £5.00 vat.
 
I had a chest infection during October, and was told by my doctor that there were silent areas in my lungs, after visiting stephen i went back to the doctor and was given the all clear, but it was the joy and wellbeing that i felt after a few days that amazed me.
 
if you are unable to visit him in person he does do healing at a diistant, but as i have never experienced this i cannot say anything about it.
 
Several years before, i had been suffering from  tooth problems, and had been terrified of dentists, but after seeing Stephen who said that he doid not do dental work, but could remove my fear, soon afterwards i was having all my teeth removed and was not at all afraid.
 
I have no regrets at all about going to see him.
 
I hope this will be of help to you.
 
best wishes, and Kind regards,
 
Michael.
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