hemepligic migraines

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Lat4321
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Date Joined Aug 2012
Total Posts : 3
   Posted 8/23/2012 2:20 AM (GMT -6)   
Hi,

My sister suffers from hemepligic migraines. Her eye and mouth droop and she develops paralysis down the left hand side of her body (Looks very like a stroke). She usually gets about 1 a month. Over the last few weeks however she has had about 1 a day and yesterday she had 15. We took her to her gp, but they just wrote it off telling us there was nothing they could do.


Does anyone else suffer from these? Is this normal?

Shes also developed other symptoms that include leg and arm tremors and sometimes her face goes into spasms. Quite scary for me as ive never seen anyone else with these type of mirgraines.

Any reply would be great :) thanks!

captain kirk
New Member


Date Joined Aug 2012
Total Posts : 4
   Posted 8/23/2012 2:40 AM (GMT -6)   
cool  Hi I am a 54 year old mail, and did have hemi-plegic migrains for all my life on and off, although some specialist tried to confuss it with another diagnoses.  Approx. 4 years ago I read about the healthy properties of pomegranites, so I went on a diet of the juice in desperation, I (touch wood ) have not had one since.
It may be coincerdance but it did me good.
All the best.

luckydog1977
Regular Member


Date Joined Aug 2012
Total Posts : 121
   Posted 8/23/2012 4:24 AM (GMT -6)   
I'm a 35 year old female and I get them...despite a heavy dose of verapamil every day. They aren't common...but are a Norma neurological disease. I get more when I go through periods of extreme stress. What does she do to prevent hers? I have also noticed hormonal changes through the month can trigger them. I've never known of anyone else who had them...not that I'm glad ya'll do...just glad I'm not alone.

Lat4321
New Member


Date Joined Aug 2012
Total Posts : 3
   Posted 8/23/2012 4:31 AM (GMT -6)   
Hi thanks for replying.

She takes topiramate and a sedative which is meant to help relax her brain and reduce activity during the night. They are both meant to prevent it, but nothing seems to work just now.

I know sometimes if she feels like one is going to come on, she goes somewhere quiet and will try and keep relaxed. Works sometimes, but just depends on the severity of the attack.

I find it quite scary, sometimes she can be talking normally and the next things shes on the ground.

captain kirk
New Member


Date Joined Aug 2012
Total Posts : 4
   Posted 8/23/2012 7:05 AM (GMT -6)   
cool  To continue, my symptoms were as you say like a heart attack ie slurred speech, paralysis,sickness.sweating pofusley, extreme tiredness.  I was the one of the first to be put on Imigrain injections,but I feel because of costs I was taken off of them, they were about £100 a time.
I have I been on every medication that's out there with NO sucess,
only relief I got was from what I said before.  The only explanation I have for this working, IF it is the reason, is that the juice can improve blood flow.  I have done much research on the inter-net.
Pofessional's in my experiance, and from the net are mystified on the route corses of most migrains.
Stress of any kind was one of the my triggers.
Migrain totlly effected my life,thru work and socially, I don't know how old your sister is but an early relief would be good, as my past illness has effected me mentally  

Lat4321
New Member


Date Joined Aug 2012
Total Posts : 3
   Posted 8/23/2012 2:44 PM (GMT -6)   
Weve both had imigrain, I suffer from migraines myself, and it didnt work for either of us, made her very sick and gave me a lot of pain in my chest. :(

Shes only 21, had this since she was 16.
She's lost a few jobs with it, and its now starting to affect her current job.
Shes lost a lot of weight through it, with loss of appetite from dizzyness and fatigue, has also affected her memory and her mouth has a slight droop now on the left side.

I think she's willing to try anything, were going to give the pomegranites a try, even if it cuts down some of the attacks would be great. :)

captain kirk
New Member


Date Joined Aug 2012
Total Posts : 4
   Posted 8/24/2012 12:27 AM (GMT -6)   
cool  Hi, Tesco's seem to do a good brand of juice, my mother was a servere sufferer aswell,  good luck.

luckydog1977
Regular Member


Date Joined Aug 2012
Total Posts : 121
   Posted 8/24/2012 9:19 AM (GMT -6)   
I was told a vacuum channel blocker was the only known prevention for hemiplegic migraines. I've had two neurologists tell me that so far and my primary care doc. Verapamil is usually the first choice. Maybe she should see a migraine specialist. Some neurologists have never seen an actual case and if they are long out of Med school may not remember it much. Also she should NEVER take any of the triptans or ergotamines to stop any headache. They don't mix well with someone with a history of hemiplegic migraines.
GAD, panic disorder, bipolar1, GERD migraine with aura, hemiplegic migraine, prolonged q t interval, tachycardia, arrhythmia, fibromyalgia, polycystic ovarian disease, PTSD

Klonopin, Cymbalta, Abilify, Eskalith,Lyrica, Flexeril, TalwinNX, Prilosec, Verapamil, Toprol XL, Synthroid, Lipitor, Phenergan, Melatonin, Multivitamin, B12, b complex, vitamin c, magnesium, vitamin d (50,000iu's prescribed)

luckydog1977
Regular Member


Date Joined Aug 2012
Total Posts : 121
   Posted 8/25/2012 9:43 AM (GMT -6)   
That should be "calcium channel blocker" stupid android spell check. Sorry I should have proofread better.
GAD, panic disorder, bipolar1, GERD migraine with aura, hemiplegic migraine, prolonged q t interval, tachycardia, arrhythmia, fibromyalgia, polycystic ovarian disease, PTSD

Klonopin, Cymbalta, Abilify, Eskalith,Lyrica, Flexeril, TalwinNX, Prilosec, Verapamil, Toprol XL, Synthroid, Lipitor, Phenergan, Melatonin, Multivitamin, B12, b complex, vitamin c, magnesium, vitamin d (50,000iu's prescribed)

luckydog1977
Regular Member


Date Joined Aug 2012
Total Posts : 121
   Posted 8/27/2012 7:59 PM (GMT -6)   
Had another hemiplegic migraine today...I think. Usually the numbness is gone by now. Hope it wasn't a TIA. Calling neuro tomorrow.
GAD, panic disorder, bipolar1, GERD migraine with aura, hemiplegic migraine, prolonged q t interval, tachycardia, arrhythmia, fibromyalgia, polycystic ovarian disease, PTSD

Klonopin, Cymbalta, Abilify, Eskalith,Lyrica, Flexeril, TalwinNX, Prilosec, Verapamil, Toprol XL, Synthroid, Lipitor, Phenergan, Melatonin, Multivitamin, B12, b complex, vitamin c, magnesium, vitamin d (50,000iu's prescribed)

captain kirk
New Member


Date Joined Aug 2012
Total Posts : 4
   Posted 8/28/2012 12:30 AM (GMT -6)   
cool  Good luck with your appointment, be firm with the specialist.
If your have tried the pomegranites, keep taking it, as it also builds
up your anti-oxidant, which will take time.
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