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luckydog1977
Regular Member


Date Joined Aug 2012
Total Posts : 121
   Posted 8/23/2012 5:45 AM (GMT -6)   
Sorry I posted before saying hello. I saw hemiplegic migraine and jumped,never known of anyone who had them. I'm 35F a divorced mom of 2teenagers who live with their Dad. They are navy brats and didn't wanna move to my small hometown. So small the only support group is for diabetes. There's plenty wrong with me..but no diabetes. In 1998 I was diagnosed with gad, panic, and bipolar 1. The migraines with aura started in 1997 but weren't diagnosed or treated until 2000. In 2007 the hemiplegic migraines began. And I started verapamil..but the neuro where I lived then wouldn't go over 120mg so I was having them several times a week. Scared my kids to death. After the divorce I came home and my neuro here raised the dose dramatically. The first 2 years on that dose I had 3-4 hemiplegic migraines. Now I'm under a ton of stress and have had 7 this year so far. I also found out in 2006 that I have a genetic heart defect. And in 2008 the fibromyalgia hit. So I'm all over the place on these message boards. I get botox for the regular migraines. Seems to work better every time I get it. But I am most interested in finding out what others do for hemiplegic migraines. Sorry for the book. Thanks for reading----K

Aprilviv
New Member


Date Joined Aug 2012
Total Posts : 1
   Posted 8/23/2012 11:57 AM (GMT -6)   
Hello, I used to be able to avoid migraines by avoiding certain trigger foods. Stress was another trigger. Now I am getting them more and more often and the main trigger is flashing lights. I have to be very careful about avoiding television shows or flashing ads on the internet. My vision goes blurry and I cannot see spots and after a at times I cannot see at all. If I take pain killers quickly I can sometimes prevent getting a bad migraine. After the migraine I am exhausted.

luckydog1977
Regular Member


Date Joined Aug 2012
Total Posts : 121
   Posted 8/23/2012 12:47 PM (GMT -6)   
I kept a migraine diary for 3 years. All we could come up with were the bright lights you describe and monthly hormonal cycles. But that was for the migraine with aura. Hemiplegic migraines are a whole other animal. Its like having a stroke without the brain damage. Laat i read the jury's still out on if the nerve damage is permanent. @I always get them on my left side, face droops, peripheral paralysis. And if I can speak no one can understand me. I usually end up with a panic attack on top of it. The migraine itself will go away with a dose of tylenol or ibuprofen. But the other symptoms have hung on for as long as a week. Its scary and frustrating. My mother has never seen me have one but thinks I'm doing illegal drugs when she calls and I can't talk right. For the record I don't use illegal drugs...its just her way...according. to her bipolar and fibromyalgia are my imagination too.
GAD, panic disorder, bipolar1, GERD migraine with aura, hemiplegic migraine, prolonged q t interval, tachycardia, arrhythmia, fibromyalgia, polycystic ovarian disease, PTSD

Klonopin, Cymbalta, Abilify, Eskalith,Lyrica, Flexeril, TalwinNX, Prilosec, Verapamil, Toprol XL, Synthroid, Lipitor, Phenergan, Melatonin, Multivitamin, B12, b complex, vitamin c, magnesium, vitamin d (50,000iu's prescribed)
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