Anyone in the PA area??? (MD, NJ, NY)

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Kcizan
Regular Member


Date Joined Aug 2012
Total Posts : 24
   Posted 8/28/2012 6:48 PM (GMT -6)   
I am trying to find a new headache specialist, the ones in my area are horrible or do not have any appointments for over a year. I live in central PA and I am willing to travel, Maryland, NJ, NY, as long as it is a good doctor. I do not want to end up traveling a far distance and the doctor is not helpful. Any input would be great, thanks!

korbnep
Regular Member


Date Joined May 2007
Total Posts : 328
   Posted 8/29/2012 10:10 AM (GMT -6)   
Hi Kcizan,

Before I go into specifics I wonder if you'd share some further details about the treatment you've had in the past and what type of headaches you have. I ask this because, while headache specialists and centers are great resources, they don't need to be, and in many cases ought not to be, your first choice for treatment. Aside from tit being a lot easier getting an appointment, many non-headache specialized neurologists are able to successfully treat common headache disorders. As you haven't posted anything about your history I don't know if you've gone down this path yet--but if you haven't you should consider it. From the 10 years that I've had a headache and talked to many other sufferers and doctors it's my belief that the best way to seek treatment for headache problems is to first see your general practitioner. If you have a headache disorder that isn't simple to treat you'd next be sent to a neurologist and, then, if the neurologist can't nix the headaches then your proceed to a specialist or clinic (This is my opinion and experience. It might not be right for you and if you've already been down these avenues, by all means ignore this preceding section).

I live in Philadelphia but I have some experience with other headache centers. Personally I go to the Thomas Jefferson University Hospital Headache Center is Philadelphia and I've been going there for about 6 years. There are also several other good options in Philadelphia like the University of Pennsylvania and Drexel/Hahnemann University Hospital. If you were to go there you'd probably have to wait a couple of months for an appointment (less if you see one of the Nurse Practitioner who are very good). And make sure to avoid Dr. Silberstein (the Director of the clinic). He's actually the most difficult doctor there to get an appointment with but let's just say that's a good thing.

In Pennsylvania I would also recommend the Lehigh Hospital Neurology Center in the Lehigh Valley. I went there for an additional opinion several years ago and, while they weren't able to suggest anything new (this was after 6 or 7 years of treatment), they were well-informed, personable and easy to work with. If you can get an appoint with Dr. John Castaldo, I highly recommend him.

Other than that I have heard some good things about the headache treatment center in Pittsburgh but I don't have any personal experience there.

You might want to look at the American Headache Society® (AHS) Committee for Headache Education which has a handy tool for finding specialists.

Best wishes and post back if you have any further questions,

Ben
DX: NDPH (2003-present), CRPS (1998-?) Abdominal Migraine (2010-present)
RX: Lamictal, Indomethacin, Propranolol, Provigil, Viibyrd, Oxycontin, Clonazepam, Zyprexa, Melatonin, Magnesium, Boswellia Serrata extract (Boswellic acid)

CPAP for mild sleep apnea
PRN: Oxycodone

Kcizan
Regular Member


Date Joined Aug 2012
Total Posts : 24
   Posted 8/31/2012 2:12 AM (GMT -6)   
Hi Ben,

I have tried three different primary doctors who referred me to a neurologist who then me to a headache specialist, who I am not fond of. She takes days to return calls and is so rude to mean talks to me like I am stupid she says I am abusing my medication (relpax) because I got it twice back in March, which I have no idea what that has to do with anything not to mention I got papers from the CVS and I ordered it the 1st of March and then the 29th, so it was the end of the month. After calling her multiple times for a month she said fine why don't you come in and we can do something. I went in and told her I have cluster headaches as well...again she looked at my like I was stupid and said why do you think that and I explained and she said oh I guess we can treat you for that. She then scheduled another MRI and it came back that I have fluid in my brain and behind my right optic nerve. I have not worked all week and have been in a lot of pain. Tomorrow I go to see a special eye doctor to see what is going on. September 11th I go to a pain clinic and all they said was bring a driver, you'll probably be here for 4 hours, and you will get injections. Do you know what kind of injections they give?
Suffering from daily migraines, cluster headaches, depression

korbnep
Regular Member


Date Joined May 2007
Total Posts : 328
   Posted 9/3/2012 8:55 AM (GMT -6)   
Hi again,

From what you're saying about your headache specialist I think that you could have stopped at "who I am not fond of" and that would have been enough to show that you ought to be seeing a different doctor. Medication overuse accusations or not, if you don't feel comfortable with a doctor that you're seeing regularly to treat a frightening problem then you need to find a new one.

Other than that, I think it's good that you're seeing eye and pain specialists. As to what the pain clinic may have planned, I honestly don't know. There's no harm (and it might be good to know) in calling to ask.

Good luck and best wishes,

Ben
DX: NDPH (2003-present), CRPS (1998-?) Abdominal Migraine (2010-present)
RX: Lamictal, Indomethacin, Propranolol, Provigil, Viibyrd, Oxycontin, Clonazepam, Zyprexa, Melatonin, Magnesium, Boswellia Serrata extract (Boswellic acid)

CPAP for mild sleep apnea
PRN: Oxycodone
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