New Here . . . Chronic phase and then some

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Ulab
New Member


Date Joined Sep 2012
Total Posts : 2
   Posted 9/18/2012 6:50 AM (GMT -6)   
Hi All,

I was diagnosed over 10 years ago with chronic migraine (had had a headache for 3 months) and over the years have done topomax or imetrex, but currently not on anything. I do take sertraline & ambient daily for something else which is about all I take. The advil or tylonol don't do much, but do take them on occasion (more of that 'maybe it will help this time).

Since the original diagnosis, I have had headaches for the most part all the time. On a scale of 1 to 10, anything under a 5 I just function with. 6 to 9 I look for meds and ice packs. 10s will keep me immobilized in the dark cold cave that is my bedroom.

In the last month, it started with a 6 or a 7 on a Sunday, and by that Thursday, full blown migraine (light sensitivity, nausea, pain, listless, noise). Left work early once the nausea kicked in and went home and put ice packs on my head. The 5 mg hydrocodon didn't even help. There have been a few days of ok in between, but for the most part, headaches for over a month. And yesterday, I woke up from a headache, with nausea, proceeded to vomit and a miserable day in bed.

Still have the headache going on now. I have a doctors appointment on Friday, but only with my GP at first.

Was wondering what else everyone else does. Who else has TMJ or TMJ symptoms or a bite guard (does wearing the guard make it better or worse)? I would like to avoid another medication regiment as we are trying to get pregnant, but trying to get some relief. Anyone done botox, demoral, or any other options. I have 4 ice packs in my freezer that I rotate out whenever I have a headache!! shakehead

lab01343
New Member


Date Joined Aug 2012
Total Posts : 18
   Posted 9/18/2012 8:03 PM (GMT -6)   
Hi

I too have chronic migraines. I have recently started botox (just had my second round). It did help with the 1-7 migraines days, which is great, but it's the 9-10 days that lay me out flat and I have 2-3 of those a week. Still trying to find something to work on them. My specialist doesn't even want me to use pain meds which I believe is sadistic but I hold out most of the month only using about 2 Replax and 4 Tylenol a month. I'm on 70 mg of Nortriptylene a day.

I have had a night guard custom made and it sometimes help, at least it doesn't add any migraines and seems to help prevent a reoccurance of the TMJ.

As for TMJ I used to have it so bad my family stopped going out to restaurants with me as the clicking and popping was so loud. The dentist told me that the only way to fix it would be surgery. I told this in passing to my Chiro and he said he wanted to try something. It was a very unpleasant treatment, but very effective. It involves checking along the ligament/ tendon of the jaw, finding the tight or sensitive bit and bearing now with the most unbelievably, painful pressure for about 1 min. Releasing and doing it all over again until the ligament loosens up. I still some times have to put pressure on it myself, or sometimes use icy/hot muscle rub. I've only had to face the chiro sadistic treatment once in the last 5 years and you wouldn't even know that I have TMJ now.

TechSpec
New Member


Date Joined Feb 2013
Total Posts : 8
   Posted 2/3/2013 3:57 PM (GMT -6)   
Have you tried an oligoantigenic diet? It is a diet that excludes common allergens (Milk, Egg, Wheat, Tomato, Beef, Corn, Soy). Research on chronic migraines in children shows that 93% of patients can stop their frequent severe migraines on such a diet (see first reference). There is growing evidence that migraines are an allergic disease.

I used to suffer from chronic migraines for years only to finally learn that they were caused by allergies! I now eat mainly rice, vegetables, and fish and have almost no migraines. It may or may not work for you, but it couldn't hurt to try. I hope you feel better.

Best,
Steven

References:

Egger, J., et al. "Is migraine food allergy?: a double-blind controlled trial of oligoantigenic diet treatment." The Lancet (1983): 865-869.

Mansfield, Lyndon E., et al. "Food allergy and adult migraine: double-blind and mediator confirmation of an allergic etiology." Annals of allergy (1985): 126.

Monro, Jean, Claudio Carini, and Jonathan Brostoff. "Migraine is a food-allergic disease." The Lancet (1984): 719-721.
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