Posted 7/1/2013 11:47 AM (GMT -6)
Gentle hugs to all the others out there who are suffering because of EDS.
I have not yet been officially diagnosed with Ehlers Danlos type 3 because i have only just started looking for answers for my pain this year; but I score 6 out of 9 on the Beighton test, plus I can do the backwards namaste and I can lock up and bend all the tips of my fingers. I'm in constant pain, hands, hips, feet, shoulders, neck and back, and I always feel like I'm about to fall apart. the simplest move and things pop out of position and I'm in agony. I Also have a family history of aneurysms. I have hemiplegic migraines as well. i was 9 years old the first time I had one. I also have hydradenittis Suppurativa (boil like infections) under my arms. I hate feeling sick all the time, and having my life stolen from me. My kids all have varying degrees of hypermobility and migraine headaches, often with vomiting. I want to get them help early and maybe prevent some of what I've gone through. However, I live in British Columbia, Canada, and we in general seem to be about 20 years behind the scenes when it comes to medical stuff, and there is not a lot of awareness here, so the process to get help is very slow. If any of you folks out there are praying types I would welcome your prayers, and send mine your way. God Bless.