is there anybody out there ?

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alexia1
New Member


Date Joined Jan 2013
Total Posts : 6
   Posted 1/7/2013 7:25 AM (GMT -6)   
Can anybody identify with my symptoms since the summer of last year I have only had a few weeks with no headache , been to see neurologist who says hemiplegic migraines was on topimax that was worst thing ever for me .I was anxious and like a zombie , I stopped taking them and have not been back to my gp , my temple pain is the main problem it feels like something is about burst the pain travels to my eye and cheek , with this comes a numbness .I don't know if there is anybody who has the same .if so any advice would be great .

ToryAldridge
New Member


Date Joined Dec 2012
Total Posts : 2
   Posted 1/9/2013 1:15 AM (GMT -6)   
Alexia, welcome to the forum! Good job to reach out and look for some answers and helps.
I have had migraine attacks that offer all of the same without the numbness. It has been my experience that GP's have way too many things going on to know how to effectively treat true migraines. I know there are some out there that do a great job too. I sought out a specialist specifically for migraines. I found one that became such because he too has migraines. Remember, this is not a sudden illness. Migraines are a neurological disorder. There are many avenues to treating them. Start with trigger identification. There are many websites and apps out there to help you with this. I would also suggest keeping a food diary to help identify some food triggers. I am fairly in to natural therapies for prophylaxis and prevention, then use triptans for abortive treatment for migraines. Maybe start with some of these things and keep up the fight! Hang in there, keep reaching out to other migraineurs and hopefully "we" as a whole can help you find some relief!
Tory

alexia1
New Member


Date Joined Jan 2013
Total Posts : 6
   Posted 1/11/2013 5:50 PM (GMT -6)   
Thank for replying to my post .I felt a bit disheartened when I had not had any replies .I have as you suggested started a diary of food and details of my headaches, I visit my GP next week with the intention of getting a referral to somebody who can get me on the right track :alexia

Angelic_Victory
Veteran Member


Date Joined Sep 2012
Total Posts : 2138
   Posted 1/11/2013 6:11 PM (GMT -6)   
I get hemiplegic migraines, too. I see a migraine specialist who has been wonderful. He told me its important with hemiplegic migraines to not take medicines like maxalt (migraine preventatives) because it could cause a stroke. He put me on zonasimide, elavil, and norco for pain. The elavil really helps me to relax and sleep which is important.
So my suggestion would be to seek out a migraine specialist or at least get a referral to a neurologist. Try to avoid stress. I know the hormone increase that comes with my menstrual cycle can trigger migraines as well as certain smells and bad weather. Definitely try to find your triggers in a journal. I found chocolate can trigger min, too.
Good luck.
Nail patella syndrome, osteoarthritis, complex migraines, eosinophilic esophagitis, major depressive disorder, OCD, and fibromyalgia, IBS

Meds: flovent 220 mcg, flexeril 10 mg, zonisanide 100 mg, omeprazole 40 mg, Cymbalta 60 mg,dicyclomine 20 mg, elavil, 10 mg, Xanax prn, hydrocodone prn.

alexia1
New Member


Date Joined Jan 2013
Total Posts : 6
   Posted 1/12/2013 10:02 AM (GMT -6)   
Hi thanks for your reply .I have been seen by a neurologist and he was happy to keep me on topimax and leave my care to my GP , I could not cope with the meds my life became one big dull blur and I was very anxious .I weaned myself of them and have seen nobody since October .I do find if I do anything that invloves exercise even can bring on a headache .I have an appointment next week with my gp so I hope to get refered to somebody to help me .alexia

Angelic_Victory
Veteran Member


Date Joined Sep 2012
Total Posts : 2138
   Posted 1/12/2013 11:58 AM (GMT -6)   
Make sure you tell your dr what the topamax did and how bad the migraines get. Tell him you'd like a headache specialist. When you do see the dr you have to be patient because the medication will take a little while to be at full power in your system. The neurologist also may ask for a cat scan just to make sure everything is ok. I hope it all works out. I know how frustrating it can be and how painful and scary these migraines can be.
Nail patella syndrome, osteoarthritis, complex migraines, eosinophilic esophagitis, major depressive disorder, OCD, and fibromyalgia, IBS

Meds: flovent 220 mcg, flexeril 10 mg, zonisanide 100 mg, omeprazole 40 mg, Cymbalta 60 mg,dicyclomine 20 mg, elavil, 10 mg, Xanax prn, hydrocodone prn.

alexia1
New Member


Date Joined Jan 2013
Total Posts : 6
   Posted 1/12/2013 4:03 PM (GMT -6)   
Hi my gp is very good, and hopefully he will refer me on to the correct person .I have had an mri and a carotid duplex done , when things initially started , he tried very hard to get me on the right dose of topimax I could not tolerate even a very low dose ., i probably should have been back to get more help but to be honest I was enjoying losing the side effects of the drug even though I have been crippled with my migraines fingers crossed , something will be out there to help me get beck to me!
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