DAILY AURA FOR 2 YEARS! CONSTANT DAILY VISUAL DISTURBANCE - Chronic daily migraine

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Mr1112
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Date Joined Mar 2015
Total Posts : 2
   Posted 3/17/2015 6:12 PM (GMT -7)   
Hi BTurc, thanks for your reply :)

Ive never been on any meds throughout my entire life up until the ones ive tried to help with the visual disturbance.

Never had a Bubble Study - no ones ever mentioned that to me, I'll have to research that, thank you :)

Yes, its certainly a visual phenomena I'm seeing. I really just dont understand why I get the pain too. Sounds weird but I wish i just had a big blind spot or a big black patch of vision opposed to the "living", moving, swirling, osscillating patterns I see. They exhaust me! I find it near impossible to focus on anything as its so distracting it overtakes my thought process automatically.

shawnie35
New Member


Date Joined Sep 2013
Total Posts : 8
   Posted 3/17/2015 9:28 PM (GMT -7)   
Hey Mr1112, I am so sorry to hear that you are going through this, I have constant vision problems too and it causes me so much anxiety. Do you have Facebook? There is a support group for ocular migraines and also visual snow, I am in both groups and it helps a lot to know that there are many others out there that understand how we feel. Hang in there hun ((hugs))).

Shawna

Sstteeffyy
New Member


Date Joined Apr 2015
Total Posts : 5
   Posted 4/20/2015 5:40 AM (GMT -7)   
Hello everyone :-)
My name is Stefka and I am from Bulgaria. Unfortunately my English is not as good as I wish to write all my toughts clear enough. I hope I'm gonna do it well. I also have the same problem as the author and the most of you. I could't find noone with this problem when I wrote in internet on my language. I was happy when I found you. But I regretfully found that you don't have a solution of the problem too. Last year and eight months while I was carrying my baby I dedicated myself to find a solution. Now I'm tasting everything I could find and I think I'm a bit better but it needs far much time after all.
So, I really hope I can help you.
1. This kind of migraines (and the magraines at all) very often can be caused by allergy reaction, in paticular a food intolerance (there is a difference between them). It was pretty interesting for me to find a condition called histamine intolerance. It includes lots of awful symptoms that I have: the migraine, anxiety, panic attacks, fatigue, confusion, nose and throat problems and heart racing. (There are a lot more symptoms you can learn about if you read about the histamine intolerance in the internet). The food diet which I have to be on is pretty hard for me, but I think I feel better. Of course this is just one suggestion. You can think about another allergy reactions you might have and try to avoid the allegens.
2. Speaking about the food, the raw food diet is the best thing for us to make a miracle with our bodies even if we try it for a period of time. I love the raw food and I include it in may daily menu but to be only raw is a really tough diet. We all know the migraine is a neurological condition and I will show you a movie about how this kind of diet helps a girl to beat a bipolar depression (which is a very serious problem). https://www.youtube.com/watch?v=TCcD_dM9TiE
3. Stomach digestion is a very importaint thing to work our bodies effectively so check your enzyme levels. (For example the histamine intolerance is caused by the law level of a special enzyme in our organism).
4. My be you know this but I will tell it again: test the levels of vitamine A and magnesium levels.
5. My neurologist told me that the migraines very often are related with the neck problems and pain. He told me that the migraine will return into a negligible problem if we solve my neck problems. Actually I felt pretty good for a month after he did those kind of thing with my head on left and then on right, you know what I mean :-) In my country is quite expensive to make this when I need (every 1-2 months), so I did it only 2 times but I definitely like it.
This post has took me a plenty of time (because is difficult for me to write correctly), so if I remember of enything else I will write again.
I think the allergy problems are the main causer of this kind of migraine. You can find the full information of my points in the internet.
Please, tell me if you decide to try something and let we will follow the situation.
I hope it was helpful for you. Good luck :-)

Aura is not fun
New Member


Date Joined May 2015
Total Posts : 1
   Posted 5/6/2015 9:12 AM (GMT -7)   
BT. "Dirty blood". .? Very interesting Wow, I suffer from migraines with aura however this past week every day I have had an aura migraine. This is the first time in my 53 years with having them more than once every month or couple times a year. I just returned on a 5 hour flight vacation and I wondered about something like blood clot. I do have a small flap open which was diagnosed 4 years ago but not severe enough for a shunt. I'm interested in more information. I also wondered about seasonal allergies causing the daily frequency this week?

hogheaven
New Member


Date Joined May 2015
Total Posts : 1
   Posted 5/14/2015 3:09 AM (GMT -7)   
YES YES YES ME ME ME
I WAS SO RELIEVED TO READ YOUR POST I SUFFER WITH EXACTLY THE SAME ASS YOU. IM TIRED OF GOING TO THE DOCTORS THEY DONT HAVE A CLUE WHAT LIFE IS LIKE.
MY VISION FLUTUATES UP AND DOWN ALL DAY EVERYDAY ONE MINUTE I CAN SEE CLEARLY THE NEXT I CANT SEE AT ALL.
I CANT FILL IN FORMS AS I GET THEM WRONG AS THAT EVEN SEEMS TO EFFECT THE VISUAL FIELDS. WHEN I GO SUPERMARKET SHOPPING PEOPLE THINK IM HAVING A STROKE. MY DAILY LIFE IS SO COMPRIMISED DAILY FROM ONE MINUTE TO THE NEXT . LIKE YOU I HAVE M.E AND FIBROMYALGIA BBPV AND I ALSO HAVE FLUTUATING MOBILITY PROBLEMS WITH BALANCE AND PAIN ISSUES IN MY ENTIRE BODY.
I DID AN EYE TEST AT THE DIABETIC CLINIC LAST WEEK AND WHEN SHE SAID TO READ OUT THE LETTERS THE LEFT EYE WAS FINE BUT THE RIGHT EYE READ THE LETTERS BUT THE LETTER O HAD A SQUARE AND CROSS THROUGH IT THE LETTER T HAD HORNS AND THE CENTER OF THE LETTER WAS WHITE NOT BLACK HOW IT SHOULD BE. ALL THE LETTER WERE READABLE BUT WITH EXTRA BITS THAT SHOULD NOT BE THERE.
I CAN HAVE A FEW DAYS WHERE MY HEAD DOES NOT FEEL SO MUDDLED AND MY VISION FEELS GOOD MOST OF THE DAY BUT THEN I GO FOR WEEKS FEELING TERRIBLE AND ALL I SAY IS I CANT SEE PEOPLE DONT UNDERSTAND YOU ANSWER YOUR MOBILE AND TEXT FINE ONE MINUTE THEN 10 MINUTES LATER YOU CANT EVEN SEE THE BUTTONS OR READ A TEXT.
IF ANYONE ELSE HAS DAILY AURA MIGRAINE WITH THE EXTRA AND HAS FOUND OUT WHAT IT IS PLEASE PLEASE POST AT MY WITS END WITH DOCTORS FOR OVER 5 YEARS !!!

Karen
New Member


Date Joined Jun 2015
Total Posts : 2
   Posted 6/14/2015 4:29 AM (GMT -7)   
HI all. I had eye migraines for over a year. One day I was at the doctor for something and I told him about this eye thing. Trying to explain it is difficult, but he knew exactly was I was talking about. He told me to take Magnesium. I started taking 1000 mg a day and I never had one again. Please, tell anyone you know who suffers with his!
Thanks,
Karen

Buster1
Regular Member


Date Joined Apr 2015
Total Posts : 36
   Posted 6/14/2015 6:32 AM (GMT -7)   
I just thought I'd add that I have had a fair bit of headaches over the past year too, some with visual aura or spots.

HAVE YOU HAD YOUR HORMONES CHECKED!?

For me, it turns out after months of testing, I have low testosterone and low Vitamin D. I have begun testosterone replacement therapy and heavy Vit D replacement...and my headaches and occasional visual migraines have tapered back. I hope they go away entirely when I get my levels back to normal.

redbull007
New Member


Date Joined Aug 2014
Total Posts : 4
   Posted 6/14/2015 7:51 AM (GMT -7)   
As with karen, Magnesium (Mg) totally cured my constant visual migraine (described on Pg.2).

Magnesium is found to be severely deficient in more than 50% migraine sufferers due to other health or diet issues. Check out hair Mercury and Aluminum levels. Mercury blocks methylation processes that depletes toxins from the body such as the Mercury itself and Aluminum, while Aluminum binds to magnesium receptors and depletes Magnesium and Calcium from the body, including from the brain.

Aluminum mainly comes from anti-caking agents (ALL cooking powders and table salts), making almost any industry-salted food contaminated, pesticides and fungicides (such as Cryolite), which in fact reaches ALL vegetables, fruits and nuts by direct spreading or recycled soil, cheap, low quality cookware, especially those one-time cheap stuff such as foils (choose stainless steel), some deodorants (look for ingredients), the vast majority of food cans (tuna, soda cans etc.), toothpastes bags (buy plastic bags - Al-free and fluoride-free) and tap water (though to a very small extent). Mercury is abundant in fungicides and pesticides, as well as in many food additives, but much more in sea food, especially sword fish such as tuna.

Look out for these killers heavy metals. All sort of problems arise with their accumulation in the body, as hormonal issues such as low testosterone with high stress levels are no exceptions. If suspected, consult with a specialist or with your doctor about a detox/blocked methylation program. Also consult about taking zinc supplement (preferably - picolinate) because of high copper intake common western diets, which depletes zinc.

Add lemon juice to your diet, as citric acid is the most effective way to remove Aluminum in the cellular level. Drink beetroot juice to boost your liver detox capability, eat lots of vitamin C & E and enough beta-carotane (non-meat vitamin A). Don't eat chocolate and cocoa, or eat too much potatoes, legumes or grains because of their high copper levels. Avoid too much sugar and sodium.

Avoid touching too much thermal papers such as receipts since they contain sky-high amounts of the migraine-causing, hormonal disrupting, deadly Bisphenol-A.

Maintain a healthy diet by using the following guidelines for a 2000 calorie per day:
http://www.ianrpubs.unl.edu/live/g1981/build/g1981.pdf

redbull007
New Member


Date Joined Aug 2014
Total Posts : 4
   Posted 6/14/2015 10:54 AM (GMT -7)   
Keep in mind that too much Magnesium will depletes calcium, as too much calcium will lodge in the brain and initiates migraines attacks. Daily intakes of these two minerals must be kept from 1:1 to 1:2 Magnesium:Calcium, preferably around 1:1.5. For example, 350 mg magnesium allows no more than 525 mg calcium. The calcium intake depends on magnesium intake and not vice versa.

Women are often advised to take larger amounts of calcium, and are literally being killed by doing this. The differences in daily intake values recommendations between USA and the rest of the world must be of big interest to anyone who seeks to solve a disease that is built around these two mineral cellular values. See MIGRAINE in the symptoms lists of high-calcium intake:
http://healyourselfathome.com/HOW/NEWSTARTS/1_NUTRITION/MINERALS/MAGNESIUM/MAGNESIUM_FUNCTIONS/mg_calcium_regulation_prevents_calcification.aspx
And read this:
http://deliciousliving.com/blog/time-ditch-21-calcium-magnesium-ratio

OR look it up anywhere else.

wdtony
New Member


Date Joined Jun 2015
Total Posts : 2
   Posted 6/19/2015 2:30 AM (GMT -7)   
Possible solution?

Migraines with aura since age 14, sporadic. Male, 43

For one year I changed many aspects of my lifestyle and had ZERO migraines that year. I was baffled. I was 40 then.

Since then I have gotten married, moved, adopted my wife's sleeping schedule and have a child on the way so my lifestyle has reverted back to having the blasted migraines.

I have aura spots every day now for the last year. I don't always get a headache, in fact it's rare. But I have some really bad episodes. i am disabled by the state I am in now.

I plan to return to my other lifestyle that provided success.

I controlled my sleep, diet, sleep and wake cues, bedroom temperature, meal times and amounts, exercise regimen, light control and limit man made light, diminished stress level, and I was very strict and did not alter my lifestyle for even one day.

In this society it is almost impossible to change what I did, but it worked for me. I started by reading thoroughly about circadian rhythms and cues to increase sleep efficiency. From there I started to change other aspects according to the best science I could find... and what I considered to be the most natural.

Contact me for more info or to share any important info on this subject.

Sstteeffyy
New Member


Date Joined Apr 2015
Total Posts : 5
   Posted 6/21/2015 3:10 AM (GMT -7)   
Wdtony, well done! :-) I don't know how to contact you?

wdtony
New Member


Date Joined Jun 2015
Total Posts : 2
   Posted 6/21/2015 9:20 PM (GMT -7)   
Sorry, new here. I didn't know how people contact each other on this forum.

My email: wdtony@hotmail.com

dan365
New Member


Date Joined Sep 2015
Total Posts : 1
   Posted 9/1/2015 12:35 PM (GMT -7)   
Hi all. I've had big problems with my vision the last couple of years, I've been to see 4 eye doctors, 2 neurologists, took lots of tablets for migraines with aura - lamotrigine, amytril, propranolol, and others. Tried acupuncture, eye physio and more.

Recently I stopped taking Lamotrigine (2 x 50mg a day) and am currently not taking anything.

Lately my vision has somehow got even worse. I have light sensitivity but the biggest problem seems to be repeating of objects / words and flashing around everything. It used to be bad when I used computers but lately it's starting to happen with everything. For example, it's got so bad that today even when looking at a normal paper folder, when looking away I could still the the text heading from it. When I see a shirt or anything with a pattern on, I look away and can still see flashes of it ( like when you look into the sun and look away). I often get throbbing like a pulsating heartbeat by my temples accompanied with it. I get flashing around everything and it's making it so hard to concentrate or do anything! Every plain - especially white, and blue sky flashes severely. It's very hard to describe what I mean but I hope someone understands!

Does anyone have any idea what could be the cause of this and i'm especially interested as to what the name of a condition is that makes u see text/patterns after looking away from it so often.

Thanks for any help!

njmiddle
New Member


Date Joined Sep 2015
Total Posts : 1
   Posted 9/5/2015 1:53 AM (GMT -7)   
Hi Everyone,

For the last two years, I have had a constant visual aura. Before that, I had only had 2-3 migraines. My neurologist calls it 'after image', and the way I describe it to people is that it is kind of like how after looking at a black and white image, you can still see it for a second when you close your eyes. I see it with everything I look at though, which is making life really difficult. I can't study and I'm worried about what I can or can't see when I'm driving. Everything I look at leaves a glowing image behind, which is especially apparent in rooms with white walls and days with a really clear sky.

I've been taking depakote daily without any results, so I've just started magnesium to see if that helps. Have any more people had success with magnesium? I've had an MRI and it was completely clear, so it's nothing too sinister.

I'm really excited about this forum, I haven't found anyone else that has similar symptoms, and my neurologists seems completely stumped.

Nicole

Sstteeffyy
New Member


Date Joined Apr 2015
Total Posts : 5
   Posted 9/11/2015 12:30 AM (GMT -7)   
Hello Keren, I have started with the magnesium. I was ok about 3 months, but the doctors said that it has been stopped for a while (at least for a month). I had stopped it for a week. Then I have started again but yesterday...Bummmm! A blind spot! sad Now I am afraid again. I am back at the begining... Please tell me have you made some rests between the periods of taking magnesium? And have you made some changing in the dosage? Have you taken calcium? Please tell us your system of taking these minerals!

Sstteeffyy
New Member


Date Joined Apr 2015
Total Posts : 5
   Posted 9/11/2015 12:39 AM (GMT -7)   
Everyone, work harder on your food diet. I have a gluten intolerance. Last month I just ruined my diet, I also was stressed I didn't sleep well. I had a really awful and long - lasting headache. I think these things were the reason to have a blind spot again. But especially the diet!!! Good luck!

DrMikeyCares4U
New Member


Date Joined Jan 2016
Total Posts : 1
   Posted 1/22/2016 3:34 PM (GMT -7)   
I had infrequent migraines for several years without aura especially when driving long distances in automobile. Visual aura mostly flashing techopsia/floaters (small to large) often followed by H/A pain from late 2006 to 2013. May 2013 I had umbilical hernia repair surgery and July 2013 underwent surgery for acute chord rupture of posterior flap of mitral valve (heart). From the moment I woke up after my surgery in July 2013 I began having daily visual disturbances and occasionally my tongue would go numb. I went through cardiac rehab and would mostly experience either flashing floaters or double vision with head pain on top left of my head (was taking med lopressor which was d/c'd about Dec. 2013). I continued to exercise at Gym after being d/c'd from Rehab. Fainted on a trip early January 2014 and noticed increasing blurry vision. By May 2014 my face was becoming numb, my legs mildly "wobbly," fatigue, in addition to other visual symptoms of which double vision was the most annoying. I am a physician so I knew what was going on, but the face numbness was very alarming and I went for an MRI (neg), went to Ophthalmologist (eyes healthy). I was able to work, but the visual and neurological symptoms were quite annoying (some days my mouth/teeth can remain numb all day). Eventually early 2015 I went to see a Neurologist (also a migraine sufferer). I was put on Amiloride (diuretic) 5 mg. Neurologist said there was some research that showed amiloride effectiveness for Aura without pain and the cortical wave of depression. I didn't think it helped and didn't like the long term effects on kidneys and electrolytes (potassium) so I stopped taking it. Neuro was fine with this and we agreed I would continue with Feverfew herb and other whole food supplements I was taking (I don't take baby aspirin either). Butterbur is another good herb and vitamin B2 and mineral magnesium. We discussed how allergies might be a trigger in addition to other triggers but no rhyme or reason as to when symptoms appear. By the way, Neurologist said my MRI was consistent with migraines. I moved to the beach in Florida, alas, symptoms still around. Some days and weeks are better than others, but I rarely go through a day without some visual disturbance. I exercise regularly which seems to help but if I overdue it I can have a few bad days. I have considered a variety of causes from the physiological effects of having my heart repaired to the anesthesia and meds I was on after my surgery. No doc believes my heart is related to my migraine aura symptoms, and none will comment on the effects of the anesthesia or meds post surgery. One of my former patients is a Orthopedic surg./Rehab asst (also a migraine sufferer) who is convinced that these symptoms are made worse by anesthesia. I realize this is a "brain" neurological condition, but it was just too coincidental that my symptoms became so dramatically worse after these two surgeries especially the heart surgery (no stroke, no AFib, no TIA). My mom suffered from migraines so this all can be inherited :-( I don't wish this on anyone, but feel somewhat comforted to know I am not alone. Please keep in touch y'all.

Post Edited (DrMikeyCares4U) : 1/22/2016 4:18:07 PM (GMT-7)


itsJessCA
New Member


Date Joined Mar 2016
Total Posts : 1
   Posted 3/30/2016 12:36 PM (GMT -7)   
That sounds absolutely miserable. I just had my third ever "silent migrane" last night. The prior one was over a year ago and the first one was about five years ago. The first was by far the scariest with major visual disturbances. The second was lesser symptoms but it occured while I was driving at night and I had to pull over. Last night's event started with a small aura, then I got the black and white flashy zig zags that became more and more prominent around my right eye. It lasted for about 20 minutes. When it cleared up, my peripheral on the right side had some void spots, but otherwise I was back to normal. I did get a mild headache that's followed me into today as well.

I haven't been able to identify a particular trigger. Since the episodes have been so spread out, it's been scary and annoying but not terribly detrimental. I am going to set an appointment to talk to my doctor about it soon, just to make sure there's nothing more serious going on. Anyone else get these as infrequently as I do?

SuQ62
New Member


Date Joined Mar 2016
Total Posts : 2
   Posted 3/31/2016 9:45 AM (GMT -7)   
I am also getting daily auras. Not painful, just visual disturbances. I went to the eye doc a year ago and was told all is okay. I called to make another appt this year and was told it happens and that I should contact primary for follow up if I want. Here are a few things I have to wonder about. I have constant neck pain. Is there a pinched nerve? I spend too much time on the computer. I have stress. I do get outside daily and walk. I am afraid to drive anywhere because there is no warning that it's about it happen. It just starts as fuzzy blurred vision and goes into the jagged auro. The last two days it was only about 15 minutes each day. Some have lasted for 1/2 hour or longer. What is going on! I do not like the idea of meds. Maybe I will minimize my computer usage and see if that helps.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7144
   Posted 3/31/2016 11:22 AM (GMT -7)   
Auras, can be a sign of silent migrianes. Sometimes these will progress into pain.

Just FYI. check out Resource thread at the top of forum and look for migraine diet. Might help.

Peace
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Ol
New Member


Date Joined Apr 2016
Total Posts : 2
   Posted 4/7/2016 1:37 PM (GMT -7)   
Hello everyone,
How refreshing to know I'm not alone. I've had migraine with aura and visual disturbances since aged 16. I'm now 43 and not sure how I've got through work over the years, looking back. My mind never tires of panicking, thinking I'm having a migraine when in fact it's just the visual disturbance thing pulling my leg. I panic about having migraine away from home as I lose my speech and it's so embarrassing. It's super hard to do my job with this as my eyes as so sensitive to the light and the migraines just come on without warning. That's without even going onto the constant aura I have which makes reading things really hard and I'm in constant panic it's a migraine attack as it's the same symptom but milder.
I have had stretches of years without constant aura, just the migraines, not sure why or if I did anything differently. Today I'm just getting over my 3rd migraine in 24 hours and my eyes are very bad now and will be for a few weeks then they'll subside to mild aura again on a constant. I'm feeling so down about this and victimised but reading this, you're all absolute troopers and if you can fight through it I can too. I'm single, been single most my life and wish I had a living husband to pull me through times like this.
I started Accupuncture 7 sessions ago and have been going through what's called healing crisis for the last 2 months where my emotions are off the rails etc. Basically I'm worse than I started but my accupunturist says it's because we're trying to ask the body to take another route when it's walked down the wrong path for 30 years. So I need to be patient. I'll let you know if it helps.
I am giving each and everyone of you a huge huge hug, to say to you, I'm with you, I'm riding this awful thing with you and don't let it beat you. Xx

Ol
New Member


Date Joined Apr 2016
Total Posts : 2
   Posted 4/9/2016 3:21 AM (GMT -7)   
Hello everyone,

I'm on the same journey as you all and suffer anxiety which feels like an awful mix. I just wanted to ask some questions;
These questions may seem far fetched but I'm just trying to get answers to our problems or shed some light.
-Does everyone have blue eyes on here? Blue eyes are more sensitive and I wonder if there's a link.
- does any visual symptom feel like a throbbing vein in the visual field? I'm wondering if our visual symptom is a severed nerve result in the brain. I've had aura on and off for years and it sometimes feels like a vein throbbing, or should I say, looks like. Anyone have similar?
- my menstrual cycle is a deffo aye link to my migraines, what about you?
- has anyone found relief from aura with meds? I haven't yet.
- has anyone tried Accupuncture for aura and migraine? I'm on my 7th session and my whole world has been turned upside down as I've been an emotional wreck, my body is set in its ways so she's had to ease off a little but assures me it will work, I'll let you know.

Mikeyfear
New Member


Date Joined Jul 2014
Total Posts : 5
   Posted 4/13/2016 5:30 AM (GMT -7)   
Hello My Lovely, I know it has been almost 5 years since this thread began. But I had to write you since you're so enthusiastic in trying to find others with the same thing.

In 2014 I started to get aura with temple pain. I was suffering about 1 or 2 aura attacks with migraine every week. It was an incredibly hard year for me. I almost didn't make it through. I was very seriously trying to weigh the balances between life and death. Everyday was a struggle just to get out of bed knowing that any chance of achieving happiness was bleak. So I saw a neurologist. She gave me the same spiel any doctor would give and wrote a persciption for Topiramate which did nothing other then dampen my cognitive abilities. So I threw the pills in the trash. This lasted all year up until Dec 3rd of 2014.

On Dec 3 of 2014 I decided to make some life changes. Eliminated a great portion of salt, and I made sure to exercise. Despite the migraine pain, I decided to push myself. I biked 30 miles. To my surprise, I realized I haven't had a single attack for an entire week. So I continued this exercise regiment. From that day, I went 6 months without a single attack!

My next attack was May 25th of 2015. It was short lived thankfully. But this was probably due to me becoming lazy. So I continued to exercise and was successfully able to fend off other attacks up until Octobor. In Octobor I had 2 attacks back to back with a 24 hour period between them.

I have stopped exercising for the period up until this very day. On March 29th I was hit hard! I suffered the typical blindness hallucination and flicking tasle effect. The aura lasted for 20 minutes. Proceeding it, my tounge, mouth left hand and left testie went numb. So I decided to rush to the ER to make sure I wasn't suffering a stroke. I received X-rays which showed no abnormalities. Blood work which showed low K values. Essentially I was deficient in potassium. I was hypokalemic.

Since March 29th I have been suffering blindness hallucinations almost everyday and I feel like it's getting worse. I have to get out there and exercise again! I hope at one point you see this and we can connect. Meeting like minded people is very difficult. We are a different breed of people! I have a group on Facebook "Official Migraine Support Group" If anyone is reading this, feel free to join. I love all of you who suffer!

Post Edited (Mikeyfear) : 4/13/2016 6:34:22 AM (GMT-6)


Mikeyfear
New Member


Date Joined Jul 2014
Total Posts : 5
   Posted 8/16/2016 10:32 PM (GMT -7)   
Just checking back in to see if you ever read this? Please if you have read this please, contact me. I hope to contact you one day. This has completely changed my life :( Its very hard to live with. Its a constant struggle.

Marinakaye
New Member


Date Joined Sep 2016
Total Posts : 1
   Posted 9/23/2016 8:17 AM (GMT -7)   
I too have have unexplained visual distortion and dizziness related on migraine for 11 years in episodes. Once lasting 2 years straight and since then jn 3 month or sometimes less blocks. It's usually triggered by me being ill . For instance I've just had terrible blu and now I'm in another episode
. It's a complete and utter nightmare.. All the symptoms ypu describe are the sa me. Even the things like bright sunlight making it more bearable and dull light making it worse. I struggle yo find sunglasses or even plain glasses to make looking at anything bearable.it's easy to hide away but ive found the only way to get through without losing your mind is to carry on with your normal.life...don't get me wrong it is a nightmarand i plunge into despair a lot when on my own . You will feel demented whole you try to act normal BUT EVENTUALLY it fades out and you're free of it again. I've seen so.many neurologists the last diagnoses is persistent migraine aura ...who knows..stay off daily drugs and your brain will correct. Stay as well as you can because bad health always throws be back into it.
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