18 Y/o with chronic headaches, looking for someone to talk to

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swimwithme
New Member


Date Joined Apr 2013
Total Posts : 3
   Posted 4/10/2013 6:08 AM (GMT -6)   
I don't even know where to begin. Long story short, I've had these headaches for years, had mris, xrays, been to multiple neurologists, and been on every preventive medication you can imagine.
The problem is, nothing works. My symptoms don't match any normal "headaches". I barely know how to describe it, Its just like my brain is on fire 24/7. Doctors don't know what to do with me, and my parents are just done dealing with it.
The pain, combined with having NO ONE who understands what I'm going through, and having no one to talk to, leads to soul crushing depression. If i hadn't met my wonderful girlfriend online, who just happened to live a few hours away, i probably would have killed myself long ago.
Don't freak out or anything though, I'm not suicidal. I would never leave her, i love her too much to do that.
I'm at a point where I'm in bed most of the day, and only get up to take way more Advil/Excedrin than any human should, even though i know it never works, i just hope maybe this time it will.
No one I've met understands what I'm going through.
They either think I'm using it as a excuse, so that i can stay in my room and not do anything. Or that I'm a druggie who just wants to take codeine my whole life.
Because of this, I've just stopped talking to people about it.
I just stay to myself, and keep it bottled up inside.
All i want is someone who understands me to talk to.
Taking codeine was one of the few times I've felt normal, but no one has prescribed it to me, i just borrowed some from an aunt who had it from an old leg surgery, when i was in extremely unbearable pain.
The problem is no one seems willing to prescribe anything more than basic anti-inflammatories for headaches, they just don't see it as something that is that serious.
The pain i go through is indescribable, and I've found no one, online or in real life that goes through anything like it, and i don't know what to do.
Is there any hope for me?

xrunnerx08
Regular Member


Date Joined Aug 2012
Total Posts : 91
   Posted 4/10/2013 1:08 PM (GMT -6)   
Go to a doctor. Say you found a tick on your head two weeks ago and have been having bad headaches. Dont ask, TELL him, to order a Lyme Western Blot, NOT an Elisa test. When the results come back, he will most likely tell you its negative since most come up negative 70% of the time. Make sure you get a copy of the Lyme test. Look to see if ANY bands came back present or positive. If so, you need to LLMD.

Same road as you....MRI's, CT scans, allergist, doctors, chiro, etc...

I came up negative but with many bands that only react to Lyme bacteria as well as several tick-borne co-infections. 75% of the people on this message board have Lyme and either don't know it and think Lyme is only stiff joints/sore muscles or their test came back "negative."


I suggest you come to our message board. http://flash.lymenet.org/ubb/ultimatebb.php/forum/1

My name is Tony. I've had the headache you have. I have bad pressure/very dull headache. It never really goes away.

KaniCrab
New Member


Date Joined Apr 2013
Total Posts : 1
   Posted 4/10/2013 1:19 PM (GMT -6)   
Hey
swimwithme,

I'm asking myself the same question. Writing this was hard enough with a headache but worth explaining myself to you.

I suffer from chronic daily headaches much like yours. I have tried almost everything imaginable to cure it. No medicine, herbal remedies, or even spiritual healers could fix it. Took MRI's, Blood tests, and more. But everything was in check. Even went to the Emergency Room this past Monday to take these very powerful shots. One being a narcotic. You name it, i did it.

My mother does NOT understand what i am going through nor do most of my friends or relatives. And often we get into heated arguments. Mostly about my attendance at school. She tells me to try harder to make it to school and be like other people she knows with Migraine headaches that just cope with it. After, i have a hard time responding because i just feel worthless and that i don't try hard enough. I know my mother wants whats best, loves me and just wants to cure my headaches but just demotes me. It threw me into a deep depression after awhile.

But just like you a year ago i met a wonderful girlfriend who keeps me alive and motivated. Although i was never suicidal, she made me feel alive and well again at times. For the past week and a half, I have been absent from school. I'm sick and tired of feeling like this and got into another terrible argument this morning. She called herself a "Failure" because she could not understand her sons pain and for being responsible for my negativity. It made me feel like a failure as a son.

I decided to go on the internet to find help or someone to talk to that understands and knows my pain. Both emotionally and physically.

I also don't know anybody that suffers from headaches as bad as mine and can relate to me. When i came looking i just so happened to stumble upon your post and it made me feel better knowing i'm not the only one out there. I can relate so much to you in this situation and i would also like to. I would gladly love to talk you.

swimwithme
New Member


Date Joined Apr 2013
Total Posts : 3
   Posted 4/12/2013 5:01 PM (GMT -6)   
It's scary how similar your story is.
Honestly i don't think anyone is gonna find a cure for my problem.
There's too many diseases in this world that have ZERO cure or preventive anything.
At the rate I'm going now, I can barely sleep, or eat.
Work or school isn't anywhere near the realm of possibility.
If i just had some kind of opioid to take when my brain feels like it's going to explode every day, i could do sooooo much!
But no one get's that.
Like do i have to find some shady ass doctor just to get something that i NEED so i don't have to be in so much pain?
So stupid.

nspeedracer
Regular Member


Date Joined Feb 2013
Total Posts : 161
   Posted 4/21/2013 2:34 PM (GMT -6)   
you need a doc that gives you not only pain killers but preventative meds
and test for that lyme and babesia.

abelieverpm
New Member


Date Joined Apr 2013
Total Posts : 4
   Posted 4/23/2013 5:16 PM (GMT -6)   
Hey swimwithme,
I can relate to your situation. I, too, suffer from chronic headache. It started when I put myself through severe depression. I allowed myself to think hopelessly. In that mindset, THE HEADACHE began. The severe pain was 24/7 and it was like the frontal lobe of my brain was on fire. There were times I could not sleep at night rolling around in my bed in pain. Whatever treatment I tried didn't work.
   There's much more to the story, but I must say that there is hope for us all! Though I am not healed of this fully yet (the intensity of the pain and the severity of the symptoms have lessened), I KNOW that Jesus is true and real and that NOTHING is impossible for Him! I've had an awesome and real relationship with God through Christ and I know that when everything else fails, He wants us to learn and know that He will never fail us if we LOOK to Him! If you don't have faith, I encourage you to read God's wonderful message in the Bible of healing through Jesus  (start in the New Testament). 
  I write this because I am one of the few people that can relate to your pain and suffering, but I want you to know that there is a God that truly loves you and DOES offer you a powerful hope! This is what Jesus died for on the cross!
 
                                                      Sincerely,  Patrick

Kathykhatiza
Regular Member


Date Joined Apr 2013
Total Posts : 24
   Posted 4/24/2013 12:03 AM (GMT -6)   
abelieverpm u dont take meds and how long did u suffer for iam only 22 and want to be married hae kids and go to school but i feel like my symptoms always stop me

abelieverpm
New Member


Date Joined Apr 2013
Total Posts : 4
   Posted 9/25/2013 9:21 AM (GMT -6)   
Kathy! I am so sorry for not returning to this forum to see if you responded! I admit
I foolishly did not do all I could medically at first to treat my problem. Knowing that
my situation was related to my depression, I still thought it was connected to sinus
problems as well and went that route instead of the psychiatric route. Other directions
of treatment were also unsuccessful (i.e. allergy,...).
   Pain medications did not help me, but through it all my real relationship with God
through Christ Jesus kept me on life's true foundation with hope! I knew that nothing
was impossible for the God living in my heart!
   If you've not yet accepted the Spirit of God into your heart through renouncing sin
and trusting WITH YOUR HEART Jesus' sacrifice for your forgiveness and making you a
new person, DO SO! And trust Jesus to heal you in the way He has planned. HE IS
FAITHFUL to see you through this! It could be an immediate miracle! Read the New
Testament and hold onto God's promises BY FAITH because I know they are words
from God and GOD DOES NOT LIE! Believe what He has communicated to mankind.
It's all true!
   God loves you; He had Jesus die for you to give you life- life to the full- it says!
Believe it and receive it!
                                                                    Sincerely,
                                                                                      Patrick
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