Scintillating Scotoma w/o headache pls help

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Regular Member

Date Joined Apr 2013
Total Posts : 252
   Posted 4/23/2013 4:45 AM (GMT -6)   
I'm 26 and had my first episode of scintillating scotoma or visual migraine November of last year. Then I had my second episode of it just this month of April. I don't have enough money yet to get an MRI/MRA to lessen my worries or go to a doctor. What causes them really? Does it always indicates that something serious is already happening with my health especially my brain? I'm really afraid I'm in high risk of having TIA or stroke? I don't get headaches with it, just the weird visual stuff. I don't remember having them before.

Post Edited (Jojanxiety) : 4/23/2013 3:59:04 AM (GMT-6)

Regular Member

Date Joined Oct 2012
Total Posts : 25
   Posted 4/23/2013 4:58 AM (GMT -6)   
I do not know the technical cause of auras that precede migraines but I get them too. Sometimes it's blurry vision sometimes it's double vision and I could go on. Not everyone experience aura but I know for sure I am getting a migraine when I get one. My neuro told me there is not much you can do to stop them except lay down in a quiet dark place and use ice. I chalk it up to just one of those symptoms of migraines just like nausea and puking. Triptans do not work well with me so not sure if they will help you with aura. I have used every medicine out there and so far I use Fioricet with codeine, pain meds like Percoset or a medication you put up your nose called migranal. I put them in the order from weakest to strongest depending on how bad my migraine is. Hope you feel better.
Mother of three beautiful children ages 12, 7 & 6 and the wife of a great husband who really doesn't understand chronic pain.

Sufferer of Bipolar I, Chronic Pain, Migraines, anxiety and just diagnosed with MS.

Regular Member

Date Joined Apr 2013
Total Posts : 252
   Posted 4/23/2013 5:07 AM (GMT -6)   
This really scares me because I don't get pain or headache with it at all though it's better without them. The visual stuff is like rainbow zigzag lines that starts in the middle of my vision then slowly moving outwards until it's gone. I can see them even when my eyes are closed. It happened for just 15-20 mins. So scary I don't want to end up having mini strokes or a major stroke. I already changed my lifestyle (less sodium, done some exercise, lost weight, lots of water), this just brings anxiety to me since I can't go to a hospital and get checked up.

New Member

Date Joined Aug 2013
Total Posts : 1
   Posted 8/28/2013 6:02 PM (GMT -6)   
Jojanxiety: by chance I came across one of your other posts and seeing if it was related, stumbled by this one about scintillating scotoma, something that I have also experienced.

Seeing your name crop up twice on the vastness of the internet had to be a sign that we've got something in common here!

I get both the visual pulse shadow phenomenon, and I recently had my 4th episode of Scintillating Scotoma, which I'm so far putting down to an aura of Ocular Migraine.

The first couple of times it happened I got very scared I was going blind. The 2nd time I got it I also experienced numbness in my left hand, which gradually moved up to the left side of my mouth.

Since this was a new development I went to the doctor who said it was consistent with migraine. Even though the experience is as scary as hell, it's relieving to see it explained rationally as a normal symptom of migraine, which is a common and not-so-scary condition. I have found much evidence on the internet to corroborate this.

So we have a rational, benign explanation for the visual disturbances caused by migraine.

With regards to the shadow in vision with heartbeat, I've noticed it occasionally, more so recently than before, but have never had it investigated. That said, I had a normal Optician checkup earlier this year and that passed without issue.

Do you also experience similar shadowing when moving your eyes to the far left or right? I get this, and this thread describes it well, where others have seen a similar thing.

Anxiety and stress are terrible things, and it's very hard to combat them, but they are usually the cause of all of most of these issues.

Final thing for now: do you find you get irritated or feel enraged by mundane usual noises made by people in your life? Maybe eating, sniffing, speaking deeply, and feel it stresses you out? If so you may want to read up on misophonia. Long shot but it's something I've come to realise may be an issue for me, and wondered if this was at all linked.
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