Prednisone for migraine...and venting

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sparkleplenty
Veteran Member


Date Joined Nov 2010
Total Posts : 567
   Posted 5/11/2013 11:47 PM (GMT -6)   
Hi there--

I haven't posted here before. I've had occasional migraines since I hit puberty. Last year I started getting 4-5 day long ones after I started cimzia for my Crohn's disease. I finally went to a neurologist for the first time. We tried verapamil and inderal as a prophylactic, but I didn't tolerate them very well. After about 6 or so months I stopped getting the multi-day migraines so the neurologist agreed to just let me try imitrex and see how it went.

In January I started getting multi-day migraines again either right before or as my period started. I tried some all natural progesterone cream on the advice from my gyn, and it helped the first month, but not since. So I saw the neurologist again this past week and he suggested trying nortriptyline (25mg) and seeing if that helps.

I saw him on day 3 of a migraine spell. I wound up calling him two days later because I was still having a migraine. He prescribed a round of prednisone. I've been on pred for my Crohn's several times. I don't tolerate it very well--I get insomnia, irritable, and super moody. I figured I'd bite the bullet and do it because this was getting pretty ridiculous. However, I didn't realize it would be a 12-day course until I picked up the prescription. I called the next day and asked if there was anyway I could take a smaller dose for less time. He was very unsympathetic and told me the nortriptyline should help counter act some of the side effects I normally feel.

Well...it's not helping if anything I think the nortriptyline is making me even more irritable and anxious. I don't have a good history of tolerating antidepressants, but figured I'd try this since it would be a low dose. I am not helping since I decided that I couldn't tolerate 40mg of pred for 3 days, then 30 for 3, and so on. So I decided to try just 40, and then 30, and then step down by 5mg each day. One of my friends gets migraines and her neurologist has given her the medrol packs so it was a shorter course and lower dosage too. How long does it take the pred to kick in? Have I made this ineffective by trying to shorten the duration and dosage?

I don't know that there's anything to do. But do you have any suggestions to stop this migraine cycle? Do you have any suggestions for stopping the hormonal trigger?

I am now on day 7 of a migraine and beside myself. While I appreciate any suggestions, I think I mostly needed to vent.
Diagnosed w/Crohn's in 2005. Meds: pentasa, synthroid, allergy meds, B-12 (liquid), multi-vitamin, probiotics, glutamine, bcq, migraine meds prn, and xanax, and vicodin prn. No surgeries.

Have tried: sulfasalazine, Asacol, entocort, imuran, humira, remicade (serious joint pain/fatigue stopped after 2 doses), 6MP, cimzia

nspeedracer
Regular Member


Date Joined Feb 2013
Total Posts : 161
   Posted 5/14/2013 1:57 AM (GMT -6)   
have you ever been tested for lyme? i cant emphasize it enough, lyme, or babesia rather, caused my illnesses. constant headaches, migraines, anxiety, insomnia, joint pain, fatigue, not sure about chrones but it gets misdiagnosed as just about everything there is from MS to ALS and fibromyalgia. the only test you want is called western blot and only one positive band means positive.
ive taken all the meds youve named and none gave me relief, i went thru it for 3 years till i found the lyme and treated babesia with antimalarials. it saved my life. i cant express this enough to fellow head pain sufferers. im going to sound like a broken record around here, but if i help ONE person dx this and feel better, its worth it.
good luck

sparkleplenty
Veteran Member


Date Joined Nov 2010
Total Posts : 567
   Posted 5/15/2013 7:12 PM (GMT -6)   
Hmm...I'll mention it to my PCP the next time I go in. I don't think I am at risk for it, but it never hurts to check it out! Thanks!
Diagnosed w/Crohn's in 2005. Meds: pentasa, synthroid, allergy meds, B-12 (liquid), multi-vitamin, probiotics, glutamine, bcq, migraine meds prn, and xanax, and vicodin prn. No surgeries.

Have tried: sulfasalazine, Asacol, entocort, imuran, humira, remicade (serious joint pain/fatigue stopped after 2 doses), 6MP, cimzia
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