Cerebral Spinal Fluid Leaks (Brain Fluid Leak) ?????

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Jesus ❤️
Regular Member


Date Joined May 2013
Total Posts : 35
   Posted 5/26/2013 9:46 AM (GMT -6)   
Any comments?
Heard of the condition?
CSF
idea 💭

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16732
   Posted 5/29/2013 12:56 AM (GMT -6)   
Nope, never heard of it.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Lialda (2400mg) + Canasa (1g PM)

Jesus ❤️
Regular Member


Date Joined May 2013
Total Posts : 35
   Posted 5/29/2013 3:11 AM (GMT -6)   
I've had it & it's not very nice. I've found someone else who's had it like me through this site.
I'm not alone anymore.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16732
   Posted 5/29/2013 9:16 AM (GMT -6)   
I am happy you found someone Angel. I wish neither of you had this condition. It doesn't sound nice at all :(
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Lialda (2400mg) + Canasa (1g PM)

Jesus ❤️
Regular Member


Date Joined May 2013
Total Posts : 35
   Posted 5/29/2013 8:40 PM (GMT -6)   
Dear notsosicklygirl,
Thank you for your kind message.
It's nice to talk to others who are experiencing many other medical problems.
What medical condition do you suffer from?
It's not nice having it. Unfortunately idiot egotistical ignorant neurologists ignored all my serious symptoms for nearly 2 years. Said I only had migraine headaches. This lead to Brainstem & cerebellum herniation out the back of my head. This has caused substantial disabilities that I'm now trying to cope with. It sucks!
It's a concern that not only here in Australia but over the globe people are being treated very poor by doctors & specialists.
It's only been 18 months since my complex surgery & it's very slow recovery for me.
I wish for everyone on this planet to have no pain or sickness. That would be great.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16732
   Posted 5/29/2013 10:15 PM (GMT -6)   
You're so sweet Angel. I have ulcerative colitis, migraines, exhaustion and LPR. I guess all in all I am thankful I haven't been in bad shape lately, the most bothersome thing i am dealign with right now is the LPR (constant throat clearing) and fatigue. When I was getting migraines every few days and running to the toilet things were much worse. I wish you a full recovery.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Lialda (2400mg) + Canasa (1g PM)

Jesus ❤️
Regular Member


Date Joined May 2013
Total Posts : 35
   Posted 5/30/2013 4:02 AM (GMT -6)   
It's very uncomfortable having the condition you have.
I hope your variety of medications assist with the symptoms.
Migraines are shocking. They interfere with basic thoughts & simple activities. I have suffered them due to my food allergies, women's hormones.
The thing about migraines are that they come & go after no more than 72 hours.
The idiot neurologists that I saw totally ignored the massive pressure pain in my head 24/7 with no relief for nearly 2 years. This is why my recovery is slow due to the damage to my brain & cranial nerves.
I do hope one day I can return to my university studies to complete my double degree.
It's very disturbing knowing that specialist who are supposed to specialise in the brain are incapable of using their own brains to help innocent people.
I wish you all the best in recovery & quality of life.
Take Care.
Angel 99
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 9:06 AM (GMT -6)
There are a total of 3,005,833 posts in 329,268 threads.
View Active Threads


Who's Online
This forum has 161807 registered members. Please welcome our newest member, Wimp7755.
238 Guest(s), 10 Registered Member(s) are currently online.  Details
BossJ, oceanfisher58, MG0351, cashlessclay, sebreg, browntrout, zack36, 61Impala, franko63, (Seashell)