I had this condition and I'm sorry to say very few people treat it. After researching, I found Dr. Wouter Schevink, a neurosurgeon at Cedars Sinai Hospital in LA. I contacted him and he was very helpful. Since I live in NJ, I tried to find alternatives. Don't bother; I had some less than successful experiences. I finally did go to Dr. Schevink and he successfully treated me. Yes it was an effort and the co-pays and travel expenses were not insignificant. But I now have a pain-free life and no longer spend my time laying down, taking meds or getting sick. Contact me off list if you want more information.