Throbbing pressure-like headache every day for 2 years, and 4 months.

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SERosen
New Member


Date Joined Jun 2013
Total Posts : 7
   Posted 6/4/2013 10:33 PM (GMT -6)   
I am hoping to find someone who has very similar symptoms to mine. I feel that speaking with someone who experiences headaches like I do would not only be beneficial to my care, but to my overall mental state. It is so frustrating to not have anyone who understands what this life is like, yet also incredibly humbling when I see so many who are worse off than I am with this condition.

Since February of 2011, I have had a headache. I've read countless stories and watched several videos of people suffering with daily or chronic headaches, but I have yet to find a person who had symptoms that completely match mine. My head hurts all over, the entire head, left and right, front and back, with a throbbing, pressure like pain that at times feels as if I would benefit from drilling a hole in my skull. Some days it feels more like my head is in a vice grip, and someone just continually tightens its hold on my head. This is every day, to some varying degree, and always accompanied with nausea, frequent lightheadedness, and occasional blurred vision. In addition, I also have chronic migraines, which are pounding or throbbing in nature, with your usual light/sound sensitivity and rarely (luckily), vomiting.

I have been through 3 neurologists so far, I have had 2 CT scans, 2 lumbar punctures, 1 MRI, and a slew of medications. I just had Botox injections to help with my migraines, and I'm currently on Atenolol as a preventative. I'm losing my hope and my patience that there will ever be a pain free day in my future. I know that so many of you can empathize, and I hate complaining about my situation because I know it could be worse, but after a stretch of feeling so sick, sometimes I just can't keep it in anymore. I start to wonder if I'm just a big baby...I used to consider myself as having a relatively high pain tolerance, but the last two years have led me to feel as if I'm unsure of what my mind and body are really doing. Does anyone else ever feel this way? Even though the pain is so clear and crisp, do you ever wonder if this is in your head, just like so many people think when you explain this to them? I just hope that by finally speaking with people who live with this as well, that I'll find some reassurance and clarity, as well as maybe some treatment advice that my doctors haven't tried yet.

Thank you so much for reading, I truly appreciate it.

Chooch
Regular Member


Date Joined Mar 2013
Total Posts : 30
   Posted 6/5/2013 6:58 PM (GMT -6)   
I too have been suffering with the same symptoms. I have been like this since Nov. 11. Constant headache from the time I wake up to the time I go to bed. I am missing work a lot and my head feels someone is just squeezing it. Pressure, light headedness as well. Elevators don't help either. Pain all over my head as well. I am on my 2nd Neuro and have tried Medrol pak, Elival, Meclizine (Vertigo too) and Topomax. It is very discouraging to have to deal with this for the amount of time that I have so I can't imagine 4 yrs. I def feel your pain. All's we want is answers and no one can give us any. There has to be SOMETHING someone can do or give us that suffer from this constant pain. You are not alone!!!
Take Care
Lisa

SERosen
New Member


Date Joined Jun 2013
Total Posts : 7
   Posted 6/5/2013 8:13 PM (GMT -6)   
Lisa, I am so grateful for your response. I'm sorry to hear that you've also been having the same troubles, but yet relieved to hear from someone who can truly relate to my situation. I have also tried Topamax, and so many others that I honestly can't even remember them all. Yet there hasn't been any relief, most of the time I am left with the same headache, but just added side effects from the new meds. You are so right, all we want are answers and it seems like the longer this goes on, the further away from answers I get. What diagnosis did your neuro give you? According to my medical record it says I have chronic daily headache and chronic migraines, but yet this was never discussed with me. When I ask about treatment options it's always here, take this and we'll talk in 6 weeks. 6 weeks in this kind of pain is a long darn time...I'm tired of waiting, I don't want to wait anymore, I want to wake up without a headache. I want to brush my hair, listen to music, sing, dance, walk up stairs, play with my dogs, go to a movie, without it being an issue of making my head hurt worse. I'm losing valuable time with my family because I don't feel we'll enough to go out most of the time...something is wrong, our lives shouldn't be like this. I hope we both manage to find some answers soon.

Jesus ❤️
Regular Member


Date Joined May 2013
Total Posts : 35
   Posted 6/6/2013 4:28 AM (GMT -6)   
Dear SERosen,
You are not alone being in pain. Doctors really gives me the craps with their careless attitude towards patients who have pressure & pain in their head.
There should be medication out there that causes extreme pain in the doctors heads. Then tell them to live their lives with pain!
It was the 12th & 13th specialists Neurosurgeons I saw that used their brains to diagnose me. The previous 11 neurologists were useless as teats on a bull.
I'm recovering from surgery to repair 2 brain fluid leaks (CSF Leaks) that I had for 2 years.
I still have chronic pain that's being managed by medication.
I have substantial disabilities but I'm a fighter & keep positive most the time.
Don't give up, you demand referral to as many specialists that you need to get answers. That's what I did.
Take care.
Angel99

Chooch
Regular Member


Date Joined Mar 2013
Total Posts : 30
   Posted 6/6/2013 12:02 PM (GMT -6)   
I will have to research CSF leaks & lyme disease as these are some suggestions I have seen. I doubt that is my issue, but I guess it doesn't hurt to research. I am STILL waiting for doctor to call me back today. (since yesterday) I was wondering if anyone is out of work due to this migraine problem??
***Sigh*** Hope to hear from you all soon.

IrishDragon
New Member


Date Joined Feb 2013
Total Posts : 3
   Posted 6/6/2013 12:12 PM (GMT -6)   
I've had a headache with vice-like pain every day of my life since I was 35. The problem has been traced back to my jaw and subsequent involvement of all my supporting neck muscles. The only thing that helps me with my pain are narcotic pain relievers and there is no cure. The joint had so much damage that even if they "fix" it, the muscles have memory and will always be tight and tense-thus causing pain. I, unfortunately, just have been forced to learn to live with it. IM on disability and take antidepressants so I can try to keep from sitting around and feeling sorry for myself all day. Hey, at least Ihave an answer.

Chooch
Regular Member


Date Joined Mar 2013
Total Posts : 30
   Posted 6/6/2013 12:12 PM (GMT -6)   
I will have to research CSF leaks & lyme disease as these are some suggestions I have seen. I doubt that is my issue, but I guess it doesn't hurt to research. I am STILL waiting for doctor to call me back today. (since yesterday) I was wondering if anyone is out of work due to this migraine problem??
***Sigh*** Hope to hear from you all soon.

Chooch
Regular Member


Date Joined Mar 2013
Total Posts : 30
   Posted 6/6/2013 4:59 PM (GMT -6)   
Doctor is calling me in some Depikote while I am waiting for my insurance co. to approve Botox injections. Feeling somewhat hopeful.

NurseLisa
Regular Member


Date Joined May 2013
Total Posts : 432
   Posted 6/7/2013 9:48 PM (GMT -6)   
Have you thought about seeing a Pain Management doctor? Just a thought!
IBS C&D
TOTAL HYSTERECTOMY
3 KNEE SURGERIES
GAD ANXIETY
REFLUX
ALLERGIES AND ASTHMA

SERosen
New Member


Date Joined Jun 2013
Total Posts : 7
   Posted 6/7/2013 10:18 PM (GMT -6)   
I haven't been referred to one. I have a neuro appt on Tuesday after having a really rough couple of days and calling and telling the advice nurse that I can't do this anymore. Guess what they offered me...naproxen...ska Aleve. Seriously?! If I could get rid of a headache with Aleve I wouldn't need a neuro! And they seem more concerned with avoiding the dreaded medication overuse headache than helping me manage my pain. Has anyone else ran into that issue?

Tobamory
New Member


Date Joined Jun 2013
Total Posts : 2
   Posted 6/27/2013 12:44 PM (GMT -6)   
I've got to keep a diary for 2 months before they will let me have Botox, how have you all found it, does it work.

I was told 32 injections around the head every 3 months ?

SERosen
New Member


Date Joined Jun 2013
Total Posts : 7
   Posted 6/27/2013 4:39 PM (GMT -6)   
I had my Botox injections about 4 weeks ago now and I've only had one full blown migraine, and a couple mini migraines that don't even compare to a regular migraine for me. I would definitely suggest Botox. It hasn't improved the chronic daily headache, but the migraines are much improved. I'm not sure if it's 32 injections, i think it depends on the location of your headaches but it was quick, relatively painless and the only side effect was i have slight inability to move the inner part of my eyebrows. I hope you get to have yours soon, it really is worth it! Good luck!

goawaylyme
New Member


Date Joined Jul 2013
Total Posts : 6
   Posted 7/17/2013 7:57 AM (GMT -6)   
Intense pressure in the head, migraines, pressure in my frontal sinuses, but my nose isnt stuffy, cognitive problems, etc.... I have had it two years.


Went to all the doctors in the world.


You NEED to get tested for LYME DISEASE and co-infections from a tick bite (Babesia, Mycoplasma, Bartonella, Ehrlichia, viruses, etc.)

I didnt test fully positive for Lyme.. I only had a few strands. I did test positive for a co-infection, further supporting th fact I have Lyme and was bitten by a tick. Not everyone gets the bullseye rash and the bacteria can lye dormant for years.


My head pressure is slowly getting better. I strongly suggest you join the Lyme Disease forum if you really want your life back and find an LLMD (Lyme Literate Medical Doctor).


Don't wait around and shun it off like I did. "Lyme disease is just sore joints and stiffness.." .... I was far far far from the truth. Over 100+ symptoms.

Chooch
Regular Member


Date Joined Mar 2013
Total Posts : 30
   Posted 8/4/2013 5:35 PM (GMT -6)   
I am going to a pain management center and had my consult for the Botox. Honestly since being on the Mag Oxide and B Complex my headaches although still there haven't been too bad. I am looking forward to the injections though.

Chooch
Regular Member


Date Joined Mar 2013
Total Posts : 30
   Posted 8/13/2013 1:39 PM (GMT -6)   
Botox approved!!! FINALLY 9/3 is the big day. Hoping they will work. Today I had to stay home from work as yesterday a migraine started and it was a dozy finally starting to feel better. How is everyone else doing?

ErinSmith
New Member


Date Joined Aug 2013
Total Posts : 12
   Posted 8/18/2013 9:51 AM (GMT -6)   
I know how you feel - then the docs look at you like you are CRAZY (or worse write in your RECORD that you are faking it - that's what mine did....yes SERIOUSLY he wrote that I'm a hypochondriac)

Let me know how the Botox went - I'm scheduled to get mine done on the 23rd and I'm just nervous as heck. I had a lidocaine injection but had a severe reaction to it that it put me in the hospital for 3 days. (and it didn't help at all)

best of luck and I hope you feel better soon

Aphena
Regular Member


Date Joined Aug 2013
Total Posts : 29
   Posted 8/18/2013 6:07 PM (GMT -6)   
i'mm waiting to hear the hypochodraict thing. I told one dr off and he immediately added mood disorder to mt chart, the a-hole. :) I did the botox no help for me, but again depends on what your headhace is FROM. HUGS to everyone adn WOW. I wish the Dr's could see all this and Feel the pain......makes me sad reading it all..only happy to know im not alone.................

mirandamariiie
New Member


Date Joined Aug 2013
Total Posts : 5
   Posted 8/19/2013 1:21 PM (GMT -6)   
thank god i'm not the only one
I have the exact same symptoms as you (even up to the blurred vision!!) and I too sometimes question my sanity on if I am just being dramatic and in true pain or if I'm just being whiney
When I tell people I have been in pain everyday for months at a time I usually just get a faked 'shocked' reaction and a lot of scepticism towards what has truly been happening to me.
If you ever need someone to talk to about the pain or how you feel then I can definitely relate! I'm here for you!

ErinSmith
New Member


Date Joined Aug 2013
Total Posts : 12
   Posted 8/20/2013 9:25 AM (GMT -6)   
Well I had an appointment at a large university here and the doctors there actually diagnosed me with migraines and said that I've been suffering for the last year because my neurologist hasn't even tried enough variety of meds. He didn't even have me on an ADULT dose of topomax (who knew) so they have adjusted my meds, taken me off the propranolol and told me NOT to get the Botox for now. They also said that the facial numbness, arm numbness pain in my cheek are ALL related to the migraines! So hopefully I will be breaking my cycle of migraines soon. Oh they also said that my Hashimotos could also be making them change as well as (oh gesh....) primenopause (UGH) sooo yeah let the "fun" begin.

Hope this helps someone - BTW yes I am still QUITE upset with my regular neuro doc for calling me a hypocondriac and thinking this is all in my head - it's def not so keep pressing y'all and get your answers migraines are CRAZY

Chooch
Regular Member


Date Joined Mar 2013
Total Posts : 30
   Posted 9/6/2013 8:35 PM (GMT -6)   
Hi all. I had my Botox injections on Tuesday....Dr. said it may take a couple weeks to work so in the mean time I have ice on my neck as I have a lot of pain from the injections and I still have a headache. UGGHHHHH...I am hoping this helps because in the long run if I don't have the headaches then the neck pain will be worth it. Oh and my forehead is wrinkle free! LOL

Liljayy300
New Member


Date Joined Mar 2014
Total Posts : 1
   Posted 3/23/2014 6:12 PM (GMT -6)   
My name is josh iv been feelin the same thing because to years bck i got hit in the head an now theres a knot there and ever since the. I have head aches and feel like pressure goin to my head or wen i stand up i wen to the doctor he said it might be cause my blood pressure was high but i told him its been goin on for two years. So they took blood and doin test now
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