Posted 6/4/2013 10:33 PM (GMT -6)
I am hoping to find someone who has very similar symptoms to mine. I feel that speaking with someone who experiences headaches like I do would not only be beneficial to my care, but to my overall mental state. It is so frustrating to not have anyone who understands what this life is like, yet also incredibly humbling when I see so many who are worse off than I am with this condition.
Since February of 2011, I have had a headache. I've read countless stories and watched several videos of people suffering with daily or chronic headaches, but I have yet to find a person who had symptoms that completely match mine. My head hurts all over, the entire head, left and right, front and back, with a throbbing, pressure like pain that at times feels as if I would benefit from drilling a hole in my skull. Some days it feels more like my head is in a vice grip, and someone just continually tightens its hold on my head. This is every day, to some varying degree, and always accompanied with nausea, frequent lightheadedness, and occasional blurred vision. In addition, I also have chronic migraines, which are pounding or throbbing in nature, with your usual light/sound sensitivity and rarely (luckily), vomiting.
I have been through 3 neurologists so far, I have had 2 CT scans, 2 lumbar punctures, 1 MRI, and a slew of medications. I just had Botox injections to help with my migraines, and I'm currently on Atenolol as a preventative. I'm losing my hope and my patience that there will ever be a pain free day in my future. I know that so many of you can empathize, and I hate complaining about my situation because I know it could be worse, but after a stretch of feeling so sick, sometimes I just can't keep it in anymore. I start to wonder if I'm just a big baby...I used to consider myself as having a relatively high pain tolerance, but the last two years have led me to feel as if I'm unsure of what my mind and body are really doing. Does anyone else ever feel this way? Even though the pain is so clear and crisp, do you ever wonder if this is in your head, just like so many people think when you explain this to them? I just hope that by finally speaking with people who live with this as well, that I'll find some reassurance and clarity, as well as maybe some treatment advice that my doctors haven't tried yet.
Thank you so much for reading, I truly appreciate it.