You should be able to get botox for around $10 per unit. I had miraculous results from my very first treatment with the Cosmetic MD, and it cost me around $600-$700 after some promotions they were running. She used 80 units of botox concentrated primarily around my forehead and a little bit in the head. I don't remember the exact locations, only that it was completely different when my neurologist did it, who used 300 units.
The reason I went to the cosmetic doctor in the first place was because after getting approval from my insurance company, they called me and told me I'd have to pay $1,000 out of pocket. I was upset by the news and being just before Christmas, cancelled my appointment. But then a friend told me about this Cosmetic MD who also treats for migraines who's a lot cheaper. I didn't realize that it was mainly cheaper because she uses fewer units. I'm so glad it worked out that way though, because as I said before, if I'd gone to my neurologist for my first treatment, I would have assumed it didn't work.
I'm surprised your insurance company isn't on board. Mine wasn't either but then the law forced them to be once botox became an FDA approved medical treatment, so perhaps yours will change as well. Strangely enough, once I went to the neurologist, I wasn't actually charged anything, insurance covered it all, so the first person gave me entirely incorrect information about the portion I'd have to pay. Probably just trying to scare me off (which they did).
It sounds to me like your son's doctor is planning on using the 300 units as my neurologist did, which at $10 per unit would come out to the $3,000. My suggestion would be to do what I did and go to a Cosmetic MD who treats for migraines, assuming they can treat a 9 year old. The 80 units clearly was more than enough for me, actually much more effective than the 300 unit treatment. And if there's a choice who wouldn't rather be injected with fewer toxins? And even if you pay the full $800 every 3 months, that's only $3200 compared to $12,000.
I really hope it works out for your son as it did for me. It's terrible that someone so young is suffering such pain. It must be severe if his doctor's suggesting botox.
Oh, one last thing. I did quite a bit of research and it's important that the doctor open and prepare the botox immediately before injecting it. Apparently, some places use older product and it loses its effectiveness. You can actually ask to watch them prepare it in front of you to be certain you're getting a fresh batch. Another thing I liked about the Cosmetic MD...she does botox all day long and always has a fresh product.
Best of luck!