Can you have a permanent silent migraine?

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ShazP
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/30/2013 6:59 AM (GMT -6)   
Hi there, I'm hoping I can find someone out in the great ether who can help! This is going to be prettying long-winded so please bear with me!

I started to get migraine auras for the first time when I was pregnant with my daughter - she's now 9. I seldom had a headache but could hardly see. Anything could spark an episode off but most particularly bright lights and patterns. I would typically have a few episodes a week which varied from monochrome to multi-coloured lights to a pixilation effect.

I went for routine eye tests over a year ago and within a week of having the slit lamp test I started to have visual problems. My left eye was misty and I felt vile. After seeing the eye dept at the hospital to rule out an allergic reaction to the dilation drops the symptoms changed. Ever since then I have what I describe as double vision but its more like a discrepancy between how my two eyes are seeing the object. HOwever I get this in both eyes independently so I know it's not a convergence issue. I find that day to day I don't notice this and it doesn't affect how I function - except that I CAN'T READ ANY MORE!!

It's like I see text as patterns and experience an after glare effect when I do try to read. I have only has a couple of auras and or headaches since this started!!

I've been discharged from the eye dept because I have above average eyesight. I had an MRI last Nov to rule out a tumour on my pituitary gland (I have extremely irregular periods and can go for months without anything!). My blood pressure is normal.

I have asked my GP (or rather the last one i saw who has now left the practise!) to treat it as a silent migraine as it's the closest thing that i can relate my symptoms to. So far I've tried amitriptyline without effect and a betablocker.

Anyone had similar?

It is so upsetting to not be able to read - i was supposed to be training to be a teacher but can't study. I can't even read this post back without feeling almost travel sick and like my eyes are bruised.

I really don't know what to do now because the doctors aren't interested!

Servant-of-faith
New Member


Date Joined May 2018
Total Posts : 1
   Posted 5/10/2018 6:59 PM (GMT -6)   
Fiberous Dysplasia pressing on the optic nerves is what Ive been told for my stuff.
My eye sight isnt bad but most of what you typed is also what I have.
All I can tell you is keep searching for an answer.
Hope you find one if you havent already.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7438
   Posted 5/11/2018 11:38 AM (GMT -6)   
I suppose it is possible.

I have daily chronic migraine pain, usually a level 4-6. medications keep it that low.
See my diagnosis in. my signature.

I would look for a neurologist that know well about silent migraines. It may take a long time, but that only advice I can give you, is to keep trying. If one does not work, find another. However, you do have give them some time to make a difference, if the doc seems to not care, more on.

Peace and strength
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

SmilingDaisies
New Member


Date Joined Jun 2018
Total Posts : 5
   Posted 6/10/2018 4:38 PM (GMT -6)   
Yes, I’ve been diagnosed with chronic silent migraines. I get cognition problems, read and write becomes very hard. Difficulty in finding words. Overall malaise. Can’t drive. But no pain.
I’ve tried topamax, nortriptlyne, and now I am on nadolo. My first migraine lasted 3 months, every day until the nortriptlyne started to work when I reached the right dosage. If I don’t take my medicine at the same time every day, symptoms start to come back.
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