Can you have a permanent silent migraine?

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ShazP
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/30/2013 4:59 AM (GMT -7)   
Hi there, I'm hoping I can find someone out in the great ether who can help! This is going to be prettying long-winded so please bear with me!

I started to get migraine auras for the first time when I was pregnant with my daughter - she's now 9. I seldom had a headache but could hardly see. Anything could spark an episode off but most particularly bright lights and patterns. I would typically have a few episodes a week which varied from monochrome to multi-coloured lights to a pixilation effect.

I went for routine eye tests over a year ago and within a week of having the slit lamp test I started to have visual problems. My left eye was misty and I felt vile. After seeing the eye dept at the hospital to rule out an allergic reaction to the dilation drops the symptoms changed. Ever since then I have what I describe as double vision but its more like a discrepancy between how my two eyes are seeing the object. HOwever I get this in both eyes independently so I know it's not a convergence issue. I find that day to day I don't notice this and it doesn't affect how I function - except that I CAN'T READ ANY MORE!!

It's like I see text as patterns and experience an after glare effect when I do try to read. I have only has a couple of auras and or headaches since this started!!

I've been discharged from the eye dept because I have above average eyesight. I had an MRI last Nov to rule out a tumour on my pituitary gland (I have extremely irregular periods and can go for months without anything!). My blood pressure is normal.

I have asked my GP (or rather the last one i saw who has now left the practise!) to treat it as a silent migraine as it's the closest thing that i can relate my symptoms to. So far I've tried amitriptyline without effect and a betablocker.

Anyone had similar?

It is so upsetting to not be able to read - i was supposed to be training to be a teacher but can't study. I can't even read this post back without feeling almost travel sick and like my eyes are bruised.

I really don't know what to do now because the doctors aren't interested!
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