Thanks everyone for your input. It was very insightful. Just knowing I'm not alone has been helpful! I'm happy to say that I'm starting to feel better. I drank a Latte and a Cinamon Roll today! I never thought I would be happy to drink and eat those.
I went to the doctor (GP) yesterday and he feels that the extreme nausea was increasing the dosage of the Topamax too fast and the severe headaches reducing it too fast trying to stop the nausea. I have found a happy medium of 25 mg in the morning and 75 mg in the evening. I am going to stay there for one to two weeks and then try adding 25 mg. I really like the suggestion to increase the dosage and not add anymore until the side effects have disappeared.
I realize that my body really reacts to medications and any changes can throw me into turmoil. Someone mentioned feeling you like they were on a bad trip. I have never taken "drugs" that weren't prescription, but I imagine that's how it feels. One 200 mg, when I felt nauseous I also felt like I was bouncing off walls.
Someone else mentioned pain killers and narcotics. I know they work but I just end up in an endless cycle of rebound headaches. I have lost count of the number of times I have gone throgh weaning off narcotic pain killers because if I stop them cold turkey I end up with rebound migraine headaches.
The other challenge I have is that I only see the neurologist every three months. He is very good but doesn't know me very well. He prescribes what generally works and because I tend to be very sensitive to medications I often suffer at this hands. I now go back to my GP with his recommendations and we work out a plan, because my GP knows my a lot better.
I also get BOTOX injections for my migraines. They are about 50% successful and when I'm old enough to get wrinkles I won't. My extended health (Canadian medical coverage for prescriptions) covers the cost ($400) because it is prescribed as a medical necessity. The only problem is that it takes 19 injections in my forehead and that triggers a migraine every time.
I've rambled long enough. I just wanted to share my week's challenges and successes. Thanks again for everyone's input. It's nice to know to have others to bounce ideas off of.