Dizzy for 6 months now...ugh

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ThaVryBest
New Member


Date Joined Aug 2013
Total Posts : 3
   Posted 8/22/2013 10:20 PM (GMT -6)   
I started getting dizzy spells at work about six months ago. I would get very dizzy and disoriented, my heart would race and after about 30 minutes it would go away. Well, after about a week all symptoms were gone except the dizziness. I went to my Pcp who ran a bunch of tests and couldn't find anything wrong so he referred me to an ENT who did some tests, CT and MRI all normal..so she referred me to a neurologists who said I am having silent migraines. She put me on Topomax which did make the dizziness go away but left me unable to function. I couldn't talk most of the time and couldn't even get a thought together in my head. It also brought on painful migraines that I had not experienced before. She decreased my dosage and now I am dizzy again. I am so frustrated. I feel like I have missed the last six months of my life. Nobody understands how I feel and acts like I just " have a little headache" and its so much more than that. I am just so freakin frustrated!!!

rschoonm
New Member


Date Joined Aug 2013
Total Posts : 7
   Posted 8/23/2013 3:23 PM (GMT -6)   
I suffered with migraines accompanied by vertigo which is dizziness.
 
I was given Meclizine and it helped a lot, maybe try that and see.
 
Its for vertigo or dizziness, and maybe your answer. 

ThaVryBest
New Member


Date Joined Aug 2013
Total Posts : 3
   Posted 8/23/2013 11:09 PM (GMT -6)   
Thank you for the suggestion. I did try that after my initial trip to the ER that led to me seeing my primary Dr. Honestly it wasn't much help. The Topomax worked wonders but side effects are much worse than the dizziness(and its bad!). I have to admit after reading through the different posts on here last night I am..... relieved .....to know that I am not crazy or imagining these spells, the exact thing happens to ALOT of other people but at the same time I am even more distraught over this because it seems that so many people are suffering and going through so many different treatments without much success :(

rschoonm
New Member


Date Joined Aug 2013
Total Posts : 7
   Posted 8/24/2013 12:21 AM (GMT -6)   
I know how you feel and your not crazy trust me, when I first started having my migraines with vertigo I thought I was having a nervous breakdown. they went away for 2 yrs and then 1 1/2 years ago they came back with a vengeance then never went away, I had tunnel vision, double vision, throwing up, the works!
 
I too tried all the classic meds Imatrex, Topomax, topomax made me feel worse! toradol, all the beta blockers, pain meds, muscle relaxers, then had countless MRIs, CAT scans, it has been a horrible life.
 
I then moved to Kansas and saw a migraine specialist in KC and had Botox injections about 8 days ago, and has worked wonders for me the headaches are about 85% gone!
 
I went through hell and back, and hopefully the Botox keeps them at bay, then after the Botox they are going to do a permanent migraine surgery.
 
Have you tried Botox, or a neurologist?
 
Keep me posted, Im with ya!

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 8/24/2013 7:21 AM (GMT -6)   
Hi all, usually post on the IBS and UC forums, because I have life long IBS like symptoms from having a colon resection (cancer) and then my gall bladder removed. Mid-July I suddenly lost 50% of my L ear's hearing, I've been diagnosed with Cochlear Meniere's Disease, while I don't have severe dizziness I do sometimes experience it. My ENT doctor asked me if I've suffered from migraines (I'm 58) and I said, yes, since I was 16. But they've never been so severe I've needed to be on migraine meds or even occurred weekly or sometimes even monthly. But I do get them and my former go to fix was Pepsi, pretzels and Vanquish. Now I've had to cut out caffeine, alcohol and drastically reduce my salt intake. Caffeine constricts the blood vessels in my ear and make the Meniere's worse. I sneaked a 1/2 cup of coffee the other day and I had the roaring/ringing in my ear all evening. I also had 1 piece of Dentyne gum although I knew I shouldn't, had a job interview and wanted fresh breath, it was just sitting in my car back from when I didn't know aspartame is in Dentyne (and mainly all gum unless it's purchased at a health food store). I think the combo of a small amount of caffeine and aspartame gave me the roaring sounds (and dizziness I might add).

So long story short my doctor said to look up migraine triggers and avoid them like the plague.

Aspartame and it's many names - Nutra Sweet, phenylalanine, Aspartic Acid - is a poison in our bodies and is what is used to create formaldehyde, which of course is used to embalm dead people. This substance is in so much now - all sugar free Metamucil products, Yoplait Light yogurt, diet sodas, the total # of foods and beverages is now 6000.

Avoid Aspartame - it's evil stuff. It's now out of my system again but it's been only 48 hours.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg, twice daily + Probiotic: Renew Life/Ultimate Flora/50 Billion count, twice daily + Cholestyramine 1 T daily

ThaVryBest
New Member


Date Joined Aug 2013
Total Posts : 3
   Posted 8/25/2013 10:23 PM (GMT -6)   
Thank you both for the info. I am currently seeing a neurologists, she put me on the Topomax. I too have been researching migraine triggers and have been trying to avoid some that were in my diet. I have been unable to give up caffeine so far :-( But I am limiting it. Botox is definatley worth me checking in to, please keep me posted on your progress
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