Still haven't heard any news.

 Hi,

Hi Trace. Sorry you're feeling so bad. Don't ever worry about having to vent. We all feel the same way from time to time.

I'm sure 6 weeks seems like forever, when you were getting your hopes up about finally getting some treatment that might work for you. Whenever we start a new medicine, it's the same thing, you know? We think "Maybe this one will end the pain." and then you wait and wait, and sometimes have to try something else, and play that waiting game again.

I know finances are a real problem for you, Trace. Do you have any discount drug programs in Australia? Is it possible to set up a monthly payment plan with a pharmacy so you can get some pills that might help to stop the really bad migraines?

What about your doctor's office? Here in the United States, sales people from drug companies come to the doctors' offices regularly and leave samples of prescriptions that the drug companies want the doctors to prescribe. The doctors can give those samples to their patients for free. My doctor does this for me when I run out before my next shipment arrives. (I get my meds from a mail order pharmacy because my insurance gives a much lower rate than when I use the local drug store.)

It must be especially difficult to get a bad migraine and not be able to lie down and really relax for an hour or so, because you have two little girls. I can just imagine all the fun they're having. Running around, giggling and squealing with laughter. My "little girl" just graduated from high school in June!  Do you have a friend, neighbor, relative, who could come over for a couple of hours on your bad migraine days? Anyone who could help while you lie down with a cold cloth over your eyes in a nice dark room?

I'd offer, but it would take me too long to get there   Besides, I'd probably have a migraine, too.

You wrote your letter when it was 11:15pm in Australia. It posted here at 8:15am on 7/13. Keep writing, Trace. It helps.

~~Pegasis

 

Thanks, we do have samples at Dr's here to. But usually they don't have the drug that I need. I do get pharmacy benefits with meds sometimes. If it is a anti-epileptic drug that isn't authorised for headaches then I am not covered. So some drugs I am covered. I am just hoping for a miracle when I go to the pain clinic, which I pretty much know won't happen.

Thanks for your reply.

---

Trace

What a shame! A perfectly good drug has been found to work for more than one purpose, but insurance says No. How unfair!

I heard recently that Minoxidil was originally developed for high blood pressure. Men who had significant hair loss started growing hair. Rogaine with Minoxidil was developed and now there is a completely new product for helping balding men to regrow hair.

Science is constantly expanding and drugs are found to be effective in more than one way. It's a real shame that insurance companies can't or won't keep up!

 

~~Pegasis

Unfortunately Trace there is not cure yet...There are lots of medication though that can reduce your frequency and migraine intensity though. Just try to hang in there and do what you can until the appt time is here. Little things even, try ice on your head, take a warm bath, have quiet time with the kids...put in a kiddie movie and relax together...How about putting a sprinkler in the yard and letting them run through it while you lounge on a chair? Just trying to think of some ideas...

Hang in there, vent anytime and let us know if there is anything we can do!
Sara

---

Sara-Migraine/Headache Forum Moderator