Concussion leading to neverending Headache/Migraine???

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cdnhockeymom
New Member


Date Joined Sep 2013
Total Posts : 1
   Posted 9/10/2013 3:07 PM (GMT -6)   
Hi, I'm new to this board.  My name is Jaime.  I am 32 years old.  I am epileptic, have suffered migraines my entire life (although rarely more than 4-6 a year), and chronic headaches (mild on the pain scale but avg 1-3 times a week lasting a few hours each).
 
I have a bit of a unique situation (I expect, but maybe I'm just full of myself lol).  I was white water rafting on July 1st (this summer), our boat was thrown rather hard and I was tossed out of the boat and hit my head a few times on some rocks under the water.  I hit hard enough to knock my helmet off, lose consciousness for about 7-8 minutes and have no memory of about a 10-12 minutes span surrounding the incident. 
 
Obviously I suffered a nasty concussion from the accident.  The problem is that it is now 10 weeks later and I am still suffering with post concussion syndrome, the main symptom being a headache/migraine that started the day of the event and hasn't really left for more than a few hours yet.  I have not had one whole day headache free yet.  Don't get me wrong, there have been some decent days where most of the day it just been kind of there lingering in the background and maybe even disappeared for a few hours but it always comes back and it is making my life a living hell.  I haven't worked in 9 weeks.  I am a legal assistant for a real estate lawyer and my work is getting very anxious to have me back.  I really want to return to work just to get out of my house and feel normal again but it kills me to spend more than a couple of hours in front of a computer and the fluorescent lights are brutal.
 
I'm at my wits end.  I just want a break.  My neurologist has put me up to 100 mg a day of Topamax.  I'm a week and a half in and so far not only is it not improving the headaches, I think they may actually be getting worse confused   
 
I'm trying to get good sleep, but it's so hard because I wake up in pain many times through the night.  Naps aren't helpful (I've never been a good napper).  the lights are off and the curtains are closed as much as possible.  I wear my sunglasses every time I step out of the house, rain or shine.  I drink lots of water, I've cut down on caffeine, I'm drinking Peppermint tea and doing neck stretches and trying to massage the neck.  Basically I'm trying out as many ideas as people suggest to me. 
 
Any ideas anyone here would have, I'd love to hear them. I'm sorry for being so long winded.  I just want to go back to work and get my life back. 
 
TIA,
 
Jaime
 

cherluvya
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/11/2013 11:08 AM (GMT -6)   
Jaime,

Topomax makes my head hurt more. My granddaughter has migraines every day. Her doctor gave her the same med my doctor did. I take Amitriripyline. The doctor will begin with a 25mg dose. I'm at 100mg right now. I call it the magic pill. I had insomnia for five years straight. I couldn't fall asleep because of the pain and could sleep very long because the pain would wake me up. This medication totally allows to feel tired and sleep the entire night.

The other thing I found out...that if I took Benadryl my pain meds would work. So I would take it three times a day with my pain meds.

As far as light goes...they make lenses now for migraines. I now can go outside without a problem. Inside works too...I don't have to be in total dark any more.

I have Himopelegic (spell) Migraines so the headaches come with a long list of serious problems.

Good luck,
Cheryl

cherluvya
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/11/2013 3:14 PM (GMT -6)   
Sorry I left out two very important things.

1) Ask your doctor for Fioricet. The one with codeine. You are aloud six a day. Take two at a time. An ER doctor knew I had been going to the hospital. He said if I stayed on this med...it would not only take away the pain...I wouldn't have to go to the hospital again. I started taking it and did so for ten years. Kept me at work.

2) Imitrex shots also use to help me stay at work. My insurance later discontinued anything that was injected. It is terribly expensive and the pill form never helped. I then started what I mentioned above.
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