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sam1328
New Member


Date Joined Jul 2005
Total Posts : 2
   Posted 7/15/2005 8:07 PM (GMT -7)   
New to the site, hopefully I can get some good advice. I am a 36yr old male, have had what I call "chronic daily headaches", since March of this year. I have had two CAT scans, both normal, sinueses are normal. I have been on Midrin, Ultram, Relafen, and Amitripiline and nothing so far seems to help. I get up in the morning, headache behind the eyes, then progresses to the temple region. This pain is a dull, constant pain, not throbbing. I have been to an ENT, allergist, and neurologist, and so far, no one can pinpoint the problem. Recently, been diagnosed w/sleep apnea, and I have been on a CPAP machine for 6 weeks, again, doesn't help my headaches. I have had no other symptoms suche as double vision, neausea, sensitive to light, etc. I have never had headaches like this before lasting this long. I am almost at my witt's end. Does anybody have any suggestions? I would appreciate them.
 
sam1328

Pegasis
Regular Member


Date Joined May 2005
Total Posts : 118
   Posted 7/16/2005 8:46 AM (GMT -7)   

Hi Sam 1238.

Have you had any neck pain? Is your headache constant or does is stop at all during the day? Have you started any new foods? Did you recently stop any medicines suddenly? When your doctor(s) prescribed the various medicines you've tried, did they stop one medicine and try another, or keep what you were taking and add another?  When I began to have constant migraines several years ago, my doctor didn't want to make two changes at once. So if one medicine wasn't working, he added another. Once I started having fewer migraines, he had me taper off one medicine at a time. If the migraines got worse, we knew I had to keep the one that I'd just started to discontinue.

Is an MRI exam possible? They can give a better picture of what's going on. How about an EEG? It doesn't sound like Migraine, but I know daily headaches, no matter what kind they are, can be a real frustrating disruption to your life! I'm glad you're on a CPAP machine. If your sleep apnea was causing the headaches, I would have hoped 6 weeks on the machine would have helped.

Sorry I can't offer a solution. Just more questions.

~~Pegasis yeah


sam1328
New Member


Date Joined Jul 2005
Total Posts : 2
   Posted 7/16/2005 9:12 AM (GMT -7)   

I first started out on midrin, then after I finished that dose, I started ultram. After the Ultram my family doctor referred me to a neurologist. My first visit the neurologist took me off of Ultram and put me on Relefan. After almost two months on the Relafan, I followed up, and he now has me on Ampitripilne (sp). Currently, that is what I am on. I am waiting on results from a CAT scan that I had on 7/15, which will probably show nothing, as I had one in April of this year. I have also seen an allergist, and on Singular before bedtime. So, currently, on the Ampitripline and Singular, and an Advair inhaler for my asthma which I have been on for several years. I have been reading on the internet and really can't decide what kind of headache I have. Every now and then when I wake up my neck does hurt. However, I a reading that a "tension" headache is like a "band" around your head. My pain is behind eyes and then moves to the temple region. I have not started any new foods that I can recall in the past five months. I really appreciate your thoughts Pegasis. I am looking into going an herbal route of taking Feverfew.

 

sam1328


Pegasis
Regular Member


Date Joined May 2005
Total Posts : 118
   Posted 7/16/2005 7:21 PM (GMT -7)   
Hi Sam,

I'm checking into Feverfew myself, for migraines. I'm currently taking it daily in a combo supplement that has B2 and Magnesium. I've copied and pasted a couple paragraphs from a website:

+++++++++++++++

Feverfew (Tanacetum parthenium) is an herb that has been used for years to prevent and treat Inflammation of tissue around blood vessels in the brain is thought to play a role in headache pain and other symptoms associated with migraines. It is thought that feverfew reduces inflammation in blood vessels which seems to decrease these symptoms. The active ingredient in feverfew is parthenolide, which acts similarly to a combination of nonsteroidal, such as aspirin, and a corticosteroid, such as prednisone, to reduce inflammation and pain.

+++++++++++++++

Since you and your doctor are trying several things, you should really discuss taking ANY other medicines, even non-prescription products, because they can interact with other drugs.

Check the warnings for side effects on your allergy meds and on your inhaler. Even though you've been using them for several years, you could have developed a reaction to the meds. It's possible that you're experiencing rebound headaches from the medicines you've taken for awhile. I used an inhaler for about a month because of pneumonia and I had some terrible headaches.

I take Amitriptyline, too. Brand name: Elavil----it's easier to spell :) I'm not familiar with Relafan. Did your doctor have you discontinue the Relafan when he put you on Elavil? Look back at my first letter about not making two changes at once. Again: Just tossing ideas at you...

Good luck. Keep us posted.

~~Pegasis

Post Edited By Moderator (Admin) : 8/7/2010 10:47:16 PM (GMT-6)


Pegasis
Regular Member


Date Joined May 2005
Total Posts : 118
   Posted 7/16/2005 9:58 PM (GMT -7)   

Hey Sam, I've been looking up your meds online looking for side effects and interactions. You might want to try that, too. I found a couple things: It shows headaches can be a side effect of Singulair; also Advair and Elavil can interact with each other. But, more interesting, quite accidently, I found another site that you might find even more interesting. It reviews many types of headaches. Try this:  

www.pdrhealth.com/content/women_health/chapters/fgwh14.shtml

You can also use look up Physicians Desk Reference and find information on just about any drug prescribed. It should give you the same information your pharmacy would give you when you fill your prescription, but it's good to look it over before you get the meds.

~~Pegasis yeah

 


Tracey D
Regular Member


Date Joined Jun 2005
Total Posts : 54
   Posted 7/16/2005 10:36 PM (GMT -7)   
I have recently looked into a mouth splint for clenching. I know that I clench my teeth and wake with headaches. Also diagnosed with Chronic daily headaches/migraines but have been suffering with them for 19 yrs. I'm hoping that this splint can offer me some relief. Have you been down that avenue?
I also have herniated disc in my neck and back and know that my neck gets extremely sore when I have a bad headache. Did they check you neck when they did an MRI?

Trace


tiddlemouse
New Member


Date Joined Jul 2005
Total Posts : 8
   Posted 8/3/2005 6:57 PM (GMT -7)   
Hi Sam1328 -
 
I know you're desperate - but if you're willing to try something a little out of the norm - prior to my car accident I went through a couple years of what seemed like non-stop migrane/chronic headaches.  My dr. tried several different drugs on me - nothing seemed to work - they either made me ill, near psychotic, etc., etc., I went through cat-scans, MRI's, every sort of test possible.  After the last disastrious bout of side effects from medications, I did a pile of research on the net of "natural/herbal" remedies for headaches.  Laugh if you will....but I tried it out - remember, I was desperate.... I started taking 4 x 1000 mg of feverfew.  I took it everyday - religiously at 6am.  Everything I read said to take 1/2 that doseage, but I was desperate, but after taking it for about 1 1/2 month, the headaches started to become less and less...and slowly disappeared.  After about 6 months, they were gone all together! 
 
But - now since being in a car accident, having permanent brain damage - I suffer from head pain, migranes etc.... and take Topomax (and am doing great with it!!)
 
It's worth a try Sam.... I can surely sympathize with you hun - if you need anymore info, I'd be more than happy to help you out!  :-)

Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 8/3/2005 7:18 PM (GMT -7)   

Hi Sam,

I'm sorry to hear your having such a tough time with headaches. I can empathize with you. I suffer from chronic daily migraines but am having an especially difficult time right now reacting to medications and the headaches are similar to what you describe, start behind my eyes, move to my temples and then mine move to my whole head.

Further to the questions Pegasis asked, how quickly or slowly did the neurologist / doctor take you off the medications. I have learned during the last six months that I am extremely sensitive to medications and have severe reactions. I have also found that because I don't see the neurologist as often as my family doctor he tends to recommend the "norm" for procedures which are often too quick or too much for me. I often check with my family doctor before starting a new course of medication.

I also have real problems with any type of sinus / breathing medications. If I get a cold it often turns into bronchitis or a sinus infection and I end up getting a prescription for Flonase, Nasocort or something similar. These medications cause me terrible headaches. I realize that the medications you are taking are different but if a side effect is headaches they may be causing them. It was by accident that I finally figured out these medications were causing the headaches. The headache was continuous and didn't happen immediately when I took the medication.

I've also found that whenever the doctor's prescribe something that it's best to do as much research as possible online. I've learned the hard way that doctors will only tell you the "common" side effects rather than all of them. Being sensitive to medications I'm the 1 in 1000 that gets a headache from the medication. If I know all of the side effects ahead of time I can stop before I get to the debilitating headache.

And, like Tracey D, I also have a mouth splint, it stops me from clenching my jaw at night and reduces the pain in the morning.

If all else fails never be concerned about getting a second opinion. Doctors are human too and can make mistakes.

Good Luck! Keep checking back here, I found the people very supportive with excellent advice and suggestions. :-)


 
Coquitlam55
 
"Be faithful in small things because it is in them that your strength lies."
Mother Teresa


Jon R
Regular Member


Date Joined Mar 2005
Total Posts : 325
   Posted 8/3/2005 7:39 PM (GMT -7)   
Sam- How's your vision when the headache's get going?
 
Pics of me, wife, stepson, and the King.

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