Hello All I am a Newb ! Suffer on the Daily ..??Puget sound neurology is this a good place

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catapiter
New Member


Date Joined Oct 2013
Total Posts : 10
   Posted 10/8/2013 1:59 PM (GMT -6)   
Hello All: wishing you well... I am new to this forum and I wanted to take the time to say hello. I have been suffering from Migraines since I was six years old and I just turned 43 on 9-11. I have tried all kinds of perscriptions for treatment but nothing seems to help. I have tried maxalt, immitrex pill and injections and I became anaphalactic to the injections Nortriptaline, propranolol ... the list continues. The worst Migraine I have had lasted a total of 10 days and on a scale of 0-10 it was a constant 10 on the pain scale. I get the CMH at least 2-3 days a week witch means I have them 24 7 365  pretty much . I am taking Topiramate 150 Mg once a day and Wellbutrin 300mg once daily still getting the headaches. I have noticed that the headaches have increased since the Fall season has come upon us. I am sure they are only going to get worse as the weather gets worse. When I get the headaches I feel like dieing  or cutting my head off it is so bad. I feel like I am constantly complaining. I don't no what else to do! I don't have the energy to shower my balance goes wonky as well as my vision and all I want to do is wear sunglasses and the pain to just stop but it just keeps coming like a big frikin locomotive out of control and no stops along the way :( Can some people here give me some insight as to what has helped them cope and what neurologist have done for them to better their quality of life. I have an appt to see a  different Neurologist and this will be my first time seeing her The last Neurologist was not very nice and didn't seem to have much compassion for people like myself who suffer with this debilitating CMH problem. Please help if you can :) Hugs  to All scool

Angelic_Victory
Veteran Member


Date Joined Sep 2012
Total Posts : 2138
   Posted 10/11/2013 12:33 AM (GMT -6)   
My neurologist diagnosed me as having complicated migraines. This type of migraine affects the brain differently. He had me stop all preventative medications as they can cause dangerous problem in my kind of migraine. He put me on an anti seizure medicine and it has helped immensely. A lot of neurologists are treating migraines with this type of medication.
Nail patella syndrome, osteoarthritis, complex migraines, eosinophilic esophagitis, major depressive disorder, OCD, and fibromyalgia, IBS

Meds: flovent 220 mcg, flexeril 10 mg prn, tramadol prn, buspirone prn, and vicodin prn.

catapiter
New Member


Date Joined Oct 2013
Total Posts : 10
   Posted 10/11/2013 10:39 AM (GMT -6)   
I am taking an anti seizure med " Topiramate" 150 mg a day I was on 225 and had to taper back because I had all kids of bad side affects slurred speech tingling occasional numbness twitches couldn't Drive or barely see , I had such terrible ocular pressure it felt like someone was sucking my eyeballs out with a plunger. It was awful most people who saw me just thought I was disabled or Drunk !

Angelic_Victory
Veteran Member


Date Joined Sep 2012
Total Posts : 2138
   Posted 10/11/2013 1:16 PM (GMT -6)   
I take zonisamide. I've had no side effects from it. It's been great, cutting my daily migraines down to one every few months. There's many different medicines and I'm sure one will work for you. Make sure your neurologist knows of your reaction.
Nail patella syndrome, osteoarthritis, complex migraines, eosinophilic esophagitis, major depressive disorder, OCD, and fibromyalgia, IBS

Meds: flovent 220 mcg, flexeril 10 mg prn, tramadol prn, buspirone prn, and vicodin prn.
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