Headache that wakes me up.

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New Member

Date Joined Oct 2013
Total Posts : 1
   Posted 10/31/2013 4:00 PM (GMT -6)   
Hi All
For the past 12 months i have been getting really servere headaches that are waking me up at night.
When i had the first one i thought i was having somekind of seizure or something and very nearly called for an ambulance. But once i had got up it disapeared after about 10 mins. I just shrugged it off at the time. Went and got my eyes tested in case it was my eyesight causing it. Then it happened again so this time i went to my GP. He did the usual tests blood presure etc that was slightly raised and he gave me some tablets for it. Anyway i have been back a few times now and have mentioned these headaches a few times to hm now but have never come away with any real answer that is causing them.
Now the headaches are starting to become a regular occurance. In the past 2 weeks i have only had 2 nights when i hav'nt been woken by the headache. Ive tried different pillows, changed my sleeping position etc but they are still happening.
The headache seems to come on about one and a half hours after i have gone to sleep. Then wakes me with excruciating pain in the right side of my head and pain going down my face. It is so painful i sometimes cry out.
Two nights ago i had 6 of these headaches in one night waking me every 1 to 2 hours during the night. The next day the vision in my right eye went all blurry for a couple of hours then went back to normal. Now today i actually had the headache while i was awake. This is starting to worry me now and i think it needs investigating further.
I'm going to make an appointment to see my GP tomorrow but am worried he is just going to basicly fob me off again. How do i get him to take it seriously

Veteran Member

Date Joined May 2010
Total Posts : 8384
   Posted 11/2/2013 9:11 AM (GMT -6)   
Have you seen a neurologist? The numbness in your face plus blurry vision sounds like maybe you have a nerve impingement in your neck. This happened to a friend of mine - she struggled for over a decade with migraine and it turned out mostly to be caused by a nerve in her neck. Physical therapy helped her the most.
50 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)generic Colazal (96 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), psyllium (1/2T daily), mesalamine enema as needed. Gluten free as of 5/30/11. Colonoscopy found no evidence of inflammation on 8/16/1

Regular Member

Date Joined Aug 2013
Total Posts : 46
   Posted 11/13/2013 12:50 AM (GMT -6)   
Dear Diane,

Please understand more than anything that I am not a doctor and not diagnosing you. I am only relating to your post and can share the following.

I joined Healing Well website as I am battling prostate cancer. Ocassionaly I come to this board because for 10+ years I have wrestled with cluster headaches. Search "cluster headache wiki" to find the information on wikipedia. Also it has been suggested that cluster headaches can hit as the REM sleep cycle happens. I believe in this as it has happened to me. It is also suggested that daylight patters can increase chances and whenever we change clock back/forward I am mindful because seasonal changes and days longer/shorter have been my worst periods with cluster headaches.

I would gather some information and if you go to a neurologist ask if they have any knowledge and/or treatment history with cluster headaches. Good Luck.
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Veteran Member

Date Joined Jul 2007
Total Posts : 1956
   Posted 11/13/2013 8:05 AM (GMT -6)   
Headaches used to wake me up too or I'd wake up with a terrible migraine beginning.

This went on for decades. Until I got diagnosed with meniere's disease and told to completely eliminate caffeine, alcohol (both constrict the very closely placed blood vessels in the inner ear) and aspartame (toxin in 6000+ food items and drinks now, a toxin loosely labeled as an artificial "sweetener", it's actually ant poison and 1/3 formaldehyde).

After I eliminated these products from my system, my headaches went away, completely. First time in 42 years. I no longer awakened with one or had one wake me up.

I also was told I was severely dehydrated and that was complicating my meniere's disease, the caffeine was actually a diuretic and depleting all of my nutrients.

I now drink 3 quarts of water a day and that is my only beverage.

I feel amazingly so much healthier after purging my body of caffeine, alcohol (that wasn't a big deal, don't even miss it), and aspartame/phenylalanine (it hides under a dozen names).

Just try drinking more water or nourishing beverages that do not contain the chemicals I mentioned above.

If you awaken during the night, drink a tall glass of water. Or two. In fact when you get up each morning, drink 16 oz of water right away.

These tactics seem simple I know and do not involve medications but if not for my meniere's diagnosis, I never would have purged my body of these chemicals. I was in a rut, my go to "med" for migraines was caffeine. I had a serious addiction to it. And in an off shot kind of way, I didn't realize how harmful aspartame is and one of the 92 side effects from it is a migraine. Obstetricians are telling pregnant women to not consume anything with aspartame in it, if they do they are risking passing along birth defects and autism to their babies. Now that's scary! Imagine what aspartame has been doing to non-pregnant people!
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99, Cochlear Meniere's Disease
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Eliminated aspartame, caffeine and alcohol from diet
- Cholestyramine 1 T. daily
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