Daily pains, weekly migraines :(

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MeghanW95
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Date Joined Nov 2013
Total Posts : 2
   Posted 11/19/2013 12:00 PM (GMT -6)   
Hey!
I'm not sure if doing this will give me any answers or what I'm even trying to achieve by doing it, but here goes!
I am a 17 year old girl (18 tomorrow, woo), studying A levels and I have suffered from bad headaches/migraines for as long as I can remember. When talking to the doctors about it, I feel stupid trying to explain the pain I am going through and often walk out forgetting to mention something or another.

So anyway, I'll start with the pain in my head! I can't really remember when this started, but it was within the past 2/3 years... I basically just have a constant pain lurking in my head, I'm not sure how to describe it has lead to me feeling dizzy and I've also recently (past 2 months or so) started getting this minor pain mostly above and slightly behind my right eye.

My migraines never used to be this frequent, but now their bordering on one every week or two, lasting 3 days max and they're very bad, sometimes bring me to tears... I just have to lay in bed in the dark and try to sleep it off. My eyes start to hurt when around bright lights (migraine or not). This mixed in with the constant pain, it's just bringing me down! My mum is so intrigued to know why my doctor hasn't suggested an MRI scan or referred me to a Neurologist yet.

I've ruled out all the regulars like stress, cheese, chocolate and milk etc. and I just can't seem to get to the bottom of it, just kind of feels like I'm doing more than the doctors :/

I've been on all sorts of medication, from;
Propranolol - 40mg 3 times a day
Imigran(Sumatriptan) - 50 mg tablets
Zomig(Zolmitriptan) - 2.5mg tablets
Currently on Topiramate - 50mg twice a day (recently reduced from 75mg twice a day... Why? Your guess is a good as mine)
As well as Topiramate, I am taking a lot of Nurofen, Ibuprofen and Paracetamol.

I'm not really sure what else to say... any comments or advice would be very much appreciated!
Meghan :)

art_teacher_mom
New Member


Date Joined Dec 2012
Total Posts : 12
   Posted 11/23/2013 8:46 PM (GMT -6)   
Hi sweetie, I am so sorry you are suffering. Your migraine pain sounds exactly like mine.
I started getting them at your age, too.
So many doctors over the years told me that diet had nothing to do with it - come to find out, it had everything.
Do you drink soda? If so, stop. How about fast food? Stop.
You need to go on an elimination diet for a week or so and see if it helps. Eat nothing but plain chicken (salt and pepper is ok), plain rice that has been pre-rinsed, green apples, boiled eggs or eggs scrambled in butter.
Basically, things that only have one ingredient.
After doing this for a week or so you will feel a TON better and can start adding back foods to see which ones make you react.
Keep a food diary during this time.

Mine turned out to be corn and msg. Both are nearly impossible to avoid in processed foods. (Did you know msg is a very common migraine trigger and can go under 32 different names approved by the FDA?)

I wish you the best! Good luck and you can solve this if you are diligent!
Me: Migraines.
Imitrex as needed, trigger-free diet. Can't eat any prepared foods, must cook myself from scratch

Wife to a great guy with UC for 21 years
Diagnosed 1992
He has been previously on:
Asocol, Llalde, Prednisone, CortEnema, Remicade, Flagyl, (the other antibiotic, can't remember), Apriso, VSL3
Remission 11/2012
Currently only:
Nicotine patch 14mg, VSL3, Gluten Free, dairy free

MeghanW95
New Member


Date Joined Nov 2013
Total Posts : 2
   Posted 11/24/2013 5:37 PM (GMT -6)   
Hello :) Thank you very much for your reply! I read it to my mum and although we've tried eliminating certain foods and drinks to suss out whether they could be causing them, I'm definitely going to dry and do it as thoroughly as you described! I do like my chicken so that should be fine!
I do drink fizzy drinks occasionally, but we ruled it out and I don't east fast food enough for it to be a cause.
I just googled msg, so shocked!
I hope your migraines are manageable? It must be nice to at least know what's causing them :)
Thank you again for your reply!
Meghan

Migraine_mania
New Member


Date Joined Dec 2013
Total Posts : 3
   Posted 12/1/2013 9:51 PM (GMT -6)   
I've been suffering migraines exactly like this for months now (except mine can last up to 7-8 days, and sometimes I end up in hospital) and after months of trying to figure out what's wrong I've finally narrowed it down to 2 things, I got an MRI around a week ago and I have a small fatty dermoid in my quadrigeminal plate which could be causing them, and another very possible cause is hormones, if you talk to your local GP about going on the OCP (oral contraceptive pill) this can do wonders for hormone related migraines although I cannot take them as my cycle is too irregular, but hopefully this helps and if you try the OCP please tell me how it goes :)

wakeboarder
New Member


Date Joined Dec 2013
Total Posts : 2
   Posted 12/12/2013 10:16 AM (GMT -6)   
Hi im new to this site... Some Consultants seem to think that if you take regular over the counter stuff for migraine.. or even too many prescribed triptans etc can cause medication overuse headaches which wont go away until youve stopped all meds and got your body free of all that you use... this is extremely difficult to do. when you are in so much pain,, but if you can give it a try and see if things improve after a few months.. if not... then my only suggestion is to try something like nortriptylene which is what im an currently using,, i suffered from april this year until aug when i finally ended up in hosp for a few days.. nothing abnormal detected and appt for neuro. which suggested stopping... i couldnt do it.. so i asked my own gp to see if i could try nortrip.. instead of putting myself thru hell with no meds at all... i have now had 6 days without any major pain in my head,, even been for a walk today.. which is something ive not done for months.. i have had one short migraine which i did treat with zomig,, and i was ok after about 4 hours roughly.. and a short sleep.
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