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U/C"er with Migraines

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Migraine Headache
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purplegdaisy
Regular Member
Joined : Feb 2005
Posts : 242
Posted 8/10/2005 8:37 PM (GMT -8)
Went to the general practioner today about my migraines. I recently moved to VA froom MO so I am starting the whole process of finding dr's again! I've had migraines for 20 years (since I was 15) had the MRI's (though it was more than 10 years ago) and have had 1 or 2 headaches per month. for the past 3 weeks I have moved up to 2 or 3 per week. Alcohol and lack of sleep are triggers for me though I do not get the aura that some do. Just a slow, steady pain in my right temple that increases more and more until I am in bed with the lights out and pillows over my ears.

He suggested I see a Neurologist about this new drug that everyone is talking about (Topamax) and having a sleep study. Even though I have told every dr. I've ever seen that lack of sleep causes migraines for me, not once did anyone mention anything about sleep apnea.

Seems I have the right conditions for it as well: being overweight, snoring loudly, chronic fatigue, lack of energy...etc.

I was also involved in a car accident on 7/1 with a 60 mph impact to the front of my car... Has anyone ever heard of increased migraines because of neck trauma or jarring of the brain? They checked out my back, neck and legs, but nothing in my head! I would have thought that if it was related to the accident i would have had more symptoms (like you get with swelling of the brain...slurred speech, mobility problems, etc)

Just wondering if anyone has had the apnea thing and what it was all about. I am also on another forum for ulcerative colitis and both problems combined make me just want to crawl into a hole somewhere until it all goes away!

Purplegdaisy
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purplegdaisy
Regular Member
Joined : Feb 2005
Posts : 242
Posted 8/11/2005 5:26 PM (GMT -8)
Got a call this morning that the neurologist had a cancellation which was great news since my appt wasn't until Sept 15th. I got Toamax which he said to take 25 mg for 3 weeks at bedime, then 25 in am and 25 in pm until week 5. I guess that is slow enough. I don't want those crazy side effects that I see posted on here. I also got Imitrex to inject myself with in the meantime, or if the topamax doesn't work. Has anyone used that? I am not real crazy about giving myself a shot, but if it makes the pain go away, I am ALL FOR IT! (I had previously tried the Imitrex pills and they did not work . The Dr. assured me that the injectible was different though.)

Now if I can only get someone to cancel their appt for the sleep study maybe I could be feeling better by this time next month!
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Pegasis
Regular Member
Joined : May 2005
Posts : 118
Posted 8/11/2005 6:22 PM (GMT -8)
Hello, Purplegdaisy! Oops. Had to go back and put the g in there.

I don't use Imitex anymore, but when I was first given the shot form, I wasn't crazy about giving myself a shot either, and wasn't really sure I could do it. But this is what I did:

I gave myself a "shot" over and over again without the needle in it, until I got the motion down and wasn't nervous about it at all. When the time came, I had done it about a dozen times, so it was just like a reflex. You will like it. The injection works much faster than the pills.

I wouldn't doubt that a car accident could cause killer migraines even if you didn't have a bruised head injury. Especially for someone who already has a history of migraines. I hope the Topamax calms them down for you. Starting with the low dose and increasing gradually is exactly what should be done. You found a doctor who knows what (s)he's doing. Is this the doctor who's checking into the sleep apnea?

One more thing. You'll probably see reference to rebound headaches elsewhere. Did your doctor tell you not to use the Imitrix too often? Let us know if he didn't. Someone here will enlighten you.

~~Pegasis yeah

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purplegdaisy
Regular Member
Joined : Feb 2005
Posts : 242
Posted 8/12/2005 7:46 AM (GMT -8)
MY dr didn't say anything about rebound headaches. What are they, and why do they happen? How do you ge rid of them? He did caution me that no matter what type of migraine relief I try, I only get two chances with anything.... ie: imitrex pill and then shot, or nasal spray then shot..... He gave me enough samples to hopefully keep me going for a while,,, now I am just waitiing for a migraine! Sounds kind of sick doesn't it? I really hope the Topamax does it for me and I don't have to resort to anything else. Last night was my first night on the topamax and I had no trouble falling asleep like I usually do. I felt like i was drunk... there is no way I could take this in the daytiime yet and still function. No wonder they start you off at such a low dose.
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purplegdaisy
Regular Member
Joined : Feb 2005
Posts : 242
Posted 8/12/2005 7:46 AM (GMT -8)
MY dr didn't say anything about rebound headaches. What are they, and why do they happen? How do you ge rid of them? He did caution me that no matter what type of migraine relief I try, I only get two chances with anything.... ie: imitrex pill and then shot, or nasal spray then shot..... He gave me enough samples to hopefully keep me going for a while,,, now I am just waitiing for a migraine! Sounds kind of sick doesn't it? I really hope the Topamax does it for me and I don't have to resort to anything else. Last night was my first night on the topamax and I had no trouble falling asleep like I usually do. I felt like i was drunk... there is no way I could take this in the daytiime yet and still function. No wonder they start you off at such a low dose.
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tysmyboo
Veteran Member
Joined : Dec 2004
Posts : 921
Posted 8/12/2005 6:20 PM (GMT -8)
Hi all!

I am struggling with a big one today...so I will try to answer everything I want to answer in one "shot" sorry the information is random!

Rebound and how to get rid of them: Rebound headaches are headaches that are also sometimes referred to as "withdrawl headaches" where you take too much medication (or take medications too often) and your body almost gets dependent on them and when you start to come down from the meds you start to have more pain and begin to get another headache. It is a vicious cycle...you take meds to get rid of a headache, as the medication wears off you get another and here we go again! In order to end the cycle you must end all medication that might cause rebound and stay clean until things calm down on their own...this can be the hardest thing to do! Sometimes requiring doctor supervision! (Rebounds can be cause by many things, from Tylenol to Triptans and especially pain medications such as narcotics-as if you have questions on specific medications)

Topamax: tapering at the rate you are going should keep you from the possible ugly side effects you have heard about, my suggestion would be to take your single dosage that you are on now...as soon as you get home from work in the afternoon. That way you are putting some dinner in your tummy and have some time to let it get into your system before heading off to bed...so you are tired enough to sleep but not feeling drunk and hungover from being too worn out!

Imitrex injections vs. Pills/Nasal Spray: I have taken all forms of all 7 Triptans (Amerge, Axert, Frova, Imitrex, Maxalt, Relpax, Zomig) ...they are all different from each other...I have found that the pill forms seem to be less effective for me...probably because I have a lot of nausea/vomiting issues with my migraines. The nasal sprays are more effective for me than the pills and the injections are more effective than the nasal sprays. Anyway, something that I was going to mention-that you should discuss with your doctor! I hated giving myself shots of Imitrex with the STATDOSE system because the spring loaded pen had so much force behind it that I actually just started pushing the medication manually and it seemed to make the whole experience a lot more pleasant...just a thought I wanted to share!

Can Head Injury Make you have Migraines/Headaches or make the ones you have worse: Yes! I had what I like to call "normal people migraines" when I was younger and after two concussions my headaches/migraines increased in both frequency and intensity and have found no reason (family history, triggers etc) for them to have increased other than the two incidents. I think that type of injury can increase your baseline threshold level and then whatever else you have going on such as outside or environmental triggers that throws you over the limit faster and more frequently...which results in more headaches/migraines. (There is some wonderful information on Thresholds and how that works, the name of the book is Heal Your Headache: The 1-2-3 Program for Taking Charge of Your Pain by David Buchholz)

Sleep Apnea: There are some conditions that are common with Migraines/Headaches such as Depression, Anxiety, Restless Leg Syndrome, Fibromyalgia, Sleep Apnea, Lupus and sometimes even Multiple Sclerosis (I am sure there are some I have left out...) Just know that these things can play a role in making your Headache symptoms more pronounced and sometimes the medications will go hand in hand treating one another, which can be a good thing.

As far as your appointment goes purplegdaisy...I would call the doctors office and let them know that you would like to be called if someone cancels their appointment. That way they can put you on a waitlist, you may have to be prepared to go in with very little notice...but you won't have to wait as long for an appointment. That can be a great option if you have a flexible schedule!

Please keep us informed and let us know how things are going!

Sara
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wellnow
New Member
Joined : Mar 2007
Posts : 1
Posted 3/17/2007 9:30 AM (GMT -8)
Hi everyone. I have had severe migraines for 35 years. In the last 3 years, they have been almost daily. I've taken seroquel, imitrix, methadone and countless other meds for this condition. Lately I have been using 6-8 Imitrix a week (2 a day some days) - the increase in frequency probably due to 'rebound'.

I want to suggest an incredible alternative that I've recently discovered. Try GOJI Berry Juice (I use the brand 'Genesis Today' because it doesn't have any additives and preservatives.

I have been Imitrix-free for 13 days now - and the Goji causes the headache to go away just as fast as Imitrix! And I am no longer getting migraines in the afternoon. I take goji before I go to bed, and when I get a migraine at 5 am, I take another ounce of goji, and it's gone by the time I get up for work. And it doesn't return! This is new for me, as I've been in and out of emergency rooms for this condition. And it's been nearly impossible to hold a steady job.

This is the website which has testimonies that inspired me to try goji juice: http://www.gojihealthstories.com/storiesheadaches.htm

I encourage all migraine sufferers to try goji - what a blessing to be free from meds, and to be on the mend once and for all!

Ben
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