kaleidoscope vision? but not accompanied by worsened headache?

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Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 3/15/2014 10:21 PM (GMT -6)   
Hi, everyone.

I'm a sufferer of an on-going headache for about 5 or 6 yrs now... has never once gone away, just the intensity changes at times. Severe pressure in head, and constant, persistent tinnitus (ringing in ears) accompanies it always. Blurry vision occurs with it at times. Nothing OTC touches the pain.

On top of that, I have had odd vision disturbances for I would say 3 years now, on and off. An eye doctor mentioned ocular migraine. But I have been thought in the past to have MS because I also get severe vertigo and nystagmus too (where my eyes rapidly shake back and forth on their own), along with a huge list of other neurological symptoms. But anyway, that's sort of a different story...

The vision disturbances often used to come with severe bouts of vertigo, to which I couldn't even stand up without falling down and hurting myself-- had to stay in bed all day long. Beforehand, I would see things as wavy lines or zig-zags... those types of visual disturbances. I think some people describe it as see-saw vision? But even back then, no worsened headache ever accompanied it.

The vertigo has not occurred for about 2 yrs now (knock on wood)! but the visual disturbances still come and go.

Recently, I experienced an all new visual issue in which I have never had before..

It looked like rainbow-colored lines floating around up above my left eye. It stayed to the left of me always, but when I would cover each eye up at a time, it was always there... so it seemed to be an issue in both eyes. Either way, when I would close both of them, I would see colorful rainbow shapes dancing around together... squares, triangles, circles, etc. all in rainbow colors! It really looked like a kaleidoscope! It went away within 20 minutes though, and no worsened headache accompanied it at all. That was it.

Has anyone ever had anything like this!? I'm working on getting health insurance coverage at the mo, after struggling without it for yrs now. So I'm just wondering if anyone on here has ever experienced something like any of these symptoms, and have been diagnosed with anything in particular...

I am only DX with Fibromyalgia but it is strongly thought that I have autoimmune disease(s), as well... so I don't know if these are only ocular migraines, or attributed to something else. No worsened headaches have ever accompanied the odd visual disturbances.

Thank you!

Eden :-)
DX: Fibro, IBS, GERD, Daily headache, Migraine, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality, OCD / Dermatillomania. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" Mary Tyler Moore

scottio19
Regular Member


Date Joined Nov 2013
Total Posts : 32
   Posted 3/17/2014 5:01 AM (GMT -6)   
I think we share many of the same symptoms.

I’ve had a head pressure headache with constant non stop tinnitus since October while also suffering from light-headedness and a few vertigo moments. I’ve had CT scan, MRI, ENT, Headache specialist ect but nothing has been found to explain my symptoms.

The only visual disturbance I experience is a black floater type line in my vision when I’m concentrating on the PC at work or in a bright lit area. Never suffered from any of these symptoms before the headache arrived.

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 3/17/2014 6:24 PM (GMT -6)   
Hmmm, interesting...

Have you been working with any other doctors to try to get it figured out, by chance?

I remember us speaking about our similar symptoms before, yes!

Luckily, I have not had any vertigo spells in well over a yr! (*Knock on wood*)! Mine were very bad... I would not be able to stand up or walk without falling down and hurting myself. It lasted for full days, I had to lie in bed all day long. Does yours get that bad??? JW

Sometimes vertigo can be caused by infections in the ear too... maybe you could see an ear, nose, throat specialist? Especially with your tinnitus symptoms too... I get the same thing with the headache & pressure! I'm not able to see doctors yet though, still getting all of this insurance BS figured out... trying to get a hold of someone at the office

Yeah...but this "rainbow" vision thing was the weirdest thing yet for me... Who knows..

Eden :-)
DX: Fibro, IBS, GERD, Daily headache, Migraine, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality, OCD / Dermatillomania. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" Mary Tyler Moore

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 3/17/2014 6:33 PM (GMT -6)   
SCOTTIO, I also wanted to point out to you too... like I said, I can't get checked yet... but for you, since you were seeing doctors and that... you should look into getting your ***vestibular system*** checked out if you have not already. A lot of these problems are usually suspected to be neurological in nature but if CT and MRI's appear normal and all of that, an ear/nose/throat specialist may be the person to see. Headaches, pressure, tinnitus, vertigo can be caused by inner ear issues (your vestibular/ balance system). Do your ears feel full by any chance? Do they ever pop? It could simply be an infection of the middle or inner ear, OR if the symptoms stick around for a long time and are chronic, it could even be a vestibular disorder, such as meniere's disease. I think an ear/nose/throat specialist may be able to help you! Or at least they could rule that out for you...

Just some thoughts.

I will need my vestibular system checked once I am covered, too. I also get the nystagmus though (where my eyes rapidly shake back and forth on their own)... which can be neurological OR vestibular in nature, as well.

Eden :-)
DX: Fibro, IBS, GERD, Daily headache, Migraine, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality, OCD / Dermatillomania. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" Mary Tyler Moore

scottio19
Regular Member


Date Joined Nov 2013
Total Posts : 32
   Posted 3/18/2014 5:21 AM (GMT -6)   
Hi Evanescent Eden

My ears are a problem as they do feel full and cant pop, they also crackle but I actually went to an ENT specialist who looked in ear in a 5 minute consultation and said my ears were clear and it's a headache issue. I too think it may be something to do with my ears but since ENT dismissed it I'm out of ideas.

I have a lumbar puncture coming up on 8th of April and that the last test headache specialst said we will be doing.

My last Vertigo attack was 3 months ago at work, I had to go to toilet and lock myself in cubicle till it passed.

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 3/19/2014 7:28 PM (GMT -6)   
Do you suffer from severe anxiety? JW

Hmm... I wouldn't settle for one opinion either! I would get a second ENT opinion if the spinal tap does not show anything...

I really need to get a spinal tap too, but wouldn't you believe it... the state told me yet again today that I may not be eligible for medicaid! Ha! What a joke!

Meanwhile, I suffer and only get worse, and this headache itself is enough to make me drive off of a cliff!!!!smhair

Glad you're getting this sorted out... don't give up! And second opinions can always help! Also, it's good to ask for copies of your medical records if you haven't already.. for each test they do, etc.

Good luck, keep in touch... I'd like to know what they find eventually-- for your sake as well as my own, since so many of our symptoms are similar!

Eden :-)
DX: Fibro, IBS, GERD, Daily headache, Migraine, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality, OCD / Dermatillomania. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" Mary Tyler Moore

scottio19
Regular Member


Date Joined Nov 2013
Total Posts : 32
   Posted 3/20/2014 3:57 AM (GMT -6)   
Well before this headache I had no anxiety or stress in my life but since it's came about I guess I have become anxious for not knowing why I feel like crap every single day, I have been on anxiety meds but they done nothing.

My Lumbar Puncture has been put back to the 22/04/14 now due to me having to attend Jury Duty (can't get out of it) so it's a month wait to see what happens next.

Not sure if I can get copies, not sure how it works here in the UK. I paid privatly for my MRI but my CT scan was through the NHS as will the Lumbar Puncture.
 
I'll keep you updated on how things go!

WatchmansMoon
New Member


Date Joined Nov 2013
Total Posts : 12
   Posted 3/25/2014 10:10 AM (GMT -6)   
I've experienced the same kaleidoscope-like vision problem, but have always caulked it up to auras. I also have tinnitus that changes frequencies as my migraine varies, and also some dizziness. The auras I experience like yours, however, don't accompany the migraine pain, but precede it for me. I know to take measures to minimize the migraine pain that the auras indicate is on it's way. Are you sure you're not getting the migraine hours later or even the next day?
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