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New Member

Date Joined Mar 2014
Total Posts : 3
   Posted 3/31/2014 12:41 PM (GMT -6)   
I have suffered from migraines for years but when I got pregnant with my daughter 7 years ago at 35, my migraines got worst. For the last 3 year my migraines have gone from periodically to almost every day. If the headaches are not from stress they come from my sinuses. Something is always causing my pain. I am so physically and emotionally drained that I don't know what else to do. I am under a neurologist care and we have done every test there is but the answer its always the same "its just migraines". I hate when they say that as if its an insignificant thing. They don't realize that when I get those horrible headaches you know the ones that make you beg for mercy then ones that make you think no way possible a brain could stand so much pain and scared to fall asleep because you think you just might not wake up. Yet they say its just a migraine. I look at myself in the mirror and I don't recognize the person I have become and no matter how hard I try to be as normal as possible the pain is always there to remind me who is in charge. I have become a very sentimental person. I could be watching TV and all of the sudden start to cry and then I realize a headache is coming and its going to be a bad one. My doctor doesn't know what else to do for me and I feel like I am on my own to find what can make me better. I have already realized certain foods are triggers but only if I eat them continuously. I can no longer wear perfume or be around scent, I hate that part because I love perfume and I love to have scented stuff in my home. I can not exercise because the movement makes my head start pounding. Alcohol is out of the question so there goes "Happy Hour". I really don't know what else to do. I have a migraine diary that helped me figure most of my headaches come thanks to my nose or stress. Does anyone have any suggestions on what else I can do. I drink water all day I am on topemax 50 mg, I take fioricet for pain but for the bad ones I take Maxalt 10mg or have to go to hospital.

Regular Member

Date Joined Jan 2014
Total Posts : 394
   Posted 3/31/2014 4:25 PM (GMT -6)   
Welcome to the forum.

Sleep I: Try get enough, you should have approaching 8 hours a night, and try to keep a consistent schedule for going to bed. I'm in bed by 9:00 every night for a 4:00 AM wake-up. So I'm getting about 6 1/2 hours every night. It's been working for me. Coworkers with the same wake times are going to bed at 11:30, racking up an amazing 4 1/2 hours, walk around like zombies and fall to sleep sitting at their computers. Not good for anyone, especially those prone to migraines.

Sleep II: Its my understanding that too much sleep can trigger migraines as well. Really, try to stick to 8 hours, or as close as possible. Keep a relatively close schedule.

I see you're taking Topemax. I had an undiagnosed seizure disorder for years. The migraines were not part of the seizure symptoms, but when I began taking Dilantin (Phenytoin) for my seizures, the migraines completely stopped. You may benefit from another medication or a dosage adjustment of your current medication, done, of course, under supervision from your neurologist of course.

Two other medications that significantly controlled my migraines were Ergotrate and Propranolol (Beta Blocker). They were not used simultaneously, I used Ergotrate for a few months, Propranolol at another time for a few years.

MSG was a trigger for me, so I had to avoid that or live with a migraine the next day.

New Member

Date Joined Mar 2014
Total Posts : 10
   Posted 3/31/2014 5:56 PM (GMT -6)   

I agree w the sleep schedule. I take ambien for that too. I have also gone to all natural cleaners and soaps in my house because scents are a big trigger for me too.

I take Cymbalta for the daily headache pain. It works but I have gained weight. For me it's worth it. My Dr is scheduling me for Botox next week for a preventative. I will let you know how that works. All other meds seem to be like eating a sugar pill during a migraine attack. But, Sumavel dose pro is the only one that will even touch the pain. It hurts like hell though!!



New Member

Date Joined Mar 2014
Total Posts : 3
   Posted 4/1/2014 8:46 AM (GMT -6)   
I want to thank everyone for welcoming me, I appreciate the advice. As for sleep I already do that. Make sure I get 7 to 8 hour sleep but no more than that. I take a Benadryl at bed time. I was going to do the Botox but even with my insurance my out of pocket was a lot of money. I am just hopeful that one day I could have my life back. As for now I just ask god to give me the strength to continue the battle.
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