hemiplegic migraines hijacking my life

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New Member

Date Joined Apr 2014
Total Posts : 1
   Posted 4/13/2014 8:32 AM (GMT -6)   
I have been suffering with these since I was 18. I am 38 and every attack becomes worse with some problems not going away. I have what has become permanent weakness for me left side. I have vertigo really bad off and on, slurred speech, confusion, as well as chronic pain, depression, insomnia....the list goes on. I hate going to the ER because they always think I am having a stroke or give me pain med shots. Several t times I was treated like a seaker. My frustration is growing and there are days where I am glad I have my kids or I.would give up totally. I feel like my life has been taken from me. I don't like to drive, I can't work, and there are days I am unable to take care of my children and have to.ask family to take them for me. My husband is supportive and scared of a stroke as am I. It seems like all the specialists want to do.is give me pill after pill and I don't like it. There is no magic pill no magic cure. This is my life and I am becoming acceptance of it even though it is incredibly hard. Anyone else going through this?

New Member

Date Joined Apr 2014
Total Posts : 1
   Posted 4/19/2014 7:44 AM (GMT -6)   
I am glad that you have written this because I totally agree! On a shorter duration I have only had these nasty HA for four years but I swear that with each HA I am Getting more confused, worse balance,etc and no one else agrees. Makes me think i am going nuts. I am the bread winner for the family...talk about stress.

Veteran Member

Date Joined Feb 2014
Total Posts : 1118
   Posted 4/19/2014 9:37 AM (GMT -6)   
I was dx with chronic migraines 4 years ago, just regular migraines (but a LOT of them). I'm sorry you are going thru so much. Just curious, have any of the meds helped at all? What are you hoping to get out of the docs/ER visits? I guess what I mean is, do you know of other treatments that you want them to be trying? Or are you hoping the docs will come up with something new?

Is your depression being treated? Sounds like you may not want to add more meds to the mix for the depression (and insomnia). I understand. I take (at last count) 22 different meds, many of them multiple times a day. Very frustrating! But there are some therapists that specialize in treating people who have chronic illnesses, maybe that would help. I know my therapist and I have pretty much focused most of our sessions (at least over the past 6 months) on the medical stuff and how it impacts my quality of life and how to deal with it. Has helped keep me afloat during the hard times.

I know that in some ways I can identify with what you're going thru, but in other ways, I cannot imagine your pain and frustration. HealingWell has been a lifeline. Sure, sometimes it takes longer than I want to get responses, and some responses aren't so helpful, but for the most part they are. It's good to find other people who can relate, offer advice and support, and sometimes just be there to listen.

I really hope you continue to post (maybe even try the depression forum) and that you get some relief & answers soon!
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