Posted 5/1/2014 2:27 AM (GMT -6)
I have a long and sad story to tell. 11 years ago I went out partying and dancing all day and night (and took some extacy). I was nodding my head whilst dancing and remember by neck feeling really tired but no real pain. 2 days later I suddenly felt light headed and spaced out and a pressure at the top of my neck.
I assumed I had done something to my neck so I had it worked on by physiotherapists. For a whole year I really made no progress. Then I really had my neck crunched by a therapist and all hell broke loose. I felt shocking instantly.
MRI from a neurologist came back normal and I was put on a Amitriptline, then Gabapentin and finally propanolol ( a beta blocker) all to no effect.
Fast forward 10 years and I am so much worse than those days. I am now spaced out 24 hours a day and am very unsteady on my feet all the time. I have an incredible pressure sensation and pulsing sensation in the back of my head, top of my neck and my face tingles all the time. I feel like total crap every waking moment and basically just try to get through a day.
All bloods and MRIs (ive had 5 now), CT scan and lumbar puncture are all normal.
Of course Im stressed and anxious, I feel shocking, so anti anxiety meds are what the docs give me.
Ive tried so many different treatments from therapy to my neck, to a mouthgard at night, to herbs and supplements and of course psych work and therapy.