Hi everyone I'm new here. Like most of you, I am reaching out for support by people who will be able to empathize. Here's my story- it's quite a sad one.
I am a 21 y/o female that never had ANY headaches until March 2013. As a teen I experienced a migraine variant- frequent dizziness w/ aura- but no other symptoms. In March last year I decided to try Prozac to help cope with my depressive disorder & anxiety (mistake #1). I also decided to begin a birth control just a week or two later (BIGGER mistake #2). **I am not one to seek medications. I am very anti-meds, & am disgusted with the country we live in where doctors hand out debilitating pills like candy** However, when you're desperate for relief, you feel as though you have no choice but to try something different.
I was only on the BC pill for several weeks because I felt SO absolutely terrible (headaches, nausea, you name it) and bled EVERY day for a month…so I stopped (I know these side effects are expected for the first couple months but this was something else). I was on Prozac until August 2013. I thought the headaches would go away after stopping BC but I was wrong. In August I attributed the headaches to Prozac so my doctor switched me over to Zoloft. The Zoloft helped maybe 20%. It seemed to raise my threshold and my SEVERE headaches became just bareable. However, I began to experience horrific panic attacks so i decided **** anti depressants, and I weened myself off of Zoloft in October for good. Once completely off meds, the headaches came back with a vengeance. Since then, I have been in excruciating, debilitating pain. The headaches are there from the moment i wake up to the moment i fall asleep.
I have seen every doctor plus 4 neurologists, gotten an MRI, MRV, and CT scan of my head/sinuses.. I even had endoscopic sinus surgery in February hoping once my sinus cavities were cleared out my facial pressure would go away, thus the headaches would cease. But no luck with anything. I have tried numerous meds with no luck. I have been doing acupuncture for months and that only seems to help for 24 hours. I have gotten a couple injections in the ER to kill the pain in the past couple months. I have done E V E R Y T H I N G.
Fast forward to now, 15 MONTHS of daily suffering. I am taking an entire year off University, I have no social life, and I can barely leave my house due to the horrible pain and now social anxiety I have acquired from staying home for so long (the only time i leave my house is for a doctor appointment. I spend almost every day crying and massaging my neck which is sore from lack of activity as well. Neurologists have called what I am experiencing "Status Migrainosus," meaning I got a migraine from the medication and it NEVER went away. (sounds great right?) It's very frustrating because I feel so ashamed/guilty/angry that I tried those medications, and at the same time. I was young & didn't know what horrible effects those pills would have on me. But if anyone is to blame, in my opinion, it is the doctors… they should have warned against starting two new medications at the same time but no one stopped me.
Anyway, any help, advice, or love is greatly appreciated. I don't know how much longer of this i can take. over 400+days of constant headache when I'm a young, social, outgoing girl. I feel as though my life is over. This week I met with a new neurologist who has placed me on one week's course of Naproxen 500mg twice a day, along with a beta blocker Propranolol 10mg twice a day (i also suffer from racing heart & palpitations.) I would also like to know if anyone has had success from these meds.
Please help.. I feel very alone and hopeless and I'm ready to give up for good.
Post Edited (deathbymigraine) : 6/19/2014 7:42:38 PM (GMT-6)